trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I dont seem to see as many descriptions as I used to. I am suffering greatly from muscle pain that is totally bizarre!
Here is how I describe it:
1- I have razor blades in my biceps. When I use my arms the blades are cutting through muscle. Sometimes when I DONT use them the razor blades move slightly and cut through some muscle.
2- I have radiological tumors hidden deeply in some large muscles. These tumors emit powerful chemicals that feel like they are burning slowly through certain muscle groups.
3- I have sharp pains like someone took a pin and shoved it into me. (these are rare lately thank god!)
4- I have intense moments of heat on the surface of the body about the size of my hand. This reoccurs in one spot over and over. It feels very hot, like a sudden hot pack was placed there, and then taken away.
5- I get sudden onset of pain in the face, jaw or neck that feels like a rapid swelling of a sinus cavity...pressure and pain both. Then it subsides and that area is NUMB for a few minutes. I have no real sinus trouble.
6- The fronts of my thighs are so sore, it really does feel like I did 100 squats WITH weights in my sleep. I did NOTHING. trying to squat to sit on the toilet or get something from below is nearly impossible and my face looks like I am giving birth.
Please describe you muscle pain and/or relate to mine. Looking for pain buddies, Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Really no one else has muscle pain they want to describe?
Posts: 1950 | From New Mexico | Registered: Sep 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I have right calf muscle pain, that happens now and then....it feels like I ran a triathalon... i can barely walk it hurts that bad.
Then just in time for my monthly flare i have left bicep pain...that feels like someone is squezing my arm all the time, or the feeling you get when you lift a lot of weights.
I had razor type pinching in my bladder yesterday...
My symptoms used to be pretty straight forward....now they are so beyond odd!!
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Mine feels more like bone pain........especially my shins. They sometimes ache so bad, I explained it to my husband as feeling like shin splints (though I've never had them, it just help explain the pain).
Gnawing, aching bone pain. Get it in my neck and shoulders, lower back too. Oh and occasionally a sharp stab like an ice pick in my right kneecap. Posts: 867 | From PA | Registered: Jan 2006
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Hey trails.........hard for me to describe, cause I'm speaking for my husband.
His muscle pains are in his elbows and knees. Mostly the elbows.
Some days he describes it as pain, and other days just "tightness".
He moves his arms back and forth and says "it is terrible"........
I don't know if it's razor blade type pain. I drill him with questions all the time, but don't get very good answers sometimes.
Posts: 1366 | From Southeast | Registered: Sep 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Lately the muscle pain is in my arms it comes with weekness.
B L O W S !
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Trails.
I don't have much in the way of pain to carp about other than headaches.
I do, however, have pain in my arms. I do not have it constantly, just from time to time.
Sometimes it will be out of the blue, for example, while I am driving, both my forearms will just ache, like a deep bone type of ache. Eventually, it will stop.
Doing heavy stuff or really repetitive stuff with my arms is tough. I have a horse, and getting hay off my truck and into the barn will not feel like a great joy.
I built my house out of hay (I am not making that up!) and tossing bales around didn't bother me one bit, but I did not have Lyme then.
My two favorite things to do are arm-intensive -- flyfishing and photography. I pay a price for both but refuse to give either up. Sometimes my arms shake a little so I look like a drunk!
A drunk who's catching a shocking number of fish!!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
Lately, i have been feeling a burning sensation in my lower right leg. It drives me crazy.
Also, i get off/on joint pain in my knees.
Blessings,
Jordan
Posts: 593 | From Miami, Florida | Registered: Apr 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I have three different types of pain. Bone pain, joint pain, and muscle pain.
Bone pain is both shins and long bones in both arms. I've read this is bart. This pain comes and goes in a cycle. Two weeks ago I started a chart to see any cycling.
Joint pain can be any joint and it comes and goes.
Muscle pain. I describe it as being like someone beat me with a baseball bat. I literally ache all over. I can feel every muscle in my body.
Something I learned recently from my little Russian massagists is.... what I've been calling muscle pain, she says is connective tissue pain. Now that many of my sx are gone. It's leaves a clearer picture of many things. I asked her to do my arms and legs because I was having muscle pain. As she started working and I was wiggling and saying ouch, she said this is connective tissue, not muscle, I haven't got to the muscle yet.
