posted
Mine is slurred and I've had for 1 1/2 years. It started out mild but then a doctor put me on prednisone for 6 weeks. That was my downfall before I knew I had lyme. I've tested postive on a IGg western blot form Igenex and was on 8 weeks of IV Rocephin.
Posts: 146 | From New Jersey | Registered: Jun 2005
| IP: Logged |
posted
mine has been slurred since may of 2003...I am in my 9 th month of iv and oral treatmet....it is slowly clearling up very slowly it is a stubborn symptom...but stick with it.....i know how horrible it is...but its gonna get better its just one of those neurological sypmtoms that is really hard to knock out...Jill
Posts: 83 | From Northern Illinois | Registered: Feb 2005
| IP: Logged |
posted
I was on 8 weeks of IV and the doctor said when I finish, I will get my voice back in 1 to 3 months. I am almost at 1 month now.
Posts: 146 | From New Jersey | Registered: Jun 2005
| IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I've become a stutterer, which is sometimes a struggle for me to find my words and at other times just seems to happen.
This is exacerbated when my symptoms are flaring.
In 7 months of abx, I seem to struggle less when I'm searching for words. But the stuttering still comes when the Lyme is kicking up.
I'm hopeful, though...
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
posted
Mine was not really slurred, but I kept getting tongue tied and couldn't get the right words out. I have been on abx since May and this is one symptom that is better. My brain is clearer and I don't notice much problem speaking anymore. At least one thing has worked so far.
Posts: 35 | From SE, MA | Registered: Mar 2005
| IP: Logged |
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
I saw a guy once at a Lyme symposium. He'd been diagnosed with ALS. They showed a videotape of him, his speech sounded like a stroke victim's. He couldn't walk. He could barely swallow.
One day, he felt he was feeling better, a little. Knowing that you shouldn't get better with ALS, he started searching for another diagnosis. Yup -- Lyme.
After the video, they had that guy WALK up onto the stage and talk to us. He walked smoothly, and spoke nearly perfectly. If you walked past this guy on the street, you'd never know he'd been so debilitated. Unbelieveable.
Hope that helps you, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
| IP: Logged |
posted
My speech has definately been affected by lyme. Slurring- sometimes sound as if I'm drunk, stuttering and word searching. It's definately got much better after after taking ceftin for 5 months, but does occassionaly come back every so often.
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
posted
This has been one of my most frustrating symptoms, especially since I interact with the public so much with my job.
I was only diagnosed about 4 months ago, and that doc put me on doxy for 2 months. It got better. Next duck put me on tetra, and I slid backwards, it came back worse.
I'm now on IV Rocephin and Flagyl, only 11 days, and it is already getting better.
I know how terribly frustrating it is, especially since I am quite a "talker". Hang in there, it will get better!
Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
| IP: Logged |
Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO. Posts: 281 | From CT | Registered: Oct 2005
| IP: Logged |
david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
Mine went away after first round of IV. You might ask your Dr to le you try a neurotoxin binding agent (the powder... "questran" you take for high colestorol) if you are not currently taking babesia medication. This might help clear things up a bit. Take a look at the the ILADS treatment guidelines I think they mention it in there.
good luck
Posts: 1184 | From north america | Registered: Feb 2003
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/