posted
My lyme brain is a creature from hell and here are my behavior patterns:
Lyme rages are a reality and mine even scare myself, much less others:
My lyme brain causes me to:
1. go from zero to a 1,000 on the rage meter in one second flat and give those Julia Sugarbaker (Designing Women on old TV) rage speeches at the drop of a hat 2. be intensely happy one minute and miserable the next 2. talk nonstop sometimes causing my conversation partner to slowly try to get away from me as soon as possible 4. think I know everthing about the universe and say so to anyone I know 5. think I know nothing about the universe and say so to anyone I know 5. be so obsessive compulsive that I must pick up a speck on the floor 6. control all things in my life including my children (thank God they are grown and out of the house) and my animals; it is a Gulag at my house 7. do something nice for someone and then talk about them behind their backs the next 8. Lash out like the exorcist while my head twirls around 9. do horrible things to close family which get me in big trouble (like telling my darling brother whom I adore, that I hate his wife of 25 years) P.S. I do but would never have said so preLyme. 10. have the attention span of a cat therefore forgetting what I was so furious about in about one minute, finding myself humming in another room after launching a full-on rage fit seconds before 11. think that a tattoo would be a good idea for me at age 62, with no available skin to put it on 12. not spend one dime for days, then suddenly run around and spend every penny I have
And the list goes on and on. Yesterday I made some lunch and took some chips with me to bed to eat with my sandwich. I ate the sandwich and took the plate to the kitchen. I got be back in bed and here was the bag of chips unopened and completely forgotten about, sitting right next to me on the bed. I also burn up food on the stove (carry a timer now) and forget appointments and do not remember to eat for hours. I have to make a list that includes "eat lunch".
So there is the unattractive thing called "my lyme brain" and my daughter is getting married; can you imagine what that's going to be like?? I tremble at the thought!! Lymelady
[ 05. February 2006, 10:54 AM: Message edited by: lymelady ]
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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posted
hello Lymelady, I though all that was perfectly normal behaviour! Gosh people without lyme must lead terribly boring and mundane lives..... I just call it eccentricity, it's good to be eccentric!
Posts: 229 | From United Kingdom | Registered: Jul 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hey there lady,
I sounded just like you some time ago...
I believe IV ceftriaxone helped alot...
Also lexapro has kept the high highs and low lows along with rages under control....
Suggest you try it out...zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
i left my GAS stove on for a day and a half! i usually make sure evrything is off when i leave. Iwas in my apartment and didnt even notice the roaring heat coming from my kiktchen!
Posts: 17 | From viginia | Registered: Dec 2005
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Before Lyme I was easy going and not particular and certainly NOT OCD, talked sometimes but often not a lot and was pretty much even-keeled all the time
I was an excellent speller; was a writer and editor for years to make a living, now I can't spell t-h-e.
So most of this has come with Lyme; believe me, after 62 years I do know "where the warts are".
Lyne sucks Lymelady
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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char
Frequent Contributor (1K+ posts)
Member # 8315
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I know the lyme brain problems are sacry.
If you are worried about your daughter's wedding,do what I do smile.
Like when someone asks me how am I, I say "fine how are you doing ?"
This works just about every time.People in general, I have found just want someone to listen to them,smile ect..
Some other suvival skills I have found useful are keeping my sense of humor. Like when you forgot to eat the chips..I would just say"look at all the calories I saved or all the carbs I shouldn't eat.
And also I try and stay organized.Stickums in every room with pens by them.If I make a real hard effort to put things back where they belong,then it saves me countless long frantic search's for them.
When I find my self reving up emotionally I try and take 5-10 deep breaths and then be quiet untill I feel more "settled"
When I am with friends and can't follow the conversation,I try to laugh when they laugh. When they look sad in telling a story I look concerned and sympathetic.
Some of these things may seem strange to people who have never experienced memory loss,confusion, frustration over small details,not being able to follow conversation ect..
But for me ,I decided a long time ago to come up with ways of coping and or getting around some of these things.
Getting some counseling has helped me alot.talking to a counsler who is knowledgable about lyme /brain problems can help.
I hope you find some inner peace and some calm in your life.
Are you on abx? My emotional rollar coaster always get even worse durning herx's.
Take care and hang in there.Life will get better.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Many thanks for all of your great suggstions! I will try the smile and the stickims in particular, the deep breathing also.
I have started knitting and find that it helps me no end: to settle down, shut up and be removed from any brain action. Lots of really ugly scarfs are being showered on my friends and family.
Thanks as usual and I am glad to know I am not the only one!!
Lymelady
PS no meds, just supplements and rife
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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posted
lymelady, why aren't you on abx? This isn't meant to be a criticism, well not really. But it makes me wonder. Are you unable to tolerate them?
As you are probably aware, Amy Tan had hallucinations, and this condition cleared up w/abx therapy.
I would hate to have Lyme rage (fortunately, that's not one of my symptoms...). I have plenty of of other Lyme brain problems of my own however. They're slowly improving w/abx.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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