posted
Hi Everyone, Well still on the lyme treatment with Dr D in Boston. Biaxin and Hydroclorquin. 6 Months now and really don't feel all that much better. My breathing is terrible and I went to a pulmanary Dr at MGH for all sorts of tests and they told me everything was normal. diagnosis was of course Anxiety..
I have mentioned this to my Lyme Dr but he feels it has nothing to do with Lyme. I need help with it but have no clue where to go next. It happens anytime during the day including my sleep. Are there any natural remidies out there that may help? Is this common with any other lyme patients out there ? Is there someone else I should be seeing? I can deal with the lyme symptoms better than I can with the Air hunger problems. I have to believe there is something out there testing wise or medicine.
My allergist thinks I have a Vocal cord disorder but I am so sick of being jabbed at and all the tests, I just don't feel like going to another Dr. It is so depressing to go through all of this and have the outcome result with no answers. Any help or comments would be appreciated.
King Regards Jeannine
Posts: 38 | From New Hampshire | Registered: Sep 2004
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
The air hunger that awakens my husband (gasping.... then he's up & out of bed ) is a symptom of babesiosis.
In the summer he freezes us at night with the air conditioning running all night. Says it helps him breathe.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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bettyg
Unregistered
posted
quote:Originally posted by jocon63: Hi Everyone, Well still on the lyme treatment with Dr D in Boston. Biaxin and Hydroclorquin. 6 Months now and really don't feel all that much better.
My breathing is terrible and I went to a pulmanary Dr at MGH for all sorts of tests and they told me everything was normal.
diagnosis was of course Anxiety.. I have mentioned this to my Lyme Dr but he feels it has nothing to do with Lyme. I need help with it but have no clue where to go next.
It happens anytime during the day including my sleep. Are there any natural remidies out there that may help?
Is this common with any other lyme patients out there ?
Is there someone else I should be seeing? I can deal with the lyme symptoms better than I can with the Air hunger problems. I have to believe there is something out there testing wise or medicine.
My allergist thinks I have a Vocal cord disorder but I am so sick of being jabbed at and all the tests, I just don't feel like going to another Dr.
It is so depressing to go through all of this and have the outcome result with no answers. Any help or comments would be appreciated.
Kind Regards Jeannine
Welcome Jeannine to the board.
I too have this..severe & depression caused by my undx chronic lyme for 34 years!
vocal cord disorder; they took xrays of me and didn't have me standing correctly. Said I had partial paralysis of vocal cord. Had in anxiety for 6 months and then repeated with me in CORRECT position .. normal!
Jeannine, many of us have neuro lyme of our brains. Please break up your paragraphs to 6-8 lines of text and DOUBLE space so we can read & comprehend. Thanks for helping us, help you out.
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I've heard others mention air hunger and I've had it quite badly for a long time. Several others in my family are ill with the same symtpoms that I have and they also have air hunger.
I've read in several places that it is probably caused by a co-infection. Have you asked you doctor about co-infections?
I have a postive IGeneX for Lyme and I'll be seeing a LLMD in April. I hope to find out if I have co-infections then since I've read that they should be treated first - before lyme.
I really feel for you because I know how miserable it is. I can't advise you on what will work for you but I did find that samento helped after I was on it for awhile. I was able to breath much better and when I quit, the air hunger came back. I tried quitting several times and each time the air hunger would come back so for me, the samento helped a lot with the air hunger symptom.
I didn't want to stay on the samento for various reasons. I use muscle testing and tested that I could use Seriphos by InterPlexus, Inc. to help deal with the air hunger symptom. It is phosphrylated Serine, an adaptogen and adrenal support product. It has helped me a LOT for the past several months.
I take 1 pill with dinner. I notice after dinner that I sometimes have air hunger for awhile but then it goes away and I can enjoy breathing fully again.
Oddly enough, I tried to take the phosphrylated serine before I went on the samento but didn't notice any difference. I'm not sure why it helps now.
If you can find someone in your area who uses CRA (contact reflex analysis) or some other form of muscle testing, I highly recommend it to help with symptoms.
Some people on another list have said that they think their air hunger could be related to tight muscles.
Ultimately, I would check out the co-infection angle first if you haven't already. I hope you get some relief soon.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
valymemom, Just want to mention that waking up gasping for air is a common sign of sleep apnea. I found this out after I was diagnosed with it.
Treatment hasn't helped with any of my symptoms but at least I'm not having a stroke because of untreated sleep apnea. My doctor say's if you have it and don't get treatment, your chances of a stroke go up considerably, something like 400% if I recall correctly. Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I had this really terrible, I believe I would have died had I not found out it was lyme when I did.
I had had severe stress for a few years and this I am sure really set the UNdiagnosed lyme in me into full gear...
For myself, Biaxin and FLAGYL completely took it away. I then went off antibitoics 7 months later, and it returned 2 months off antibiotics, as well as severe dryness in the mucus membranes, I was then put on Azithromycin and Flagyl, this air hunger again got compleletley well.
Rife helped this too, rife lyme numbers.
I have also been on clindamycin and quinine for babesia, but I did not have air hunger.
I believe for myself the air hunger was lyme.
Flagyl was a key to getting me well back them for air hunger.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Thanks Terry
When my hubby has his appointment with my llmd she suggested a sleep apnea test.....don't like those statistics you mention so I will push my husband to be tested.
In our family where three of us are being treated for lyme - my husband has the greatest number of symptoms (over the course of 14 years.) His Igenex testing came back negative so he is doing the urine challenge test now.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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