5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi guys
I have been treating the babs for 2 &1/2 months with biaxin,plaqunil,mepron,arteminisin. Pulsing this combo.
My stomach craped out & now I have to take some time off to heal.
Before treatment my main babs symptoms in this department where fever & chills. I no longer get these.
But now I get hot flash's & sweat at the drop of a hat. I break a sweat now typing this. This is very unusal for me. The only time I would break a sweat was in my hot baths.
The real problem is it is waking me up 4-6 times a night. This is also unusal for me. As, once I fall a sleep I stay a sleep for 10-12 hours. I find I have needed this much sleep. Not good.
Sorry for the long words to get to my question:
Has anyone found treatment for babs could stir up the babs? Or Cause the babs to come back in a differend way ...such as in my case sweating & hot flash's?
I also turned 47 last month. What are the chances that I hit menepause the exact same time as babs treatment, without any other signs than the hot flash's & sweating?
I called my LLMD and waiting to hear. I would greatly appreciate any feedback you all might want to share.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
Hi, Dana.
This will be brief as I am heading out the door. I just want to say that I'm having this, too! In fact, I just posted about having a lower than low temp with Babs Herxing, and I mentioned that I thought my temp was higher because of the profuse sweating, and I do mean profuse! Ick.
I think that it is Herxing, and maybe the body detoxing. Sweating is one way we do detox.
It's possible, also, that hormonal issues are part of the picture. Maybe not menopause but perimenopause? Or maybe the Herxing stirs hormones? Yikes. I realize I'm raising more questions.
I realize this isn't so brief, either.
You're not alone. Man, this is so gross, huh?
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Until just this past week I did NOT have any sx of babs unless I was taking babs targeting meds. If I was treating then I would have sx. If I wasnt treating I would NOT have sx.
This just changed this past week. Iswear, I talk about stuff like this and BAM my body mocks me. No kidding---it is truly eeerie!
My babs sx that I have are dizziness, sweating (but not nite sweats) temp problems---both too high and too low bod temp, feeling hot/flushed in the face, immediate need to sit or lay down, labile blood pressure, and FATIGUE!!!
I just started getting about 1/2 of these last week after I wrote that I never get my babs symptoms unless I am treating it.
My body hates me.
I feel for you, Trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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David95928
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Member # 3521
posted
Profuse sweating at MINOR exertion, feeling very hot, and having night sweats were all part of my symptom picture. It must not have been babesia because they are gone and I never did a babesia protocol.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Thanks humanbeing for yourwarm thoughts and cool breezes
Thanks Steph for posting your thoughts. I don't think it's a herx as I have been off meds for 12 days and on a holiday due to my stomach.
Thanks david05928 Did you get treatment for just the lyme then?
The only other thing different in my routine of meds or supps is I doubled my freeze dryed garlic to 2 - 3XD.
Will let you know if this could possibly be the culprit. Who knows. I never thought I would complain about being too warm. I have been cold/fever's for 20 years.
My favorite expression has been "you can never be too warm or too cold" Go figure.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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David95928
Frequent Contributor (1K+ posts)
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posted
Dana, All I have taken is Bicillin ad Biaxin.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Well, at least you can rule out perimenopause, David...
Yes, I wish someone would do a study on how Lyme messes with hormones, because it seems like a lot of people have reported worse periods, worse PMS, and worse perimenopausal symptoms, with Lyme.
At 49 (44 when all this started) I am most definitely into perimenopause (the hormone ups and downs before periods finally end -- I think of it as a teenager in reverse!).
Last year when I relapsed, I was getting teeth-chattering chills every evening (really quite upsetting), then night sweats in the middle of sleep, occasionally severe enough to force a change of pajamas. Detox baths seemed to help some with the sweating, but not the chilling.
I also had migraines, one a week, with many days of low-grade headache in between. Normal for me would be one headache 2 days before a period, and maybe one 2 days after starting one.
I was prescribed 6 weeks of Mepron/Zithromax for babesia. Dunno if it was the Zith of the yellow paint that did it, but I got kicked HARD with that stuff (herxed on the 4th day, then the 4th week I was wiped out like I had the flu for about 3 days. Two days after stopping, I felt HUGELY better, the best I had in a year. I continued to improve.
I also skipped a period immediately, had a light one, skipped 2, had a heavy one with hormonal stuff (one migraine that was stopped with an Excedrin). Just skipped another one. Perimenopause alone is much miore tolerable than peri AND sick!
Regards, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
when I have a babs herx I turn clammy sometimes, freezing and eyes watering and feeling cold, cannot get warm)
OR
I get hot, sweaty and greasy, wake up in a greasy puddle, sweat pours off (I am not one to sweat and I am way past menopause.
I think it is a babs herx IMO Lymelady
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Nov 04 I came down with a very bad virus. The doctor ruled out strep and said it would just have to run its course. I normally bounced out of any illness within 24 hrs, but this one kept me in bed 3 days and weak for a week.
After this, I began horrid hot flashes. They could come every few minutes and would begin as a burn in my stomach that radiated out. I also developed serious cognitive problems which I described to my husband as foggy brain. I did not seek treatment as I thought it was menopause and I did not want to go on HRT.
In Aug 05, I began Bioset treatment with a chiropractor for allergies. It also promised some relief of the menopausal symptoms. Instead it brought on migratory joint pain.
I was sent to a pain specialist in D.C. who diagnosed lyme and began treating me homeopathically. Almost immediately, the hot flashes disappeared and the foggy brain cleared right up. Also, migraines I had suffered for years went away. I was estatic!
In the last few weeks, the hot flashing is returning but much milder than before. Still it scares me. I don't want it or the other symptoms to return.
