posted
This is a post I wrote on another forum. I was wondering if anyone else has experienced this?? I supposedly have thoracic outlet syndrome so it could be that but I'm not sure.
I'm highly positive for Lyme again (by LabCorp testing) and this chest pain feels different than the pain I usually get from the TOS.
Any replies are gratly appreciated. I'm going for a consult with a LLMD monday. Hopefully I will be able to stay out of the ER until then.
quote:I still have this chest pain. Grrrrr! One of my patients told me that her daughter has TOS and I talked with her Tuesday about it. She said she gets chest pain and SOB as well, so I guess this is all part of the TOS.
It's been getting worse over the past few days though and I've tried using my combivent inhaler but with minimal relief.
I've been having air hunger lately. I feel like I'm just not getting enough O2 and I get restless and anxious. I checked my pulse ox at work the other day and it was 92%, which is low for me (usually 99-100%). I'll get an adrenalin (sp?) rush from the increased anexiety and that makes the chest pain worse.
I'm starting to think I might really have some form of orthostatic intolerance, as it gets worse if I have to be on my feet or sitting upright for long periods.
I am on my feet for nearly 8 hours straight while at work and several times in the past two weeks I've gotten lightheaded, dizzy, palpatations, rapid pulse and a drop in BP and nearly fainted. I get the feeling of the blood rushing out of my head and I constantly have this unrelenting urge (need) to lie down. The only time I feel better is while lying down flat.
I also received my western blot results yesterday and I'm highly positive for Lyme, AGAIN! I believe that it is chronic and I was never treated properly. This time I think I will need IV ABT since I have neuro and musculoskeletal involvement. If only MDs here took lyme seriously!
Well sorry for this turning into a rant. Wishing everyone lots of spoons!
_________________ ~Kelly
DX: Chronic Lyme, Fibromyalgia, TMJ, TOS, Arthritis, RAD, Panic/Anexiety Disorder, Allergies, and probably more.
-------------------- ~Kelly
"Had I not known I was dead already, I would have mourned my loss of life."
Posts: 22 | From New Jersey | Registered: Jan 2006
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"Had I not known I was dead already, I would have mourned my loss of life."
Posts: 22 | From New Jersey | Registered: Jan 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Kelly
My heart has been All Over the Map--
It goes from Not Beating At All -- to Full Blast in a matter of minutes-- and I get-- All Kinds of crazy beats inbetwene--
After I started Good Babs treatment with Bactrim DS 2X aday Artemisinin 3X 100 aday Tonic water 2 leters aday and Biaxin and some Doxicycline for Lyme and other critters--
ALL of the crazy heart beats have Stoped--
Perty Much Completly--
For a short period I still was getting the 2am heart twitches-- But they seem to have stopped Now--
My Blood presure has droped a Bunch--I dont remember the numbers but my doc said that it was Very Good---
It seems like it dropped about 40 points Quickly- 1 month--
Opps--I spoke to soon-- Its two thirty AM exactilly - and I think the babs wants to come out and Play--Alittle--
I feel that taking extria meds when the critters are out playing helps also-- Thats what Im trying anyways--
Kelly -you show Most of the good indecators for Babs--
I would almost bet money on it--
Im not a Doctor- I just - Play One On Me --
So far the Playing - Seems to be Working for Me -- --Jay--
Ps-- In Austin a Gusher rain storm has been going on for about 30 min-- We Sure need the rain--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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caat
Frequent Contributor (1K+ posts)
Member # 2321
posted
I was diagnosed with CFIds/Fibro for years and was told there was nothing wrong with my heart.
Well... there is. Haven't had any tests done for it, other than an EKG in the emergency room- slight variation on ST... Nothing big enough for them to get concerned about with my kind of insurance...
But there is definitely something going on with my heart. My LLMD gave me a low dose of beta blockers to take as needed during herxes etc. It has helped the tachardia (sp?) a lot and the irregular rythms no longer scare me when my heart is slowed down a bit.
I only take it when it starts to scare me- I get pounding so hard it will wake me up and shake my whole body sometimes. Hard time breathing right around the times this happens. It gets worse when I have bad yeast. When the yeast is subdued it's not too bad.
Beta blockers can interfere with short term memory so I try not to take them very often. My memory is shot as it is...
My BP was extremely low for years and has now sort of normalised. I think that's a good sign.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002
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I'm going to see a LLMD tomorrow morning and he'll test me for all of the co-infections. I don't know how I could have Babs...I don't recall a fever or flu-like symptoms this past year.
I thought Babs had a sudden onset with a fever? Well anything is possible here in Tickville, NJ!
I think part of my problem is some form of orthostatic intolerance like NCS or something.
I'm okay if I lie down but if I have to sit up or stand for long periods of time, my BP drops, pulse increases, get lightheaded and dizzy and sometimes nauseus and I get palpatations. I've nearly fainted a few different times at work.
I had an EKG about 2 years ago and it was normal. Haven't had one since then. Well I'll just have to wait and see what the LLMD says.
~Kelly
-------------------- ~Kelly
"Had I not known I was dead already, I would have mourned my loss of life."
Posts: 22 | From New Jersey | Registered: Jan 2006
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posted
I agree with Jay on the babs. You don't necessarily have flu like symptoms at onset. I've had it for years and years and have no idea when I got it.
Hope you have a good LLMD.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Lymetoo, Thanks for the info. Very interesting that I have several of the symptoms listed there.
The one that really gets me is the increased dental problems...
This past year I had one root canal and 6 new cavities!! I have never had that many cavities before, in the past 15 years!
I also have some eye problems that are new/getting worse. I have a lazy eye (convergence disorder?) but it effects either of my eyes. Also have nystagmus, which seems to be getting worse.
I had another near fainting spell at work tonight. Thank goodness I have not actually fainted there. If I fell onto the floor in the nursing home I'd have to burn off my skin!!
Well I'm taking a nice list of symptoms to the LLMD tomorrow (well actually today...it's 3:15am). I just hope he doesn't say it's "all in my head"!
~Kelly
quote:Originally posted by Lymetoo: Here's a partial list of babs symptoms:
�� Vertigo �� headache fatigue �� dental problems: accelerated tooth decay and cavitation formation �� TMJ problems �� eye problems (floaters and blurry vision) �� weight loss and abdominal problems (GERD) �� fibromyalgia, �� shortness of breath �� malaise �� drenching night sweats and fever/chills
You don't have to have all of the symptoms, just like Lyme.
I would add the fainting and/or feeling of fainting to the list, along with crushing fatigue.
-------------------- ~Kelly
"Had I not known I was dead already, I would have mourned my loss of life."
Posts: 22 | From New Jersey | Registered: Jan 2006
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posted
I've been having the same symptons as you described and have found out it is from Hypoglycemina, Low Blood Sugar...........
This could possibly be the reason you are having these feelings. It might pay to get this checked.
Posts: 97 | From Tennessee | Registered: Nov 2005
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