I have never had the sweats, chills, fevers, breathing probs.....Different parts of body trembles at times though....This could be a herx from the tetra 1500mgs a day.
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hey, Rob!
I had an appointment with my LLMD Thursday. I'd taken her a list of my ongoing symptoms -- in descending order, beginning with the ones that are the most troubling.
She immediately said it was clear I have bartonella, even though a previous test result had been negative.
All the symptoms I listed pointed in that direction, she said.
So I'm now on a second antibiotic (rifampin) to treat this.
The first night was beyond hellish but today has been a bit better.
I hadn't wanted to really deal with co-infections before this, but in a strange way, I feel more hopeful now...
Andie
Posts: 2549 | From never never land | Registered: May 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I don't understand the "Do I have co-infections?" question.
I don't know the stats for all of them, but will try to start collecting more.
Babesia is an issue in 70% of people with Lyme Disease according to several doctor's presentations that I have listened to lately.
If Babesia is an issue in 70%, and you add bartonella (I have read 40% have Bart), then add Ehrlichia, then add mycoplasma, then the next one and the next one.
The odds are that we all have co-infections. Personally, I do not believe that anyone has just Bb. If they do, they should go buy a lottery ticket.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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BostonLyme2005
Unregistered
posted
I seem to have other symptoms....I guess I could have a co-infect and will inquire to my LLMD next week....
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I didnt have any sx of Babs until I began TREATING for it. FOr some reason, treating it brought the sx to the surface.
I have never heard any one else say this was true for them of any of the Co's, but it was certainly true for me.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Andy,
Could you please list the symptoms here?
I beleive this info would be helpful for myselk and others.
Trout
PS....Sforsgren...love THAT reply.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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posted
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue* Arthralgias* Myalgia* Drenching sweats* Headaches* Emotional lability* Depression* Dark urine* Splenomegaly* Dizziness* Nausea and vomiting* Cough* Dyspnea* Fever* Chills* Hepatosplenomegaly* Jaundice* Malaise* Shortness of breath* Bleeding tendencies, bruising* Thrombocytopenia* Hemoglobinuria* Hyperesthesia* Pulmonary edema* Encephalopathy* Low to normal range leukocyte counts* Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia* Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
The symptoms of all the coinfections are discussed in Dr. K's paper. See the Protocols section of my site below for the links.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hi, everyone!
I'm definitely no doctor, but here are the symptoms I had for my LLMD. Bartonella, she said. -- nasty headaches -- a lot of cognitive problems (processing information, long-term memory, confusion) -- stuttering and difficulty finding my words -- tight tight bands around my ankles, legs and wrists -- numbness, especially facial numbness but also in my foot.
The LLMD prescribed rifampin for me. The first full day I took it, all the above symptoms were exacerbated.
I also had weird numbness on the back of my arms.
Now, I've got a heckish headache!
Hope this helps! Like Scott said, I am really glad things happened this way. If not, I can imagine I would have never gotten better...and these are nasty symptoms to be left with.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Scott:
"The odds are that we all have co-infections.Personally I do not believe that anyone has just bb. If they do they should go out and by a lottery ticket"
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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