posted
I had my PICC in, started on IV Rocephin about a week and a half ago (two weeks on Tuesday). I'm a little worried though because I've heard time and again that the "brain fog" dissipates almost immediately after beginning abx.. and I haven't noticed any changes there, in fact I hurt more and am even more tired than I was before (herxing?). Also still very depressed, anxious, etc. Will the brain fog stay for much longer?
If I'm going to feel this bad for as long as I have treatment I don't know if I'll be able to handle school next semester...bah!
Any enlightenment from you "been there-done that" folks?
Posts: 20 | From Frederick, MD | Registered: Oct 2005
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BostonLyme2005
Unregistered
posted
Hi,
I am on tetracycline for almost two months and I am having ups and downs. My sleep improved after 3 days, and greatly, had some wild spasms for a few days, some things get better faster than others and there is no rule as to what heals first. Sometimes symptoms come and go for awhile before they are gone all together, awhile could be many months though...Dont stop the meds!
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posted
I had considerable relief from by brain fog by irrigation with colloidal silver. Many toxin producing pathogens love them sinuses.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
YIKES, Yikes!
You're ready to get better YESTERDAY, ALREADY!
A couple of weeks is just not long enough.
It takes longer.
How long have you had Lyme?
While some people feel improvement soon, and you may, too, hoping the fog will be cleared in less than two weeks is pretty durned optimistic.
It's really quite likely that you'll be herxing your tush off, instead!
And then, eventually, the fog'll lift, a little at a time. And you'll start seeing more clearly.
Now, keep in mind, most reg'lar docs (i.e., non-LLMD's) will tell you that 10 days of IV Rocephin will fix you up good as new.
So that tells you a lot right there, doesn't it? I guess they must be onto something. NOT.
Hang in there.
You WILL see progress, though sometimes it's measured over a number of weeks or months, not days. Day by day it's not dramatic, but when you look back after a few months, then you will say "WHOA! Look where I used to be, compared to NOW!"
Good luck. Don't lose the faith.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
Seems I've had Lyme for about 17 years (I'm 21 now), started with a nasty bout of arthritis when I was 4. They had me on 4 weeks of doxycycline "just in case" 2 years ago which of course did nothing...
I guess I am expecting too much. The doctor didn't say for sure when he thought my symptoms would be lifted, except that it may take a long time before I'm better--I've only heard the "brain fog" would go away pretty quickly from other lyme patients, but I'll bet they haven't had it for as long as I have!
My biggest worry I guess is that it's NOT lyme... which is probably silly, I've tested positive for it all of my life! Just wish the docs would have treated me sooner, and like I said, I just don't know if I can go back to school in a few weeks like this...
Posts: 20 | From Frederick, MD | Registered: Oct 2005
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posted
Hang in there with the IV Rocephin. I didn't start feeling better until the 7th week - I never had a hard, full-on flare but I just saw no improvement for the first 6.5 weeks or so.
My LLMD says that for a good portion of his patients the 7th week is the turning point and you just have to hang in there until then.
Also, make sure that you are on other antibiotics with the rocephin (I did biaxin and tindamax at various points) to prevent cyst formation. Oh, and lots and lots of probiotics!
Make sure to try and get as much rest as you can - your body is sick and in crisis mode - pushing yourself too hard makes the antibiotics almost worthless if you are run-down from school, etc. and it will be impossible for your body to heal.
Use this time wisely to rest, implement a good detox program (epsom salt baths and detox tea is simple enough), watch your diet very carefully, gently exercise if you can (walking slowly or even stretching to increase blood flow) and formulate a multi-pronged approach to treating lyme disease.
If I have learned one thing it is that antibiotics are not a magic silver bullet - you have to treat the whole body for lyme and that means doing all of the things that I mentioned.
I survived undergrad and grad school with lyme and I know it can be tough. Alert the student disability office of your condition (letters from MDs help), speak with each of your professors personally at the start of the semester and don't be afraid to cut back on your courseload, take a semester off, ask for extentions, etc.
At 25, I have learned that without your health, you have nothing. It took me 6.5 years to complete my undergrad degree but because I was careful with my health (and rested during intense treatment, like IV rocephin), I am doing much better now!
Good luck.
Bluetick
Posts: 98 | From MA | Registered: Dec 2005
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Patience Grasshopper, Lyme takes time.
Fog has been the hardest sxs to eradicate for me, hence my moniker. That said, other sxs went away in less then a week. Keep the faith as we all react differently to treatment.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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