posted                      

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Originally posted by Linda LD:
Dear Charlotte Observer,

I was so saddened by the poor quality and research done on the Charlotte Observer's stories about Dr. Jemsek.

By bringing charges against Dr. Jemsek it is obvious the N.C. Medical Board does not know how to treat Lyme disease (LD). Dr. Jemsek is one of the best doctors in the country in treating Lyme disease and people from all over the country and world travel to Charlotte to see him. Dr. Jemsek's website is considered to be one of the best websites online to educate the medical community and public about Lyme disease and co-infectors.

coinfections ?

Accusing Dr. Jemsek of not following standard protocol for testing Lyme disease simply illustrates what a good doctor he is. The first test most doctors, ignorant of Lyme disease, give is the ELISE

ELISA

test--this test is a waste of time and money as the test only has a 50% accuracy rate.

Doctors who have been in the trenches treating people with Lyme disease know it is just one of many bacteria, parasites and reovirus

Do you mean retroviruses ?

that ticks can spread. Ticks spread:

* Bacterium including: Bartonella, Mycoplasma, Relapsing Fever and Tularemia,

* Parasites including: Babesiosis

Isn't the parasite called, Babesia ?

(a parasite kin to malaria--anyone suspected of having LD probably has this too), rickettsiae like Ehrlichiosis

Ehrlichia ?

or Rocky Mountain spotted fever (which is a rickettsii parasite), and

ricketsii === is this a typo?

* Reovirus

Do you mean Retrovirus?

including: Powassan encephalitis and Colorado Tick Fever.

The problem with testing for Lyme disease and co-infectors

coinfections?

is the poor tests available. Lyme disease is more accurately called Borrelia burgdorferi (Bb). The test that look for this bacteria in the human body only look for antibodies of the body fighting the Bb--if the body is so overwhelmed by the bacteria it has stopped fighting the Bb even the best test (the Western blot) sent to the best laboratory (IGENEX or Bowen) will show no antibodies. The Center for Disease and Prevention (CDC) says that Lyme disease is a clinical diagnosis.

You might consider talking to area veterinarians as they are better educated in identify

in identifying or to identify

Lyme disease in N.C. The North Carolina Lyme Disease Foundation was started by two veterinarians.

Lyme disease is first cousin to syphilis and has been called the great imitator. Different people show different symptoms. Many with Lyme disease have been misdiagnosed with MS, Parkinson's disease or Alzheimer's disease among other misdiagnosis.

misdiagnoses

Less than half of the people who get Lyme disease remember a tick bite--fewer than that get the bulls-eye rash. Lyme literate doctors know that 14 to 28 days of antibiotics is not enough to kill the Bb bacteria. The Bb is

are

very smart and lives

live

in three different forms in the human body. The original bacteria state, the "L" form and the cyst form. After taking an antibiotic the bacteria will change into the cyst form within hours to protect itself. In the cyst form the bacteria reproduces and hides with a coating of the victims

victim's

own cells, tricking the immune system into thinking it is part of the body. Then, when the person is under stress (physical or mental), the bacteria will come out--only now the Bb has multiplied many times over within the cyst. Not only must antibiotics be given--but also cyst stripping drugs so the antibiotics can get to the Bb in all its forms.

Southern Tick Associated Rash Illness (STARI) is more correctly called Master's disease after Dr. Ed Master's in M.O. who identified this disease in the early 1990's and reported it to the CDC.

Master's disease comes on slow, taking decades to cripple a person. Master's disease takes more time to eradicate and treat than Lyme disease. People with Master's disease have horrible fatigue and are often diagnosed with Chronic fatigue, chronic Ebstein-Barr (mono) or fibromilagia. People with Master's disease have mental fog, ADD, thyroid problems, migrating joint pain, mental problems and sleep issues which often results in being over weight.

If you are going to quote someone about STARI/Master's disease I suggest you speak with Dr. Master's

Is his name Master or Masters?


as it is obvious to me that Dr. David Weber knows nothing about Master's disease other than a short paragraph he read in a medical book in the 1990s. New discoveries are being made daily about the huge spread of tick-vector illnesses in the United States, like half the people getting tick-vector diseases are children. That means children with Master's disease right now wont

won't

have unmanageable symptoms for several decades. Dr. Master's

should Master's be Master?

identified the disease and reported it to the CDC. People all over the South and other parts of the country travel to see Dr. Master's

should this be Master ?

to treat their tick-related illnesses. I doubt Dr. Weber has treated anyone with Master's disease.

My husband, my children and I all have Lyme disease and Master's disease. I am shocked and appalled that a big-city newspaper like the Charlotte Observer would do such a poor job researching your stories. Your stories only touch the tip of the Lyme disease controversy.

There are people all over the Southeast with undiagnosed Lyme disease and co-infectors. You have the power and opportunity to help so many identify that they aren't "just getting old" as most doctors will tell them.

Many people in North Carolinia have a disease that can be cured. You can make that happen by educating the public and the medical community, please do.


Sincerely,
Linda [/QB]

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