NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Following is a link to a new lyme site. Paula has put this together as a place where ALL lyme patients nationwide, can paste their name, state and a brief description of their lyme fight.
The purpose of this site is to act as a repository of information on lyme, it's victims, and abysmal treatment. We can use this site to direct our various state legislators towards, so that they see evidence of ALL lyme patients nationwide.
Here in Wisconsin we are initiating action to pass legislation to allow doctor's to adequately treat lyme disease.
Perhaps, we could lock this in at the top for a while, so everyone gets a chance to reply ?
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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bettyg
Unregistered
posted
NP, please send Lou B a PM of your wish to have on top for awhile; yes, it will get buried as usual.
FOLKS, THIS HAS A 250-WORD LIMIT per the revised email I got from NP today.
Yea, 50 more words. I dug out one of my stories I submitted one of the newspaper; my goodness, 1024 words! So I started widdling it down. I think the last time I did the word count it was still 400 something!
I gave a quick glimpse at the site tonight after my revised email got to me.
I gave a brief look to Paul's personal story, but I could NOT read it! It's TOO SMALL of a print to read! Also, it went super-wide width & I can't read that either.
So Paula's site for stories is NOT user-friendly for my low vision needs.
NP, would you pass along my thoughts & suggestions especially since the stories have NOT been rolling in fast so far. Good time to make a change.
What good are the stories if we can NOT READ THEM!
Perhaps I should wait another week, and Paula wll have it up to 300; another week and 400; then it's time to submit it! LOL
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To make the text larger on a website (any website) just click on View then Text Size and click Increase (Mozilla Firefox) or Larger or Largest (Internet Explorer).
That should help you some. The text is awfully small and probably most people would have a hard time reading it as it is.
Posts: 105 | From CA | Registered: Apr 2005
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bettyg
Unregistered
posted
quote:Originally posted by Squeegee: bettyg --
To make the text larger on a website (any website) just click on View then Text Size and click Increase (Mozilla Firefox) or Larger or Largest (Internet Explorer).
That should help you some. The text is awfully small and probably most people would have a hard time reading it as it is.
Squeegee, thank you for your kind comment....
fyi, I always have my browser at the LARGEST it can be....my eyes could NOT have it any other way.
Glad you agree text is AWFULLY SMALL. I do hope she will fix it or I'll not even take the time to send my story/name, etc.
We chronic, neuro lymies face enough without one of us creating a web site with SMALL, illegible print.
Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO. Posts: 281 | From CT | Registered: Oct 2005
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bettyg
Unregistered
posted
Hey Vitch, please PM me AFTER reading this ok..thx!
How about you & I write Paula; think that was her name at the address shown above about the 250 limit, and me....enlarging the print for us neuro lymies.
I have spent 1 hr. whittling down my 1100 words plus I sent one newspaper before I knew they had a word limit. Down to 444 words; I'm not cutting any more out.
Anyone else want to join us on more words & a legible web site that ALL of us lymies who have stories can be very proud of? Thanks for your consideration...
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
I've e-mailed Paula, the director of the site and provided a link to this thread so she can correct the problem.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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bettyg
Unregistered
posted
Paula, please edit your site and use the ARIAL font with no. 3 pitch or 12 pitch.
What you have on your site is ILLEIBLE. So please fix this immediately I would like to send you my story whittled down from 1000+ words to 444.
Your limit is 250; a drop in the bucklet. Please change the font ASAP please and make the words 500 dead limits.
I'm falling asleep again; need to quite & hope I found most of my errors. Thank you.
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Here's the e-mail I received from Paula regarding her site.
Dear fellow Lyme patients & friends:
Thank you to those who are signing up at www.LymeLeague.com (Lyme League of America) !!!!
In less than a week, we already have names from 17 states! This is fantastic!
If you have not taken a moment to add your name and/or story about lyme, please do so. We need as many lyme patients as possible signed up at this site!
The purpose of the site is that patients and their families with Lyme disease can be found collaboratively in one place on the internet. In this manner, legislators, doctors and others can see that we are real people dealing with real disease.
Names (or initials) are a powerful tool to prove that there are physical bodies out here in America who are dealing with a disease that many refuse to acknowledge exists!
If we can all be seen standing together then maybe we will no longer be ignored!
