posted
Duramater, Oh, do I know exactly what you are going through, I have the very same thing going on, and it is extremely painful. I have had all of those named tests too, but once I did come up with some type bacteria that I never heard of, and was treated with a macrobid type antibotic, and that took 3 weeks to lower the pain, but it is still there. I am on the pain patch, percocet, and have another when nothing works.
My uro/gyno dr. diagnosed this as a neurogenic bladder, and there is one thing that can be done for that, it intails a pacemaker. It sounds awful, but.Write me back and I can explain more if you want to.
Posts: 44 | From PA | Registered: Jul 2004
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Have you been treated for systemic yeast?
Posts: 1572 | From Pa | Registered: Jun 2001
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posted
Have you been treated for Lyme for a lengthy period of time? I have Interstitial Cystitis and it was so bad that I had to retire from teaching.
Now after going through 4-5 yrs of Lyme treatment, I'm MUCH improved! You probably have Lyme camping out in your bladder, and as you probably know, it won't show up in TESTS. Sometimes I HATE tests!
posted
I am also having major problems with my bladder. My urologist also suggested the bladder stimulator implant--not a road that I am willing to go down yet! Even though it is neorogenic, I am working with a PT (I have only had one appointment) to see if that will give some relief. Some of the pain may be realted to the sphincter muscles being in spasm.
I will let you know if that helps at all. The pain can really be intense--I was initially hospitalized for it. Hang in there.
Posts: 1 | From Villa Park, Il | Registered: Sep 2005
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quote:Originally posted by marnaught: I am also having major problems with my bladder. My urologist also suggested the bladder stimulator implant--not a road that I am willing to go down yet! [/QB]
Have you been tested for IC?? I wouldn't go the route of the stimulator until you've had alot of abx for Lyme....and perhaps other treatments and an IC diet to calm things down. See the link above in my other post.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Dont feel forced into a decision either.
I agree with lymetoo and based on my experience.
My bladder is much better now that im back on abx....its still not normal, but it is better then it once was.
Look into the IC diet too........i know chocolate is a big trigger for me, so i avoid it at any costs!!!
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Thanks everyone for replying, I forgot about this post. Lymie brain
Ihave had 3 years of heavy duty abx, IV, and mepron and ketek,zith for the babs.
I have had all of those nasty bladder tests, and thats where the dr. noticed the bladder being neurogenic.
IC was discussed, and is not IC.
I am in no hurry for this interstim, but when that bladder kicks in and wants to cause all of the pain and agony, and not able to pee is just beyond all suffering one can tolerate.
Right now i am only on a low dose of zith. I have had some very bad reactions with mepron of late, and I think mepron was one of the drugs that really threw my bladder into one of those attacks.
Thanks for in input Mary
Posts: 44 | From PA | Registered: Jul 2004
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