My mother never experienced the first menopausal symptom and neither did my sister. I no longer think it was menopause but rather my immune system trying to combat the bugs. I believe it is so for you too.
I have not been diagnosed with babs nor treated for it. Is that your only diagnosis? No lyme?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
PS: I stopped the homeopathy in February when I was diagnosed with Rheum. Arthritis.
I believe the homeopathy was working against this disease, but bringing on too much herx for my body. I'm trying other methods now that deal more with RA. I only just began "Healing Lyme" herbal protocol last Sat and the herxing is revving up again. Also, the "warm" flashes have begun with the herbal treatment.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Hey Dana, I get the flushed feeling daily. I also get burning in my back and sweat in my back just from simple chores like foldin laundry and washing dishes.
I am a man and did test pos to babesia. The only abx I have taken to date that made me feel worse are mepron and flagyl. All that IV stuff did nothing for me.
Posts: 208 | From Greenville SC USA | Registered: May 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Shaz--(and others)
there is one small "study" of Bb and women's hormones.
and click on Dr. C's endo and pelvic pain center. on that site click on "the role of Lyme disease."
He did a small "study" that he presented to the endo association's 25 conference. He worked with Igenex and Dr. H during the study and has also worked with Dr S in san fran.
He really needs to do more research, but he is SUCH a great surgeon---I'd hate to see him go---women who suffer from endo really need him to help them!
Posts: 1950 | From New Mexico | Registered: Sep 2001
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I have been on babs treatment for about 3 months, and have had problems every night waking at about 3am feeling absolutely on fire. I don't get sweats, but just feel hot, and my heart pounds. I think this is definitely a herx symptom (doc agrees) and I try to "power through" as much as I can, but take a day or 2 off when I absolutely need to sleep. It seems to be very very gradually getting better.
As for dizziness, I find that cholestyramine helps with that.
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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posted
I'd been having horrendous sweating for months - night and day. Artemisinin would always make it worse.
Since starting Bactrim DS about 4 weeks ago, the sweating has gradually decreased and now it's virtually gone. I'm going to do one of those 3-day, high-dose Artemisinin things in the next day or so and I'm wondering if the sweating will come back.
Posts: 81 | From NJ | Registered: Mar 2005
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[ 15. March 2006, 04:42 PM: Message edited by: stella marie ]
-------------------- Stella Marie Posts: 694 | From US | Registered: Apr 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Thanks for all your input I really appreciate it.
A quick update. I had mentioned the only thing I have done differently was up my freeze dryed garlic caps to 2 3XD. I stopped taking them 2 days ago and now I am bad to being cold. No more hot flash's or sewats. I am sitting here now with 3 layers on and my space heater running.
Could this just be a coinsidence? I am going to start my garlic pills today and see if I don't get the hot flash'e/sweats back.
My LLMd's office called and said that ,if you interupt a babs treatment to soon...in others words stop tratment before it is errdadicated it can stir up the babs.
I am armed with a lot of new information here. It will be interesting to know if I start back on the garlic cap's & get the symptoms back is it:
1- a reaction from taking high dose's of garlic or 2-the garlic is doing some killing action on its own. 3- a coincidence & the babs have returned at the same time I stopped the garlic.
But if I resume only the garlic supps and the sweats/hot flash's return than I'm banking my money on the garlic supps.
I'll keep ya posted LOL dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Stella and others---looking for links between women's issues and lyme---you go to:
On the right side there are some boxes. Inside one of the boxes labeled SUPPORT INFO it says "Dr C---'s endometriosis and pelvic pain info center" Click on that.
It will take you to his site.
At HIS site you will see "the role of Lyme disease"
Click on THAT.
You are there.
It is easier to just go to his website directly, but I would have to give his whole name and that is against the rules here. Hope you find it---if not--PM me.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey Trails Great link Thanks for posting
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Thanks Trails.....It took awhile, but I finally figured it out and went to his site.
-------------------- Stella Marie Posts: 694 | From US | Registered: Apr 2005
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hardynaka
Frequent Contributor (1K+ posts)
Member # 8099
posted
Trails, interesting information on endometriosis and lyme...
How would endometriosis affects hormones?
Your babs symptoms look very similar to mine! I don't get the hot flushes in the face since the last mega-herx I had ( I suppose it was a mega herx on the lungs).
And now I'm struggling with air hunger that comes and goes.
Dana, Zhang uses garlic as an important part of the treatment against babesiosis. I don't know if it works, but it could also kill babs.
I have lowered my fresh garlic intake lately (complains in the family), and that's when I got such a terrible asthma attack. I also wonder if this all is not connected.
Is it my impression or babesiosis looks SO MUCH IMPREVISIBLE in the way it changes almost from night to day ???
My babesiosis symptoms vary a lot everytime I 'attack' it. Or could it be that they would change anyway, even if we don't do anything against it?
I don't have anymore night sweats for months. HOt flushes also, they were there everyday for weeks, then suddenly vanished. Then I got shivers like hell, no hot episodes anymore.
If I understood well, lyme sufferers don't get much high temperature fevers, but mostly hot flashes???
I never suffered from high fever sweats. My sweats were only due to low body temperature, I sweated when I reached normal body temperature. Those were drenching sweats and how it felt good! Only then, I could fall finally asleep.
Now, all of a sudden, I start to have attacks of breathlessness that come and go. My lungs feel like with 'permanent' damage. Everything started last week on Friday.
What does it mean 'stir up' babs? My English is not good enough. Does it mean 'mess up'? And that babs gets more resistant/ serious??
Selma
Posts: 1086 | From Switzerland | Registered: Oct 2005
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