She says the toxins in my body have settled in the connective tissue.
Do an internet search on connective tissue disorders & lyme disease. Lots of information. Connective tissue disorders are lupus, fibro, chronic fatigue, arthritis. Get the picture here?
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Thanks everyone!
It helps to hear that others have radiological tumors or little green men wiggling their funny bones...ya know?
Michelle M---I have worked some on straw bale houses, but it seems the dream of owning/building one myself may be over.
Not so much b/c of lyme, but b/c of house and LAND prices!!!! Yikes! Pam--connective tissue, yeah, that makes some sense some times. But I could NEVER have a massage lately. I actually feel bruised. Many parts of my body feel like they are healing from a beating as you descibe. I keep looking to see if a bruise is developing, but it isnt. But if I press of certain parts....YIKES!!! These are NOT Fibro points though...thank GAWD!
Keep em coming! Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Trails~
I have to try to differentiate in me the difference between what is muscle pain and what is nerve pain. The joint pain (being that it is in a joint)...I just call that joint pain, even if it feels like nerve pain. (That's all as clear as mud, huh?)
For a time, a long time actually, I had burning, sparking, crawling, grabbing nerves all over my body. Sometimes I wondered if it were my muscles going weird (mainly in my thighs) or the nerves grabbing my muscles. I guess it doesn't matter, but it seemed like the nerves were grabbing my muscles.
And for a long time, my muscles seemed quite tight all over my body...especially my lower back and my legs. So, I would stretch a lot, and want to soak in a hot bath or hot tub to relax the muscles.
In December, I commented to my husband, that I was feeling much better muscle wise. I no longer felt like I needed to stretch, or sit in a hot bath. They felt NORMAL.
My nerve pain, while still there, had calmed down a lot and wasn't grabbing my muscles.
I also had the head pressures you described. For me it felt like someone was blowing up balloons in different areas of my head, and then letting the air out again.
Now that I've been off antibiotics, my nerve pain is back with the grabbing of the muscles, and my muscle pain and tightness is back.
So, I, like you, have experienced the razor blade feeling, the pin feeling, the burning feeling (although my burning is more surface than deep in the muscles).
I've never had the sore thighs like you described, but the lateral muscles in my back must have done a bunch of weights the day you did all your squats, for they were very sore and tired too!
I felt encouraged, though, because, for a short time these muscle pains went away for me. So, hopefully, with further treatement, they will go away again.
By, the way, did you know that I tested positive again for C. diff on Saturday?? I am now an official member of the "Poo R Us Club."
So, not only are my muscles sore, but so is my heiny!
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
If I feel my arms and leg muscles ache during day, I know I'm in for a bad night. When I go to bed that night I have contractile muscle spasms every where. My arms, legs, tailbone, calfs, sometimes face, fingers, and toes. Mostly chemical sensitivities will send me into them. I hate it when a coworker wears perfume that keeps you in pain all night.
Posts: 290 | From ohio | Registered: Dec 2005
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I had increasing muscle pain in my right upper muscle area. It hurt as if being worked out often but it ached all the time. It started slowly as if it radiated from my shoulder joint which is also painful.
I was doing really well in my lyme treatment and was feeling great. My babs and lyme seemed to be dieing off and my herx cycles stopped.
My muscle pain increased. It included my right and my left arm and hurt continually. My eyesight started to get a little blurry and I was as miserable as when I was first bit.
It was easy to decide that the last months of treatment were for nothing and I was back to ground zero because my muscles hurt so bad. (me of little faith)
None of this made sense because I knew that lyme made the joints hurt. It was my muscles. A week before I was scheduled to see my llmd the muscle pain moved to my left thigh and I was devastated.
I couldn't believe how much pain I was in. Three days before my appoinmet with the llmd, I was in the kitchen with my 12 yo son and he was joking about something. I picked up a dish cloth and threw it at him and it was the most horrific pain I had been in for years. A dish cloth???
When I saw my llmd, she changed my meds from ketek/mepron to doxy.
This is her assessment of what happened. . .the lyme/babs had come under control, died, and ehrlicia was now the dominate co-infection raging in my system.
