Topic: so who's doing research and looking for a cure???
geniveve
Unregistered
posted
uh, ok, i've read everything about how lyme might have started cause some idiot let it out of a lab in some state back east.
sooo, duh, is anybody looking for a cure? doing research, testing, is anybody doing any bloody thing?????
i can't find anything where it says "scientist looking for cure" "research provides clues to bright future", so where are all these geniuses???
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SForsgren
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posted
Sadly, even those of us that have been living this for awhile don't likely know the answer. There are some researchers like Brian Fallon, etc. at Columbia, but for the most part, very little is being done that I am aware of....
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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GiGi
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The cure, at this moment is, to clean up ourselves and our environment. The microbes are taking over; they are becoming more and more aggressive. This is not the first or last epidemic - there are probably more in the making.
This is the only explanation I have - nothing else cured me to the point where I have a life again. I went on a cleansing binge! and am still fanatic, quietly and in a healthy way, to keep toxins away from us as much as possible.
Knowledge is power. Read and learn. Listen and learn.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
gigi, were you disabled at the worst point in this disease and then able to regain your health with the cleansing protocols you describe?
By disabled I mean in a wheelchair for 3+yrs, crushing fatigue, unable to use your limbs for everyday tasks (like writing, washing a dish, applying makeup, dressing yourself etc)? Just need to know how effective this might be. thanks, kt
Posts: 740 | From BC Canada | Registered: Mar 2003
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Areneli
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Very little research is done in LD, sadly.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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5dana8
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posted
Chronic Research center at Columbia University,NY
Scroll up and click on the title.It's above the newbie link.
Take care
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
I don't recall if Gigi was in a wheelchair, but I remember her saying that her husband WAS. You should be able to do a search and find when she told the story. I remember reading it several times.
quote:Originally posted by krazykt1: gigi, were you disabled at the worst point in this disease and then able to regain your health with the cleansing protocols you describe?
By disabled I mean in a wheelchair for 3+yrs, crushing fatigue, unable to use your limbs for everyday tasks (like writing, washing a dish, applying makeup, dressing yourself etc)? Just need to know how effective this might be. thanks, kt
pmerv
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posted
There is tons of research being done on Lyme disease but it doesn't seem to affect us directly since it is at the level of microbiology. You can pull up dozens of articles on PubMed. Eventually this research may lead to a cure.
Meantime, the stated mission of the LDA is to Find A Cure and they have a research fund that they give out in grants every year. You can check on their website to see the projects they have funded. www.lymediseaseassociation.org One of their projects was Brian Fallon's pilot study, which he used to apply to the NIH for funding for his $4million study. CALDA has recently set up a research fund and will be asking for proposals. We plan to give out "seed money" for projects that we hope will lead to better solutions.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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GiGi
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Member # 259
posted
This again is my opinion. Reading the thread containing the Bolen report and the finer details therein, this is the very reason why research/cure for Lyme is stalling big time everywhere. Can you imagine the scramble if all of a sudden every dentist, every supplier would be held responsible for what they do - and often do it knowingly? How far would "passing the buck" reach?
As long as the "powers" are not admitting that we are killing ourselves with toxins, such as some of the very ones talked about in the Bolen report, until such a time, the only thing for us to do is recognizing that a cure is far in the distance and only is within reach with great sacrifice. There ain't going to be a cure for many under these circumstances. There are some people that do not react as others do. Some people with 10-15 amalgams in their mouth seem to be okay (right now), some others are dying because of them.
It gets to be a real challenge for me when people who are really sick do not believe that their amalgams and root canals are killing them, even though they have been chronically ill for years.
I know that the inventor of Cavitat, BJ, had 30some cavitation surgeries, now years ago, before he finally got well! when all this science was still in its infancy. He got busy and has done mountains of research with foreign grants and found undisputable proof that root canals are toxic and either fail sooner or later. He invented the Cavitat.
We are all toxic, some more than others, we are taking more into our bodies every day. Thousands more (chemicals) are invented and thrown at us every year. The oxygen content in the air we breath is has been reduced by a considerable percentage point that scared me half to death when I first heard of it. Great business for the oxygen tank suppliers -
Very recently (June 2004, I believe) Columbia University - they have reproduced for the first time - autism in mice. They gave an amount of thimerosal to mice of susceptible animals, and then they gave the same amount as children get in their vaccines, to another strain of mice - the so-called "metal resistant". They found out without any doubt that autoimmune-prone mice developed autism, while the resistant ones did not.
