posted
do these exist? i cannot function at all, and doctor's just basically stare at me and say: "Yes, you can, you are choosing not to function." I cannot even make sensible conversation with people, I am losing everything everywhere, I cannot keep myself clean and kept. I have showed them pictures of my filthy apartment that I am confined in most of the day, only seeing neighbours occassionally, and when I get too far away from home become confused and overwhelmed and live to regret the horrible journey of getting home or even getting there, or finding somewhere that can feel safe for 20 minutes. No one would choose to live like this. They wouldn't choose to live like this.
Posts: 244 | From Ottawa | Registered: Dec 2005
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I understand how you feel. I get the same way you do. Doctors tell me I am depressed. I am not angry. I just cant keep up. Or maybe I should say that I forget what I was doing and start another project then I forget again. Start another project. And I was talking about putting the dishes away. LOL Hey I just learned about term Brain Fog a few days ago. I could not tell the Doctors what was up with that. I looked like a jerk tring to search for the words I wanted to say. I try to do one thing at a time. Most days it is hard I know. Cooking is a problem for me I forget I was cooking and the fire alarm is ringing. I find those timmers help. They also help me keep track what I was doing. I get tired very easy. So I stick a note on the timer and put it in a place I kwown I will see it. And return to what I was doing. Hope this may help you.
Posts: 9 | From Lisbon Falls, Maine | Registered: Jan 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Danielb I read your post and I am so sad your quality of life is so poor right now.
Alot of us have been there,and I as one ,do empathize and share your frustration.
Have you looked for a Lyme literate doctor?
I would so stay away, if at all possible from nuerologists and infectious disease doctors.They are usually ignorant of lyme and have shown zero compassion.
With the right doctor and the right treatment you can live a good quality of like again.
I am not trying to blow smoke here .I have been where you are several times in 20 years,but after finding a good LLD and doing three years of treatment I can honestly say I am getting back many good days.
It's a stuggle and a long road but I am no longer living a a life as you described.
If you are not up to it ,there are people here that can help you find a LLD and get treatment to get your life back.
Pm me any time. And take good care and don't lose hope.
hang in there dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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I am one of the rare ones. I actually was told to get a Lyme test by a neurologist last year when we were trying to figure out why my headaches from a bout of meningitis wouldn't go away.
His words were "I can't believe no one hasn't tested you for Lyme!" and when the test was positive, he actually called me with an appointment to see my PCP the next day. I haven't needed his services since, so I don't know if he would have reverted to typical neurologist behavior.
Posts: 35 | From SE, MA | Registered: Mar 2005
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