LymeNet Flash: Grand mal seizure

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Grand mal seizure

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Author

Topic: Grand mal seizure

Lymebegone
Junior Member
Member # 6055

posted

My daughter will be 19 in March, has had Lyme since 1998, being treated since Jan 2004. Also tested positive for mycoplasma last year.

Yesterday, she had a grand mal seizure.

Our PCP thinks the seizure may have been caused by the abx she has been taking (omnicef, minocycline, plaquenil) and wants to stop them.

We can't reach her LLMD until Monday. Any advice, experiences related to this would be appreciated. Thanks.

Posts: 7 | Registered: Aug 2004 | IP: Logged |

hiker53
Moderator
Member # 6046

posted

So sorry to hear about your daughter. I have small seizures and got them with Lyme before going on antibiotics, but I have neverhad a grand mal seizure. It must be frightening.

Wish I had advice to offer, but I will pray. Hiker

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 10193 | From Illinois | Registered: Aug 2004 | IP: Logged |

lou
Frequent Contributor (5K+ posts)
Member # 81

posted

I don't think a couple days off meds will be too damaging. It might even help if this was triggered by herx. Think the LLMD should have the final word. And if you stopped in the meantime, it would make your pcp feel better, more likely to be supportive in the future.

Posts: 8430 | From Not available | Registered: Oct 2000 | IP: Logged |

Mo
Frequent Contributor (5K+ posts)
Member # 2863

posted

How frightening!

Isn't there a way to reach the LLMD in this kind of emergency??
Through an on-call service or even by speaking to one of his staff who might refer something like this to him?

Posts: 8337 | From the other shore | Registered: Jul 2002 | IP: Logged |

3 limes
Member
Member # 8520

posted

I sent you a private e-mail. Yes I have had the experience and it is quite scary!

Posts: 23 | From Camp Hill. PA | Registered: Dec 2005 | IP: Logged |

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