LymeNet Flash: can you get treatment before a diagnosis

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»	LymeNet Flash » Questions and Discussion » Medical Questions » can you get treatment before a diagnosis

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Topic: can you get treatment before a diagnosis

Lesley
LymeNet Contributor
Member # 8678

posted

Hi Everyone,

Has anyone here actually started treatment before getting a positive diagnosis? I am waiting for my test results and am not sure what to do if they come back negative. Any information would be appreciated.

Thanks,

Lesley

Posts: 120 | From NB Canada | Registered: Jan 2006 | IP: Logged |

Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

posted

Hi Lesley.

You find yourself an LLMD (Lyme-literate medical doc). You give him your history. You 'spain your symptoms to him. He takes a detailed history. You bring whatever medical records you have from whatever ducks you've already seen.

Usually this appointment runs a coupla hours.

Based on this appointment, he or she will make a "clinical diagnosis.'

That's what Lyme really is, since the tests are s'posed to be only confirmatory anyway.

In fact, ALL doctors are s'posed to know this, but the sad truth is that reg'lar docs will kick you to the curb if your tests are negative, despite the fact that around 30% of culture-proven Lyme patients are seronegative.

So it's important to find an LLMD. Don't wait on test results, and 'specially don't wait on what you may consider "positive" test results, as these are open to interpretation. Remember too that even negative test results sometimes change dramatically after a trial of antibiotics.

RUN-don't walk - to an LLMD--so you can start getting better!

[hi]

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005 | IP: Logged |

sweet pea
LymeNet Contributor
Member # 6495

posted

Hi Lesley,

I agree with Michelle. If you're going to a doctor who is going to treat you based on a blood test, you need to find another doctor. I hope you can find an LLMD up there.

P

Posts: 449 | From Vermont | Registered: Nov 2004 | IP: Logged |

Bugmenot
Member
Member # 7878

posted

Yup Leslie, you sure can (get treatment).

If your simply waiting for testing, then realize that that early detection of Bb is poor (basically it's crap), and is just a proceedure.

That is, providing the correct tests have been prescribed (then they are less than crap).

Bb is destroying us,
the treatment is destroying us,
and the AMA (in US) is destoying us.

I'm sorry, that's how I look at the situation.

---------------------------------------------

All you have to do, is realize is that the doctors are not in charge of "you", and are not even knowledgable when it comes to Bb.

"You" have to be your own advocate concerning your health and find the "treatment" wherever in the world you have to.

Different threads here on this forum, paint a picture of failed treatment after failed treatment (doctor prescribed), so how wrong could you be?

The "so called" LLMD's may not exist in your area anyway.

There are no LLMD in Oregon, because "there is no tick problem" in Oregon (what complete fools they are)and elk are everywhere.

--------------------------------------------

My unprofessional, untrained, and uninhibited advice is to get antibiotics into your bloodstream asap (providing you were actually bit).

Take the associated herbals also (don't disregard this aspect).

There are things you can do like write down your temperature and symptoms.

From that your own diagnosis, may be even better than that of your doctor.

Posts: 33 | From Oregon | Registered: Sep 2005 | IP: Logged |

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