posted
Has anyone with neuro lyme had a feeling in their legs like they aren't there. Like you have to think about walking because the legs and brain don't seem connected.
Thanks!
Patti
Posts: 340 | From Ohio | Registered: Oct 2005
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posted
Do your legs feel numb, tingly, or heavy as well? I commonly have those feelings.
I also do physical therapy because I have major disc issues. I have a chiropractor that does NUCCA adjustments which involve very gentle pressure (no thrusts, etc) near the spine.
Lots of magnesium helps--however, it makes me so tired I take it at night. The weird feelings occur mostly in the day.
My legs react the most when I am taking minocycline. Lots of crazy feelings.
Have you had an MRI of your neck or lower spine?
Posts: 23 | From Phoenix, AZ US | Registered: Jul 2004
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posted
Yes I have had MRI's of both areas. In fact, had surgery on my cervical spine 5 months ago. I'm trying to figure out of I have lyme or not since I had bullseye rash years ago and now symptoms have returned. LLMD appt. not until Feb. I have burning all over, including scalp so I don't think it's the spine. Just not sure.
Posts: 340 | From Ohio | Registered: Oct 2005
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
My legs are there ... they just don't work! This is because of the Lyme bacteria in my central nervous system.
I have been using a walker for 10 1/2 months. Right knee pain is very bad, plus I have no sense of balance. My right leg used to be my weak one; now it's the left.
I have spasms, hyper-reflexivity, restless leg syndrome, etc.
I'm on ketek, plaquenil and doryx, and haven't turned the corner. Yet.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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caat
Frequent Contributor (1K+ posts)
Member # 2321
posted
If it's like you can't feel where your legs (or arms or whatever) are in space- not just a lack of feeling or weakness- then it's ataxia. Yep, I had it, it went away with high doses of doxycycline; high enough to cross the blood brain barrier. It comes back if I go off treatment and relapse.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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