posted
After 2 & 2/3 years on antibiotics, now my intestines & bladder swell everytime I take any antibiotic -- doxy, zith, flagyl. Even biaxin now gives me horrible abdominal cramps. I had taken it for 6 months in 1991, the first time I had this. Then, was completely well for 10 years.
After a new tick bite in 2003, I relapsed. I took biaxin then for 8 weeks, again no problem. But after bad reactions to all other abx since November, we decided I should go back to biaxin since it had never given me any problem. But after 1 dose on Saturday, my bladder & lower intestine swelled & feel like they've been stomped! I cut the dose in half, but still am having severe lower abdominal cramps, my stomach swelled, my gums are inflamed.
Have others bodies just rejected abx after a while?
What did you do then?
Posts: 172 | Registered: Dec 2003
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posted
Should have included ketek in the abx that used to work well, but now cause my bladder & intestines to swell. When I go off, the pain from contracting is even worse than the pain from the swelling!
Posts: 172 | Registered: Dec 2003
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posted
Bummer on the new tick bite! I'd sure like to have that 10 yrs of no symptoms starting right now! Oh wouldn't it be nice.
The problem that you are describing sounds like maybe it's Candida. You could have developed it from the first course of Tx. Taking more abx may be fueling the fires so to speak. Have you tried the Schardt protocol with Diflucan?
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Im no doctor, but it sounds like you have candida and leaky gut. I say this because I battle the same thing. Mine got so bad, that every single TIME i took an antibiotic, I began to graduate...
as in... at first, there was stomach swelling, but I ignored it...
and soon came severe head/neck/jaw/shoulder pain, etc. I was being told "its just a herx" over and over.
It wasn't. It was leaky gut syndrome and for ME, getting over the brunt of my lyme was by going off abx, because it was truly candida hampering me down.
Can you get an rx for Nystatin? Nystatin is intended for gut candida, diflucan more so for candida elsewhere.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
Sounds like you got something fighting back against the abx. Silver acts differently than regular abx and there are some great essential oils/herbs you can try.
Posts: 731 | From Humble,TX | Registered: Feb 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
After about 2 yrs abx became my enemy. I didn't know enough to realize the abx had become toxic to me. I've been abx free for almost 3 yrs.
Don't panic there are many other alternative treatments that will help you heal.
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO. Posts: 281 | From CT | Registered: Oct 2005
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JimBoB
Unregistered
posted
THings that HELPED MY gut, are: C-Salts from nutri.com.
AND Acidophilus, Milk Thistle and Red Root are all good to keep you cleaned out PROPERLY along with Sarsaparilla, (Smilax).
Be sure you are on good doses of those, then add in other herbs, like Devils CLaw, Cats CLaw, (whole), Resveratrol, Nettle, Oregano, Andrographis, Stephania Root, Artemisinin, (IF you haven't treated for Babesia yet), and others I have reported on in the past. Do NOT take Astragalus, since you have had Lyme for awhile.
WHEN you feel better, THEN try a little easyier abx in small doses and see what happens. Also Vitamin C is VERY important in treatment, HOWEVER do NOT take plain ascorbic acid as that will only compound the problem. C-Salts, by nutri.com will help your stomach tremendously. 300mg to 4000mg a day.
I have been taking nystatin, milk thistle & refrigerated acidophalus daily since I began abx in 2003. I've also been on the anti-yeast diet for a year.
If it were either candida or leaky gut, would my intestines & bladder feel okay when I'm off abx?
As soon as I go off the abx, I begin to feel contracting of my bladder & intestines & stomach & other organs. This goes on for a few days, then my bladder, stomach & internal organs feel back to normal (with just my neurolyme symptoms continuing). Is leaky gut like that?
Crime & Pam, what alternatives have worked best for you? I've tried a magpulser, but still relapsed.
Char, I had iv rocephin for 9.5 weeks. It helped, but had to quit when I developed gallstones even while taking actigall.
Jimbob, I've been thinking about the alternative of cats claw. Does it get into the brain well for neurolyme? Is it hard on the gut? A couple of years ago, many on this list were trying it, but in the past year, you've been one of the few I've read using it.
Posts: 172 | Registered: Dec 2003
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Tempe, I believe a magpulser is a lightweight rife type devise?? If so how long did you use it? I dropped abx and started rifing almost three years ago and I'm still using rife and probably will be for life.
Rife type devices can help control the bacterial and virus load which in turn leads to feeling better. I'm not using the cured word yet because it hasn't happened to me yet. So you would need to make a rife device a part of everyday life.
Rife and other alternatives have given me periods of remission. As long as I don't over do it I can control my sx. Being who I am, type A, I tend to do too much because I feel like I can.
Even if I'm able to use the cured word in say 6 months, I would not quit using my rife machine. Relapse is the real world with lyme and one must continue to do whatever they can to avoid that.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I just used mine when on abx breaks originally. Since I've been trying to get off antibiotics, I began using it every 3rd day, but began to relapse & went back on abx.
I'm really happy to know that rife is controlling your symptoms. I'm at the point where I can have most of my life back. I'd love to get even better, but if I could just maintain where I am like you are, and not have to deal with these awful abx reactions, that would be good enough. I just don't want to lose ground by going off abx.
quote:Originally posted by map1131: Tempe, I believe a magpulser is a lightweight rife type devise?? If so how long did you use it? I dropped abx and started rifing almost three years ago and I'm still using rife and probably will be for life.