I am such a skeptic but I believe my llmd is incredibly knowledgeable (she has proved herself a bazillion times) so I said okay. I started the doxy the next day and within a day the muscle pain was reduced, within a week it was gone.
Of course, when one co-infection is adressed, others come to the front. By the 2nd day of muscle pain relief, I woke up and as I walked across my kitchen floor, the soles of my feet hurt so bad. . . .
Oh well . . . .thats my muscle pain story. My muscle pain is gone. Doxy tears up my stomach (whether I eat or not) so I hope that I don't have to do this too many months.
I'm in no way saying that the cause of anyone elses muscle pain is the same as mine . . . . this was only my experience.
I can only pray those that have muscle pain will be able to get some relief and comfort. I wish you well . . .
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
For myself, I find it very hard to differenciate between muscle and other types of pain... joint, bone, connective tissue, nerve.
The only things that seem to be only in the muscles are intense achiness, heaviness, spasms and knots in the muscles that are like rocks and take forever to go away and muscles tighening and pulling everything else out of whack (for no good reason I can think of).
I have a lot of trouble with connective tissue.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Trails, I'm right up there with you. I don't have an official diagnosis yet, my appt with llmd is Feb. Here it is:
Excrutiating muscle pain shins, calves, top of thighs, butt cheeks, biceps, ribs, neck, upper back. These pains are accompanied by twitching all over, numbness and tingling, burning skin feelings.
I hurt so bad in the am I can hardly walk. It takes about 4 hours for the muscles to start moving.
I have sinus like pressure with burning but I'm not sick.
I have many other symptoms, these are just the muscle ones.
Patti
Posts: 340 | From Ohio | Registered: Oct 2005
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posted
I have the same pain that Trueblue describes -- knots and contractile spasms that lay me flat! This is worst in my neck/head/jaw/shoulders/scapular area (triggers migraines for me) but recenly has been in my lower back to the point that it actually dislocates my right hip. I occasionally get this in my calves and feet, too. When the spasm lets go finally, I get the "beaten with a baseball bat" feeling for several days (I've used those exact words.)
I've been on Vicodin recently, the pain has been so intolerable. Muscle relaxants do nothing for it. I'm taking Magnesium, but that doesn't seem to help much either.
I have my first visit with LLMD today -- after 15 flippin' years of this!
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I firmly believe you need to have body work done to get these toxins moving in the body. I know how painful that may sound but it is a must.
A good massagist will go lightly on someone like us that is toxic from head to toe. I use to feel so toxic the day after a light massage. It would be horrible. But I knew why it hurt so bad.
Toxins were being moved around and out. It amazes me how strong my urine is 24 hours after a massage or lymph drainage. Guess why?
Two years later my Russian massagist can go deeper than she could of before. I always do numerous detox baths after and also I drink water and more water to flush me out.
For those that have money issues, try finding a physcial therapists office that is covered by your insurance. Ask around for people that do lymph drainage. Have your doctor write an order for body work.
It is so worth it.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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5dana8
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Member # 7935
posted
Like someone slugged me with a base ball bat.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Trails, I sure was impressed by your detailed pain!
quote:Originally posted by trails:
3- I have sharp pains like someone took a pin and shoved it into me. (these are rare lately thank god!)
6- The fronts of my thighs are so sore, it really does feel like I did 100 squats WITH weights in my sleep. I did NOTHING. trying to squat to sit on the toilet or get something from below is nearly impossible and my face looks like I am giving birth.
No. 6 is my worst in left thigh/sciatic area. Worst is when I'm in bed & try to roll over to my right side......pure pain! It freezes up an is ALL KNOTTED UP in front as well as down entire left side from hip to knee.
I asked a MD talking about the sciatic to a group of 80 of us what I could do to help me at night with this 24/7 sharp/stabbing pain. "YES, GET YOUR LEG AMBUTATED!" I'm going to demand he apologize for his totally inappropriate remark.
Please describe you muscle pain and/or relate to mine. Looking for pain buddies, Trails
Since starting abx 8-04, have continuous sharp/stabbing pain in right arm/wrist/shoulder like I'm someone's punching bag.
lower back pain..throbbing
neck is 24/7 & has degenerative arthrtis in it. Use moistened heating pad and frozen ice packs to help my pain. Woke up hubby....gotta go for now.
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