Topic: Gastro Problems ...... Seeking advice from all ......Marnie?
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Last week I had what I thought was a gall bladder attack. Called my LLMD and she rx'd an abdominal ultrasound.
Ultrasound is normal. Pain is now in more areas. right and left upper quadrant. Bad gas, both ends.....sorry, lots of stomach noises. Lyme symptoms flaring. Much worse than they have flared in a while.
Went to a local doc yesterday because I was told that a Dr. should palpate and see if anything was swollen. That was all normal too.
He gave me an acid reducer to try for 5 days. I took one yesterday. I still have a lot of pain and a lot of flaring of lyme. I have skipped one or two doses of abx this past week because of this problem.
Last night I could not stomach the idea of the abx. WOndering if I stopped ABX how bad that would really be. I am on mino, amox, and rifampin. Is one of these more harsh than the others on the GI tract?
I called my doc last week at 11:30PM and am tryiong to hold off calling this weekend.
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Robi, why don't you come off all abx and go visit a health food store and buy some cleanses. Sounds like you need a good intestinal cleanse.
Tell them you need to do something mild at first. I would start with the colon first, because if it's not cleaned out and working great, it could make things more difficult.
Once the colon is cleaned out then maybe some organs like gall bladder, etc. Your sx tell me you have a very toxic bowel right up through the stomach.
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
You might also try to reduce the yeast problem, seems like the symptoms could be yeast-related, the gas especially. If you are already on diflucan and a very restricted diet, forget I said this.
Posts: 8430 | From Not available | Registered: Oct 2000
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5dana8
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Member # 7935
posted
totally agree with lou
Whenever I get bad gas and stomach acts up I stop all meds for three days
Specially gas is a big indicator of yeast for me. I drink tons of anti yeast teas ,do diflucan for three days and detox... And tank down as much garlic as possible. And pound down more probiotics than usual.
Have you tryed the theralac? No I am not selling it but is has made a big difference in the yeast department for prevention.
Good luck to you and hope you feel better soon.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Tanks for these ideas. I did think of yeast. The thing is I eat no, zip, zero, sugar, fruit or starchy veggies. Also no refined carbs.
I was wondering if yeast could still be an issue.
I did call doc and she said because of the flare os sx I should stay on abx for now.
Other ideas?
And can one have yeast on such a restricted diet??
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
robi--are you taking theralac for probiotic?
I had bloating and pain for years and was not able to pin it anything until I started Theralac. The other probiotics just did NOT cut it, and I didnt know that.
At first it was TUFF, it made it worse for about 1 week...then all the bloating went away. I even dropped pant sizes and LOOK thinner.
I love theralac more than anything else I have ever paid money for. calling you soon! Trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
yes robi- yeast can be an issue on your diet, because of the abx.
My llmd put me on diflican as part of Dr. S's protocol, a big difference, and I didn't think I had yeast issues.
Something is fermenting if you have gas and you probably need to balance your flora.
posted
Hi Robi, You might want to try Slippery Elm which you can buy in powder form from most health food shops. You just mix about a teaspoon or two with some water and drink it.
Its a bit like wallpaper paste but it works really well. Its helped my stomach problems no end!
Posts: 229 | From United Kingdom | Registered: Jul 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
IMO it's not always yeast that causes some of these type symptoms. I've been off abx for 3 yrs and done many detox things and have done homeopath for yeast/mold/fungus, been cultured etc. It wasn't yeast.
My toxic intestine, colon, bowels recently was from chemicals that I was exposing myself to. I had never had any lung, broncial, breathing issues so I didn't think I was chemically sensitive like many lyme people. So in Nov & Dec when I was in remission, I started doing alot of arts & crafts, spraying painting, cleaning etc.
Wrong! My chemical sensitivies were affecting my neuro sx and my intestinal sx. I was so bad I couldn't stand to be around myself, if you know what I mean.
Once I started detoxing all this stuff from my body I could smell the toxins. Even my urine smelled like chemicals. Finally I can stand being around me again. lol
Robi, maybe one of those abx is your chemical sensitivity?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I am discovering the area which we live (agricultural land, with a LAEGE area of industrial sites nearby...and water treatment facility) that I am becoming more and more sensitive to EVERYTHING..
I totally related when you said you couldn't stand to even be with yourself! So how do you detox for these issues versus detoxing for other probs (ie: molds, fungus, lyme)? Are they the same methods?
My first symptoms were stomach probs...then gradually neuro stuff crept into the pic...ear buzzing, cranial pressure back of skull, eye pain and dizziness. I've got the high merc levels too, so will be addressing those soon I hope, but just curious on what treamtment you use for the chemical stuff.
Thanks! JavaBeing
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Robi -- when this happened to us it was a combination of H pylori, C. difficile, ulceratins in the esophagus (Barrett's syndrome) and gut, and yeast. And, for the hubby, a hiatal hernia/acid reflux made worse by abx etc. that resulted in a lot of acid reflux. Sx were a huge amount of bloating in the stomach, pain in the gut, constant nausea, pain in the shoulder and mid-back (referred from the esophagus). The hubby also developed all kinds of food sensitivies and other allergies. We both had diarrhea.
We stopped LD meds, treated for h. pylori and C. difficile, the hubby went on Nexium, we both did yeast stuff. Immediate improvement after the h pylori and c. difficle tx; and again after yeast tx. Took a while (several months) to begin a significant recovery, though. Now 4 years later his gut and stomach are just fine (mine too).
Around that time we stopped abx and did Dr. Zhang's protocol. Didn't do much for the LD/co, but gave our guts time to heal and dealt with the yeast.
The hubby wasn't officially dx with Leaky Gut, but lookinig back I'm sure he had it and that it contributed to -- or was the major cause of -- the food sensitivities and allergies.
Back on abx now and tolerating them OK. Had I known more about some of the alternative routes at the time I went back on abx I might have chosen them instead....but so far so good for us, with especially big improvements in cognitive function.
Best of luck. The stomach stuff is miserable -- it affects every other aspect of your health and sense of well-being.
posted
That sounds a lot like what I have gone through.
I went hiking...LOL....and was struck by this debilitiating pain in my right side, just along and below my rib cage. I thought it was my GB. So I scheduled a sonagram.....Turns out , Yes, I have some small pepples in there. Probably got them from my rapid weight loss of 30 lbs when first struck with Lyme symptoms.
However, between the time that I had my first episode, and the date of the sonogram,I had another attack...while hiking again...LOL....on my LEFT SIDE!!! So now I know I have GB stones and still don't know what the hell is causing this pain.
It feels like it involves my diaphragm....kind of like a "side splint" pain that you get when you run.....only worse....and I'm definitely NOT running!!!
Will ask my pulmonolgist about diaphragm involvment next time I see him.
What about your lung function...any different now than pre-symptoms????
Posts: 294 | From nevada | Registered: Sep 2005
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Aniek
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Member # 5374
posted
Robi,
I had what I thought was a gallbladder attack a few months ago. Excruciating pain directly under my right ribs, referring to the right shoulder and wrist. I had an ultrasound and it showed nothing.
I'm now seeing a gastroenterologist because my LLMD is worried. Scheduling conflicts have delayed my tests, but he seemed concerned. So I'm getting a HIDA scan (tests the gallbladder's efficiency), a colonoscopy and an endoscopy. We'll see if they show anything.
-Aniek
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
Dear Robi,
I'm sorry I haven't answered yours or many of the other kind personal emails that came my way, when I asked my question about gut problems. I have been in a "cocoon like" healing process.
Yes, abx can mess things up in the gut -- something I had never even experienced until recently, altho in retrospect I think it was building for a long time.
I really felt the need to work on this with a holistic/ naturopath type practitioner. I was becoming very hypoglycemic, weak, faint, and lots of other fun things. (NOT).
My own Inf. Disease LLMD told me to suspend treatment for a little while as I get some of these things sorted out. I am doing ok off the abx for a little while.
If you PM me again I'll try to answer. Have been very absorbed in healing these things.
Someone on this List quoted, "Digestion is the soul of health," and I am really seeing that to be true!
I can let you know who helped me find someone and maybe they will know someone in your state. I felt better getting supervised re. all the supplements and detoxing I was reading about.
Hoping you find answers and feel better very soon! Posts: 1067 | From East Coast | Registered: Dec 2000
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
All of these replies have really given me a lot to think about. I guess I ccould have yeast and maybe should consider diflucan. I do UltraFlora DF Plus and will try Theralac when I run out of what I have.
I do need to detox and I do need to work on my gut. I thought was doing well with these things, but apparently not.
I had blood drawn yesterday for H. Pylori test and now my LLLMD wants me to see a Gastroenterlogist. So tomorrow, Monday, I try to arrange an appointment.
I suppose that will end up with an endoscopy and/or colonoscopy. Oh joy
I really don't want they HIDA Scan thing as they inject you with radiation. They say it's safe .... I say yeah right!
