posted
Hi all! I used to practically live here several years ago. I was diagnosised back in 98 after being sick since 92. I found out there was life with lyme. I thought I was adjusted to all of its trails that it leaves behind in our bodies but now here I am again. I feel like I did back then. I can feel everything starting again. I'm going back on the good ole ABX's next week. I keep hoping it is just a bug and I will wake up & feel fine. I hate the ABX's. After so many years of them my stomach can't take it. Just wanted to HOWDY and I'm probably going to be around. I need to get caught up on what is new out there in the med line for us lymies. Try to have a good day! Molly
Posts: 13 | From Chillicothe, Mo | Registered: Jun 2002
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I am having the same problem. I was diagnosed in 1991 and not treated until late 1992. On IV antibiotics for 13 weeks. Here I am 14 years later with the same symptoms and having problems with the doctors not wanting to believe the symptoms. Waiting for test results, again.
[ 16. March 2006, 03:46 PM: Message edited by: devan726 ]
Posts: 20 | From California | Registered: Mar 2006
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posted
The docs and I never thought about coinfections back then. I don't think many of them thought at all about me and my illness. All they wanted was my last dime.
Posts: 13 | From Chillicothe, Mo | Registered: Jun 2002
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posted
Wow, how did you afford I.V. for that long. Most insurances only cover 30 days from what I hear.
Posts: 204 | Registered: Jan 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
You should treat for the co's---even if you dont test positve-- the testing for them is as faulty as the lyme tests.
There should be a LL in MO---I think I know of one off the top of my head...any chance to get in there?
Also Dr B just put out a new guidelines this past fall and it is VERY different from the old ones. I only just started reading it a month or so ago and was surprised to see some of what he is now saying.
posted
I refused IV treatment so I didn't have that expense. There are LLMD's here in Mo but I don't even want to go that route again. One leads to another. I'm going to get by in the simplest way I can and with the least amount of meds. I am allergic to almost everything so I don't have much choice. Do they still have the weekly chat rooms? I always loved meeting every Tuesday night.
Posts: 13 | From Chillicothe, Mo | Registered: Jun 2002
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bettyg
Unregistered
posted
Welcome back and breaking this up for us neuro lymies so we can comprehend....so hit enter often and double space please. Thanks.
quote:Originally posted by lyme_aide:
Hi all! I used to practically live here several years ago. I was diagnosised back in 98 after being sick since 92.
I found out there was life with lyme. I thought I was adjusted to all of its trails that it leaves behind in our bodies but now here I am again.
I feel like I did back then. I can feel everything starting again. I'm going back on the good ole ABX's next week. I keep hoping it is just a bug and I will wake up & feel fine. I hate the ABX's. After so many years of them my stomach can't take it.
Just wanted to HOWDY and I'm probably going to be around. I need to get caught up on what is new out there in the med line for us lymies. Try to have a good day! Molly
Molly, yes, someone has a regular chat Sunday night I believe; so look for that post from last week; normally posted on the night of chat!
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Try to have a good day! Molly
![[Smile]](smile.gif)
![[hi]](graemlins/hi.gif)
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The docs and I never thought about coinfections back then. I don't think many of them thought at all about me and my illness. All they wanted was my last dime.
![[Eek!]](eek.gif)
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