Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Help!! I am having these awful symptoms and need some advice/reassurance! I have had Lyme for 1 1/2 years, and am 3 1/2 months into treatment with Dr. D. I am on Tetra, 1500 mg per day. I've been improving a lot, with the expected setbacks and bad days, but these symptoms are new? worse? and are really freaking me out!!!
On Tuesday of this past week, I woke up with severe vertigo/dizziness, ringing in my ears, headache, and shakiness. I had not felt this way in a VERY long time, if ever to this extent. The next day I felt great, drove all the way to Boston to see Dr. D by myself, grocery shopped on the way home ( a task I can rarely do) and then met with people that evening. The next day, Thursday, through today, Saturday, I have been struggling with these symptoms again: Dizziness Vertigo Ringing in my ears (loudly it seems) Shakiness, almost like shivering, muscle jerks, tremor in head and extremities Severe headache off and on, requiring Vicodan (which I RARELY need) Nausea
If I turn my head to one side or another it's like a big wave of dizziness hits me. I am very disturbed by these symptoms, because it is different from the problems I usually have. I haven't really been able to do anything at all for three days but lie in bed. I have not changed any of my meds at all. If you can shed any light on this, I would be most appreciative. Thank you! PS I feel really bad that the only time I come here is when I feel really bad!!!! When I feel good I just hate to even think about Lyme!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Tracy9, When I had a vertigo problem, my regular doctor prescribed meclizine. It worked very well!
I feel for you...it is one of the worst sensations in the world.
Good Luck, Ernie
Posts: 546 | From Cascadia subduction zone | Registered: Mar 2002
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bettyg
Unregistered
posted
Tracy,
I'd had bells ringing for years but never knew why. I was misdx for 34 years until 04 so the symptoms are to the extreme for me.
I'm on 19 meds now as of Monday...way to many! When I saw LLMD Mon., I told him I wanted to REDUCE that amount & which could go. He decided 1 should go but to add flagyl abx & still be on doxy & biaxin pulsing PLUS flonase for my stuffed up nose full time. Can't sleep at night and DRY MOUTH from ALL my meds.
Since going on meds 1.5 yrs. ago, I've had dizziness too...holding onto walls, etc. Bells ring & I feel it's the doxy amplyfying the sound for me.
When I have a good day, I pay for it the next 1-3 days after like you .... that's lyme!
WRITE STUFF DOWN as you encounter so you can document when they started/ended. I started out really good on doing this, but can't follow thru on that now for me. "Do as I say; not as I do".
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If this is the Dr. D out of the Boston area, he has been treating an old neighbor of my since 1998 and still hasn't dealt with her co-infections ( which may be why she's still in treatment).
I had the symptoms you describe to a much lesser degree and have LD & Babs.
Posts: 175 | From ma. | Registered: Aug 2005
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Prior to my LD diagnosis I had lots of episodes with vertigo. in order to function I took over the counter motion sickness pills called Bonine. Draminine made me too sleepy and didn't really work as well. Hope this get you through it until you see your doctor.
[ 04. February 2006, 10:14 PM: Message edited by: dmc ]
Posts: 2675 | From ct, usa | Registered: Jan 2004
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The ear noise and dizziness are frightening for you, especially since they are new symptoms! Are you on Flagyl now? The hyperaccusis from Flagyl almost sent me over the edge. Truly! One more dose would have sent me to the funny farm. I still have have ringing in the ear that had no noise before Flagyl and it was several months ago that I tried the drug. Never again!
Curious why the poster above asked if you have been tested for Babs? Does Flagyl really give Babs hell? Are the ear things--tinnitus/hearing loss/hyperaccusis mostly from Babs? Been wondering about this a long time. My Babs test was negative, but I've read the Babs test is about as accurate as the titer tests for Lyme. Might the person who asked enlighten us both? THANKS!
Posts: 422 | From Luck home | Registered: Sep 2005
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Unfortunately vertigo/dizziness and ringing in the ears (usually one ear only) is part of Lyme disease. My family thinks I'm weird because I have worse dizziness after I eat than any other time of the day.
As for the ringing in the ear ... I have that in my right ear. It can drive you crazy, but the longer you are on abx the ringing in your ears should subside.
And meclizine is great for vertigo and so is Bonine which is over the counter. I LOVE Bonine because it doesn't make you tired and it helps get rid of that "sea sick" stomach that sometimes comes with vertigo.
I hope your symptoms start to lessen. Take GOOD care of you. Deb
-------------------- Life isn't about how to survive the storm, but how to dance in the rain. Posts: 830 | From Endicott, NY | Registered: Aug 2001
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