posted
i am a canadian citizen (without an american citizenship). columbia lyme requires your being american. my brain feels like it is going to stop, it's pretty hard to believe something wouldn't show up and tell me what is wrong. desperate doesn't begin to describe this?
Posts: 244 | From Ottawa | Registered: Dec 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
If your question is where to get a spect scan I don't readily have an answer for you.
You may continually complain of headaches and other symptoms and a neurologist may suggest getting one. Tell the neuro you're about ready to off yourself if you don't find a reason for your head problems.
On the other hand. If you already know you suffer from lyme and neuroboreliosis infection a spect scan is'nt necessary. Unless you need it to convince the neuro!
It will or should show damaged areas of your brain which may lead the neuro to diagnose you with als or ms.
You don't need that.
You do need antibiotics...
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
i still want to. thinking and doing things is so hard, i feel like i have brain damage. i hardly even know if i have lyme. i just have the positive IgM western blot, and the last doctor i saw at the general hospital told me to ignore it. (even though thats a problem even verified lyme sufferers have at the ottawa general hospital apparently)
the thing is the brain is where the problems start and if they see what the problem looks like they may have documented ideas of what the causes could be?
Posts: 244 | From Ottawa | Registered: Dec 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Daniel,
For cryin out loud. If you have a positive IGM that means you have ACTIVE INFECTION and it's probably affecting your brain functions.
It's called neuroborreliosis.
They may or may not see it in a spect scan and most ducks won't do one cuz it costs soo much.
If this duck tells you to ignore your test result then he is absolutely full of it! Ya better get to a llmd or at least a duck willing to treat the infection before you get any worse.
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
A spect scan will show hypo-perfusion, but is non-specific as to the cause. Same thing with a Pet scan, the more expensive version. This confirmed by my neuro and folks on this site.
Your positive IGM is a much more important clue than the spect.
The spect scan can support, but not make the diagnosis of lyme. But it seems you already have been diagnosed....
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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posted
Dr. Jones told me that only two-camera SPECT scans are useful in Lyme. As far as I know, we don't have those in Canada. Not in Nova Scotia anyway.
- Kate D.
Posts: 11 | From Halifax, NS, Canada | Registered: Mar 2005
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posted
please,do not waste your money on spect scan,it is only useful,by means,of before and after treatment comparision.i nearly got one(1100$ amen clinic,ca.)but the psychiatrist at the clinic and my lyme doc,said,no need to spend the money.my western blot is positive,i have lyme and yes it is affecting my brain,what i need to sdo is treat it.you need to treat your lyme disese.either find an llmd,who will give you loads of abx and who knows what he/she is doing(good luck) or find an alternative practicioner to put you on an herbal protocol(good luck,also) it is hard.but spend the money on treatment.
Posts: 32 | From northern ca. | Registered: Mar 2005
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posted
amen clinic,in ca, will give them to you.they fax you a presription form and our doc fills it out.
Posts: 32 | From northern ca. | Registered: Mar 2005
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posted
i am just not finding any doctors that are really seeming to be willing to do much, except for one doctor who i do not know how to communicate with. i am currently on doxycycline 200mg + flagyl 500mg, both twice a day. it's been a month and i think i may even be getting worse. i don't know even if i have lyme that with any doctor i see its even going to be treatable. just guessing from neuroscience theory, i gather that i'd have to have very severe frontal hypoperfusion. it would be nice to see those readings, see a doctor and say "no this is not normal" and try other medications. i was going to see a doctor in chazy new york, who apparently had lyme, got it in canada, lives in canada, but apparently has to do her practice in NY. unfortunately, even though my dad offered to drive me, i cant even follow any of the processes including passport stuff to even get ready to go. i'm lucky i'm even typing this message the way things have been going.
now i have a sore neck, my muscles feel like marshmallows, i have no strength, and my brain always being full of hardened cement.
Posts: 244 | From Ottawa | Registered: Dec 2005
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