Take your pick - or maybe a yellow canary on your shoulder -- as used for fumes in the goldmine.
Krazykt, yes, I was disabled. My left side was paralyzed from top of head to waist, including arm, and just starting into both legs when I got help, real help. My husband bathed and dressed me, until he landed on his butt - a wheelchair - 1 year after my condition had him stressed out, Lyme Disease and coinfections, enough for his body to cave in. He finally fell fracturing his back and living in a metal cage for four months. I do not want to get into all the miserable details - having lived through them is painful enough.
Luckily I found a doctor who doesn't live in dreamland, but sees things as they are: Toxins kill. Find out where they originate and take action. Until things become politically better, mortgage the house, go beg and quit making excuses why you can't and shouldn't, maybe yes, maybe no. Toxins still kill. Not the bugs, but the toxins they create along with all the other toxins that we acquired that were the precursor of Lyme - they were there before Lyme and had already affected our immune response - The system got overloaded. Lyme - the straw that broke the camel's can't.
Yes, some poeple are less affected than others. I always wonder - how long? I do know that the older generation, even though they lived through wars and went hungry many times - do well. What was their exposure compared to ours today?
Yes, Krazykt, it worked, I am well.
Take care.
[ 31. January 2006, 01:38 AM: Message edited by: GiGi ]
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
Products Developed To Kill Viruses And Antibiotic Resistant Strains of Bacteria
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interesting link, i recommend
Posts: 731 | From Humble,TX | Registered: Feb 2005
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Boomerang
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posted
I've actually talked to NH, cave............was very impressed with his kindness and his compassion!
Posts: 1366 | From Southeast | Registered: Sep 2005
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The Start Of The Conspiracy Between The Pharmaceutical Industry, The FDA, And The Florida Department Of Health To Get Rid Of Kimball and his pharmaceutical and dietary supplement research companies. SHAME Posts: 731 | From Humble,TX | Registered: Feb 2005
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mlkeen
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posted
Gigi is absoluely right about toxins, accepted and otherwise being the root of our problem.
My mother is a nutritionist and always said "you are what you eat"
I tell my kids "Garbage in, garbage out!"
Posts: 1572 | From Pa | Registered: Jun 2001
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posted
The research being done by 18 yr. old Chelsea Grigery on science fair project in Mi. She worked with mice and lizards. She made a discovery since first discovery on lizard in 1998.
Posts: 290 | From ohio | Registered: Dec 2005
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quote:Originally posted by mlkeen: Gigi is absoluely right about toxins, accepted and otherwise being the root of our problem.
A big part yes, I agree. But, ANYONE (the FSU quarterback comes to mind) can get Lyme. Borrelia is a stealth parasite that can overcome and hide from even the most aggresive immune response. imo any cure must deal with the erradication of the pathogen causing it.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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oxygenbabe
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posted
"We are what we eat"--google Ron Schmid. Perhaps those with lyme should go off grains (mycotoxins from the way they're processed) and eat mostly raw foods, raw dairy, lots of greens, fermented foods.
Re: research, well, I am trying. But I've been so thrown off course ever since I began pursuing my idea that I began to get superstitious that lyme demons were mad at me! I swear, everything began breaking down as soon as I began to work with a certain molecular biologist on my idea. Both computers broke, my hyperbaric chamber sprang a leak, I had a flood and 4 leaks in my apartment, my hard drive completely died, a dentist fractured my jaw, and a carpenter put toxic silicone caulk in my bedroom, necessitating I vacate it the last month. I've been so overwhelmed I haven't had time to pursue it but hopefully I will very soon, as my jaw has recovered, and I got all the silicone removed and I have a new hard drive.
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I swear, everything began breaking down as soon as I began to work with a certain molecular biologist on my idea. Both computers broke, my hyperbaric chamber sprang a leak, I had a flood and 4 leaks in my apartment, my hard drive completely died, a dentist fractured my jaw, and a carpenter put toxic silicone caulk in my bedroom, necessitating I vacate it the last month. I've been so overwhelmed I haven't had time to pursue it but hopefully I will very soon, as my jaw has recovered, and I got all the silicone removed and I have a new hard drive.
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