GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
i will be laying in bed ,then without warning my hand's ,arm's , or leg's twitch .or my whole body will"jerk".
does this happen to you when your on abx or pain medication? is it just the lyme? (neuro).
the whole body jerking is the worst , this has me worried.can anyone help me with this matter ? thank's , gary
Posts: 1108 | From PA. | Registered: Jun 2003
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All I can tell you is that i get the exact same thing. My muscles twitch all the time and my legs jerk all the time. I am not on antibiotics yet so this is due to whatever i have. I am in the process of being tested for lyme.
Good luck, it is very stressful when my body jerks...especially because i have no idea why.
Lesley
Posts: 120 | From NB Canada | Registered: Jan 2006
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posted
Hello, Do a search for myoclonus here on lymenet. There are tons of discussions on involuntary muscle jerking.
Personally, I would have violent full body jerks for hours at a time before I was diagnosed. Once I began treatment the jerking became worse because of herxing.
After a year of antibiotic treatment and using the anticonvulsant Zonegran, I rarely have a jerk throughout the day. If I do jerk, it happens more when I'm relaxed at night. I'm still in treatment.
posted
Very good advice Myo!! Video taping it would be proof it happens...when I was explaining my jerking and twitching to my neuroligist she turned to my husband and said...Have you ever witnessed this twitching or jerking?
Next time I will go in armed with proof!!!
Lesley
Posts: 120 | From NB Canada | Registered: Jan 2006
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GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
are any of you on pain medication? such as vicodin or the durgesic patch ? (fentanyl ).........gary
Posts: 1108 | From PA. | Registered: Jun 2003
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EtherealGirl
Unregistered
posted
Have you tried Magnesium supplements at night? That always helps me.
GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
i have been taking mag / cal for a long time . doing this for the lyme .
is what your talking about ,something differant ?
thankyou for everyone's input , gary
Posts: 1108 | From PA. | Registered: Jun 2003
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EtherealGirl
Unregistered
posted
Gary, the one I take is chelated Magnesium with Potassium. It works very well for me. I got it at PhytoPharmica, as recommended by another member here.
GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
i forgot to mention i have rsd. (reflex synpathetic dystrophy ) ... i havn't been on here in awhile . you are all new to me. so you would not know this .
i am trying to relate this twitchimg and jerking to lyme or rsd . know i have read about this " myoclonus"
confusion is setting in early for me today...lol...
but i do thank you for your replies.
e.g. , i will look into the mag / pot......gary
Posts: 1108 | From PA. | Registered: Jun 2003
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GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
i forgot to mention i have rsd. (reflex synpathetic dystrophy ) ... i havn't been on here in awhile . you are all new to me. so you would not know this .
i am trying to relate this twitchimg and jerking to lyme or rsd . now i have read about this " myoclonus"
confusion is setting in early for me today...lol...
but i do thank you for your replies.
e.g. , i will look into the mag / pot......gary
[ 22. February 2006, 02:26 PM: Message edited by: GEDEN13 ]
Posts: 1108 | From PA. | Registered: Jun 2003
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posted
I have myoclonus big time...even in my jaw!! Plus I have muscle twitching in all muscles, even my chin. I have muscle cramping and weakness mainly in my right leg/foot and arm/hand.
My right thigh goes numb and heavy when I exercise. I now have pain in that leg after I exercise that will last 2-3 days.
These are all very disturbing symptoms. I am also seeing the head of neurology at a major teaching hospital to rule out other causes (mitochondrial disorders, MG, etc).
Posts: 331 | From virginia | Registered: Nov 2005
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