posted
I have weakness in my ankle. Have foot drop in one foot. An EMG revealed the nerve damage. My doc is LLMD.
Posts: 146 | From New Jersey | Registered: Jun 2005
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bettyg
Unregistered
posted
Coach, I did a quick search in NIH's library, www.medlineplus.org and found this:
Are you diabetic? As other person said, you need to provide more details, and we can provide some possibilities for you.
Go to medlineplus & check it out. Very user friendly on all illnesses, meds, & med dictionary for specific illnesses. Bookmark it for future use. Good luck.
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posted
I also had this. My family doctor gave me B12 shots and a script to do them myself. That seemed to take care of it. Good luck. Posts: 9 | From PA | Registered: Feb 2005
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posted
I am not a diabetic. I've lost some muscle in my calfs too. The dx was made by an EMG. I have had a weak ankle and noticed I had a drop foot. My other leg is fine but I am losing muscle there too. I am not seeing a LLMD/neurologist in Neptune, NJ
Posts: 146 | From New Jersey | Registered: Jun 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Coach.
I'm not sure what you mean by "no more antibiotics."
I have nerve damage too. Bilaterally (both arms), dx'd by evoked potentials testing. Most certainly from Bb. (Though originally thought by neuro duck to be from MS).
However, it has NEVER been suggested by my LLMD that I should stop antibiotic treatment for Lyme disease.
What is the rationale behind that?
Can you 'splain mo better?
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Years ago when I could still walk unaided, I had foot drop on right side. All my problems were on the right side. EMG didn't show any damage.
I don't understand why you would stop taking abx. I would think that would be quite important in preventing further damage.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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posted
I saw LLMD 2 days ago. He said no more abx. He thinks I am getting better, but I am not.
[ 18. February 2006, 08:22 AM: Message edited by: coach ]
Posts: 146 | From New Jersey | Registered: Jun 2005
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Just my opinion:
My LLMD says abx until all symptoms are gone (and then some). Can't believe you are seeing an LLMD who says you're getting better when clearly you are not.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi there, Coach! Glad your thread popped back up, I was just fixin' to hunt for ya!
1. How long have you been treating with this LLMD?
2. What types of ABX have you been on? Have you done IV antibiotics?
3. How do you know this doc is a "real" LLMD? I don't mean to "dis" your doctor, but a true LLMD does NOT stop treating a patient who is still symptomatic.
Sorry to seem "nosy" but I don't want you to accept this as your 'permanent condition' when it need not be and there is more and better help available.
Can you give us a little more info?
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Coach,
Is there reason to believe this nerve damage is due to disc impingment or other structural damage? Is there some reason to believe that it is not due to ongoing, active infection that requires antibiotic treatment?
Unless you have some clear indication that there is a structural reason, like a ruptured disc that is pressing on the spinal cord and compressing nerves, then I would be looking for a second opinion.Without a clear treatment plan, that makes sense, I would keep asking questions.
posted
I've been him since August 2005. I was on ketek for 3 months then went on IV Rocephin and oral Zithromax for 8 weeks. After 8 weeks, he stopped treating me though some symptoms are present. He is a member of ILADS, that is where I received his name from. I am going to call him on Monday and demand that he treat me appropriatley or I will find someone else.
Also, I was jogging through June 2005, then developed weakness in an ankle. That progressed to foot drop were I am right now. I had an EMG and the doctor said nueropathy with nerve damage. I will see the ortho next week.
Posts: 146 | From New Jersey | Registered: Jun 2005
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posted
coach, I had foot drop several years ago for several months before lyme diagnosis. Neurologist called focal dystonia and physical therapist called it foot drop. Did physical therapy and stretching exercises with a long colorful band and it disappeared. I thought it was permanent.
Posts: 290 | From ohio | Registered: Dec 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by coach: I've been him since August 2005. I was on ketek for 3 months then went on IV Rocephin and oral Zithromax for 8 weeks. After 8 weeks, he stopped treating me though some symptoms are present. He is a member of ILADS, that is where I received his name from. I am going to call him on Monday and demand that he treat me appropriatley or I will find someone else.
Also, I was jogging through June 2005, then developed weakness in an ankle. That progressed to foot drop were I am right now. I had an EMG and the doctor said nueropathy with nerve damage. I will see the ortho next week.
Hi Coach. Thanks for popping back in. That's pretty surprising, coming from an ILADS doctor! Sounds like maybe you should have stayed on IV longer, or if not, then followed up IV with some aggressive oral treatment.
In the big picture, as you've seen by hangin around this place, your treatment hasn't really been THAT long!
If I were you, I would very nicely request a copy of my medical files, then post in "seeking a doctor." I don't believe I'd want to continue with a doc who is only going to treat me grudgingly.
You live in an area where there oughta be plenty of good docs! Then I'd find me a MUCH better LLMD ASAP.
Please keep us posted and don't give up. The outlook of a new LLMD is liable to be a "whole new ball game," as you coaches like to say!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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