I am currently taking Aciphex and it has helped, but not stopped all the pain. I really don't want to be on this med long term as I believe they are dangerous. What I want and need to do isheal my stomach.
Yes, Henson, I woud love to know if you know how I can get a good referral.
Welcome, my lung function does sem a bit decreased, but not greatly. I feel like crap so it may just be that I am getting out of breath from being exhaustd.
Well, just more to deal with ........ thanks for all the ideas as they have given directions to move in.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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Have you ever considered having a stool test done to see what is living in your GI track? It will tell you what kind of yeast you have and what natural remedies will kill it. The test will also tell you what kind of bad/good bacteria you have.
I found out i had a bad strain of dysbiotic flora called citrobacter. I used caprylic acid and oregano to kill it. I swear i was getting low grade fevers from it. I dont have a problem with the fevers since i killed the citrobacter. I also killed the candida glabratta which the test showed i had.
Anyway, the test is easy to do and non-invasive. I had mine done through Doctors Data but i know Great Smokeys Lab does the test too.
Just a thought. Hope you are feeling better.
Blessings,
Jordan
Posts: 593 | From Miami, Florida | Registered: Apr 2004
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WildCondor
Unregistered
posted
Jordan, i have the same thing, sent you a PM,
I struggled with c.diff and h.pylori, and still have the Gi pain and cramping but no more "D" just pain. What doses and brands of oregano/caprylic acid did you use? Anything else? I did the Great Smokies test too. Thanks!
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I did a great smokies test a while bck also. But that was before this pain. At the time I showed no ovegrowth of yeast. Had one thing getting slightly too high..... Treated it but never reteted.
I have recently been tested by lab corp for h.pylori and it's negative.
Maybe it's time for another Great Smokies test.
Thanka for the idea.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
I also think it may be yeasts.
Why don't you try oil of origano several times a day 6-7 drops dilluted with water plus tons of probiotics?
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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lymeinhell
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Member # 4622
posted
As long as they've REALLY ruled out Gall bladder, I too would think yeast. But have they really? Did they test enough to know no stones or infection there?? They missed it in my sister. And your symptoms really do sound like a Gall Bladder attack.
If it is yeast, I would think backing off abx a couple days while throwing in Diflucan might help a bit.
Diet helps, but does not completely CONTROL yeast - not while you're on abx. It's unavoidable.
. Catch you later.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
My entire family was having gastro problems. We were using theralac and watching our diet with our abx. It wasn't until I started making kefir (thank you Mo) and everyone started drinking it regularly that the stomach issues resolved.
We don't take any probiotics, but still watch our diets and don't consume alot of complex carbs. A small amount of kefir contains several 100 Billion units of good bacteria.
-------------------- When I feel blue . . . . . . its time to take another breath Posts: 296 | From East Coast | Registered: Aug 2005
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Yes, maybe a new test will give you some answers. I have had 2 tests done so far. My second test showed that I eliminated my yeast and citrobacter. I also had a 25% increase in good bacteria. I was REALLY low in that despite taking major probiotics.
I have started drinking kefir since my milk sensitivity is gone. I dont know if you saw my other post, but, i have not noticed any difference in how i feel with the theralac.
Wildcondor,
I tried to PM you back but your box was full!
I had a 3 system plan. One was diet. Two was killing the bad stuff. I used products from Biotics Research. I used the A.D.P oil of oregano and i used Caprin which is caprylic acid. I took 2 ADP pills and 3 Caprin pills 3 times a day.
The third thing i did was to heal my leaky gut. That took a long time. Within the last month, all my food sensitivies are gone. It took me about 10 months to heal it. I can have tomatoes, eggs, milk, brussel sprouts, etc now without a reaction.
I used IGG 2000 from Xymogen, probiotics, Glutagenics and Endefen from Metegenics and a few other things.
I am still careful with my diet. I DID have a big plate of gnocci with marinara sauce and some red wine last month! I didnt get sick from it.
I hope this helps. The ABX really messed up my GI track, however, i feel i may have had a problem with yeast prior to ABX treatment. I need to do another stool test to see where my good bacteria levels are.
Blessings,
Jordan
Posts: 593 | From Miami, Florida | Registered: Apr 2004
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Don't forget to look for parasites and worms. They could be anywhere in the body and in the brain. And that is not a rare find! Almost all of Dr. K. patients go on a serious parasite program. Serious. Not a colonic or such thing.
I have posted about that before and I will post a bit later when I have time.
Take care.
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