Rife type devices can help control the bacterial and virus load which in turn leads to feeling better. I'm not using the cured word yet because it hasn't happened to me yet. So you would need to make a rife device a part of everyday life.
Rife and other alternatives have given me periods of remission. As long as I don't over do it I can control my sx. Being who I am, type A, I tend to do too much because I feel like I can.
Even if I'm able to use the cured word in say 6 months, I would not quit using my rife machine. Relapse is the real world with lyme and one must continue to do whatever they can to avoid that.
quote:Originally posted by tempe: I just used mine when on abx breaks originally. Since I've been trying to get off antibiotics, I began using it every 3rd day, but began to relapse & went back on abx.
Maybe you were herxing, not relapsing? In Bryan Rosner's book he advocates using Rife every two weeks, not every 3 days.
You don't mention having taken Diflucan. Since you've been on nystatin and on the anti-yeast diet, I would definitely try the Diflucan to completely rule out yeast. You could still have it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Name: Red root Biological Name: Ceanothus americanus Other Names: New Jersey Tea, Jersey tea, mountain-sweet, red root, Walpole tea, wild snowball, wild snowball, New Jersey Tea Tree, bobea Parts Used: Bark of the root Remedies For: Astringent, expectorant, sedative.
New Jersey tea root-bark has been recommended for various chest problems, including chronic bronchitis, nervous asthma, whooping cough, and consumption. It has also been used as a gargle for inflammations and irritations in the mouth and throat, particularly for swollen tonsils. American Indians used a tea made from the whole plant for skin problems (including skin cancer and venereal sores). The tea may help raise a patient's spirits when despondency sets in during illness.
Historically it was believed that gargling with a strong tea every two hours will reduce sore, swollen tonsils. If tonsils are very sore and swollen, make a swab and work around good and then gargle. It will reduce very badly enlarged tonsils, and the trouble will rarely recur. It is also believed to be useful for spleen problems.
In combination with fringe tree and golden seal, it is good for sick headache, acute indigestion, and nausea due to the poor activity of the liver.
Traditionally, this was prescribed as a remedy for diabetes, asthma, bronchitis, and other lung infections.
Description: New Jersey tea is a small, deciduous shrub common in dry woods at low elevations all across the U.S. The large root is red inside and is covered with brownish or reddish bark. The round, slender, reddish stems bear alternate, ovate or oblong-ovate, finely serrate leaves which are dull green on top and finely hairy beneath. Small white flowers grow in long- stalked clusters which form large panicles at the ends of the branches from June to August.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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JimBoB
Unregistered
posted
Lymetoo: I THINK you have Buhner's BOOK, correct? It has a very good page and a half on Red Root in the treatment on Babesia.
On page 185 it explains about WHAT Red Root is good for in this treatment.
He goes on to say:
Red Root is an important herb in that it helps facilitate the clearing of dead cellular tissue from the lymph system. When the immune system is responding to acute conditions or the onset of disease as white bolod cells kill disease pathogens, they are taken to the lymph system for disposal.
When the lymph system can clear out dead cellular material rapidly, the healing process is increased, sometimes dramatically. The herb shows especially strong action whenever any portion of the lymph system is swollen, infected, or inflamed. This includes lymph nodes, tonsils (entire back of throat), spleen, appendix and liver.
He also goes on to say that red root's activity in the lymph nodes also enhances the lymph nodes' production of lymphocytes, specifically the formation of T cells.
There is a lot more on red root there, but you can read it in the book.
Right NOW I am using it for the above as I am taking Artemisinin for Babesia and would not take it without the Red Root. I sure don't want to herx any amount IF I can help it.
But I plan to take it even when I am done, as it is also good as a mucuous membrane tonic. And since I have chronic asthma and sinus problems, it should help in that department to for the future.
I plan to stay on some herbs, even once I am done taking them for Lyme and it's co-infections. Since I have personally experienced the healing properties of them.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You need a agressive probiotic regime to restore your bad gut flora.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Tempe, in a very spiritual way I was lead to the Beam Ray machine in this city. I could of traveled across town and used the naturopath machine. But I was too ill to travel 34 miles round trip and she said I needed it 3 days a week.
Well she didn't know lyme disease and I was her first. I bought machine for home use and ended up I couldn't do session but once a week or 10 days due to severe herx reactions.
Beam Ray is most expensive I've seen on market. It also is suppose to be the most powerful. So I don't think you can compare it to the magpulser.
Please tell me more on this magpulser? Can you program different freqs? Is it hand held? What freqs were you using? How long did you use? Have you read skykings book?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I followed your suggestion & took 1 200g diflucan today. Are 1 or 2 days enough? 7? 30?
Treepatrol,
I've been taking 1-2 pharmacy grade probiotic twice every day, plus eating 1 dish of plain nonfat Stoneyfield Farms yogurt every day. Do you think it should be more?
Thank you all, again.
You don't mention having taken Diflucan. Since you've been on nystatin and on the anti-yeast diet, I would definitely try the Diflucan to completely rule out yeast. You could still have it. [/QB][/QUOTE]
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