Please take a moment to add your name & city. It takes only 1 minute of your time to speak out and sign up. Make your voice count. If we stand together, then we can change the laws together to affect diagnosis and treatment.
"Together We Grow Stronger"
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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bettyg
Unregistered
posted
I see where Paula FAILED to address the 2 areas I mentioned: having a LARGER, LEGIBLE font, and increasing the words from 250 to 500.
NP, can you forward this to her so she will finally address this issue.
I'd like to go & read folk's stories, but I will NOT knowing I can't read or would have to strain my eyesight. Lymies should work with each other when there is a MUTUAL cause.
If you have WindowsXP, there is a built-in tool that magnifies the screen. To use it, click on the Start menu, click Programs, Click Accessories, and click Accessibillity Tools. Then click Magnifier.
It will show a magnified version of your cursor location. It is adjustable from 2x to 9x magnification.
Good luck DadOf2
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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posted
Hi all. This is PJ Langhoff, the party who is designing the Lyme League web site. I too, have neuro lyme, have for 14 years. I would ask that you try to help support my efforts instead of grousing.
First, I am still designing the site. But since I did not get any feedback from anybody, I was unaware of any difficulties that anyone may have had. When I did get exactly 2 emails, I gladly corrected any problems, like the fact that the form was not accepting that which it was supposed to accept.
For right now, the text is in 8 point (and it is Arial), because that is the size I felt comfortable putting up there right now. I felt enough users would know to increase the viewing size to be legible. Yes there are accessibility tools on most PC's that enable text to be enlarged. But I will gladly increase the font size to a certain degree to assist those with viewing problems.
As for the word count, I can address that to the limit of 500 words or less from 250. There was a problem originally and the form was not working. This site has only been up less than a week and I am still ironing out the kinks, but am happy to accommodate where and when I can.
I want this site to be successful. That is why I am doing this in my so-called spare time, though I am on disability and ill, and paying for this out of my own pocket with no help. So please cut me some slack and if you have suggestions, I can be reached at [email protected] and am happy to accommodate.
But one problem I see happening is that if everyone wanted a thousand words I will have volumes of information and worry that we won't be able to post that efficiently. I hope to have that problem rectified when the database is completed, which will dynamically create your entries as you post them. This will give you more text space to write, some ability hopefully to correct typos, and make it more intuitive for the end-user.
I try to design things as user-friendly as possible, however, everyone has different tastes, and also remember I suffer from the same illness as you all do and I'm doing the best that I can.
So please keep your suggestions coming, be kind, support me and this cause because in the end we will all benefit.
"Together we grow stronger"
Peace
PJ
-------------------- PJ
www.LymeLeague.com"Together We Grow Stronger" Posts: 139 | From A tiny little home office in the middle of Wisconsin | Registered: Feb 2005
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bettyg
Unregistered
posted
Paula, so glad you posted on NP's post about your site.
I went there now and wonderful changes were made so I can now read your site. You corrected the super wide width which I greatly appreciate as well.
As time permits, I'll read your story and the others posted.
PAB, thanks for your suggestion about the magnifier in accessories. I've not had any luck with tha as it distorts the letters shown for my eyesight. Never hurts to mention things as what one person knows, another person does not know.
Again, I do use the view, size, largest font & that helps tremendously.
After my brain MRI today at 1 pm, I'll get busy again and put my story in final shape and enter on your web site Paula.
Thank you also for going to the 500 word limit!
Thank you Paula for your initiative on this project to involve all 50 states who have lyme disease.
I'm very sorry you took my comments as criticism; it wasn't intended to be that way ... as suggestions to your site at the beginning while you twiked it. Peace.
Most importantly, I hope this finds you on the road to remission as we all hope to be.
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Here is another option for enlarging print:
Hold down the key Rotate the wheel on your mouse One direction will make the print smaller, the other will make it larger
-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
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-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
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BostonLyme2005
Unregistered
posted
This new Lyme site.....MMMMMMM....It states that 80-90 % of people have a rash, MMMMM...
I think that stat is far to high...I also noticed they made some other mistakes....
Everyone should read it and send them some notes....
posted
Suzanne, the mouse wheel trick is something I taught you all on the MP site. I learned it from writer Kees Boer, who who write-ups on Pax tv shows, DOC, and Sue Thomas FBEYE.
but thanks for it; others can learn from it too. I used it daily all day long when I'm on here.
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