Topic: I eat my hat. Dr. Hull replies re erroneous website info.
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
I often email websites to point out dated information about Lyme, but rarely do I ever get a response. So I was nicely surprised to get this one. It was brought up a few days ago because the website claims babesia can be easily treated or resolves itself without treatment, I think. It doesn't address Lyme, but the section on Bells Palsy advised steroids, a period of observation, then if no improvement, surgery. I just had to write. I got a reply.
I usually don't reprint email but since this one is of general interest and doesn't compromise anyone's privacy, here tis.
Michelle
-----------------------------------------------
>Dear Dr. H____: >> >> I reviewed with interest your website. >> >> Then I came to your section on Bell's Palsy. >> >> After administering steroids and observing a patient with no improvement >> for three weeks, you would next recommend surgery?
I wouldn't; I'm a general peds, and that patient would have been at the neurologist from day one.
>> Bell's Palsy is a >> huge -- and we are talking GIANT -- red flag for Lyme disease, and >> you're not even going to mention it??? Please do not cut on anyone
A little non-medical inflammatory language there. Not necessary, and detracts from your well-meant and thoughtful message.
>> before thinking of this! In fact, please do not give steroids to >> someone until you're certain they do not have Lyme disease, as steroids >> will greatly complicate and prolong treatment for Lyme. >> >> Please do not make the mistake of many doctors and rule out Lyme disease >> on the basis of a negative ELISA as the first part of a two-step testing >> procedure. Up to 52% of people with chronic or disseminated Lyme >> disease will test negative on ELISA but positive on a Western Blot >> (Donta, 2002). >> >> Lyme disease is the fastest growing vector-borne disease in America. >> Please learn about it so you can better help the patients whose lives >> you protect. Thank you! >> >> Sincerely, >> >> Michelle Mahood >>
You're right - the Lyme connection is well known now, and in endemic areas a Bell's would probably would prompt a workup for Lyme disease. I haven't touched that page in several years; I'll refresh it this weekend.
Best regards,
Dr. H___ Thursday, February 16, 2006 - 6:58:50 AM
=========================================
[ 20. February 2006, 02:34 AM: Message edited by: Michelle M ]
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Nicely done!!!
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
very cool! Posts: 1950 | From New Mexico | Registered: Sep 2001
| IP: Logged |
bettyg
Unregistered
posted
Hi Michelle,
Something caused your post to go SUPER wide making up toggle left/right per line. Those of us with neuro lyme can't toggle back/forth & be able to comprehend.
Would you look at this from your original post and fix please? I could have understood this if you posted the web page site address which is long, but no web pages show up at all.
Otherwise, would you use the REPORT POST box and send to Lou or Toby so they can fix. Many will post replies. Thank.
Also, the board moderator's have asked all of us not to show any Drs. LAST name in topic or in body text ... just passing along if you haven't been on the board for awhile. It was changed when they got the new format. Thank you.
IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Good for you, Michelle! So good to hear.......thanks so much for letting us know.
You did good!! Got me thinking what I need to do to help.
Take care.
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
What a concrete thing to do! Your activism will help so many. Thank you.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
| IP: Logged |
posted
Ditto all the above replies. Im amazed you took the time and effort to write these sites and point out their errors and even more amazed that you got such a positive replu
Keep up the good work. Heaven know we can rely on me to do it.
Posts: 561 | From connecticut | Registered: May 2004
| IP: Logged |
troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Good Stuff
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic