posted
I'd like to hear people's experiences who have been on rifampin and doxy and how they've coped with the side effects, I know "second time around" was starting a course in November.
I'm currently on IV rifampin 600 mg and Iv doxy 400mg and miserable, am cutting the rifampin back to 300 and that's helped some, but am not sure if it is still therapeutic.
Thanks for sharing, Kathy
Posts: 17 | From Minneapolis | Registered: Aug 2005
| IP: Logged |
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I am on orals . I do 600mg rifampin, 200 mino, and ramping up to 6 grams amoxicillin a day.
I have felt pretty crappy for the last month. I am handling the meds ok though.
I think 600 mg is oretty standard for rifampin and would check with your doc before lowering it.
Hope it gets better for both of us...heck all of us, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
I stuck it out as long as I could (almost a month) and then gave up the rifampin. Stayed with the doxy off and on with good results. I prefer rife to antibiotics but use them according to the outline in Bryan's book.
Bottom line, I think the rifampin helped but I just didn't tolerate it well.
All My Best, Scott
-------------------- BTW - I am NOT a medical professional - just speaking from MY own personal experience. Posts: 266 | From Philadelphia | Registered: May 2005
| IP: Logged |
posted
Thanks Robi. I did talk to my MD and she said the pathway in my liver that metabolizes rifampin (P450) is not functioning well (I had the same problem with zithromax which is also metabolized through this pathway)so my drug levels were building up - i.e. a lowere dose would be as effective for me as a high dose for someone else. We're stopping the rifampin for 3 days to let it clear and then will restart at 300 mg and titrate down if needed.
Posts: 17 | From Minneapolis | Registered: Aug 2005
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
up----
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I'm on Rifamp and Mino. Getting used to the orange urine, granted it freaks me out a bit. Reminds me of taking Pyridium for IC or UTI.
This combo packs a real punch.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic