On the lightest note: occasionally I have a case of violent, loud hiccups that can last for up to 1/2 hour. They hurt and the only cure is to drink water and hold my breath. I wonder if the nerve in my diaphram is creating these hiccups, since I have neuro lyme and it creates tiwches, pain, numbness and tingling in just about every other part of my body.
Also, I'm off abx right now and don't feel worse or better. I'm very discouraged. My LLMC discovered I have hyopthyroid and I've been on synthroid .088 mg table 1x/day. Seems like a very low dose. I haven't noticed a bit of difference and I was really hoping that after 8 weeks, I'd lose one pound or have some increased energy.
She also prescribed me Lyrica because I have such dibilitating pain (especially at night) but I find that I still have to add my Morphine Sulphate, which seems to keep me up all night.She was hoping the Lyrica would help my sleep. I'm typing this at 4:30 AM. I also took a 2mg Clonopin for siezures and it also hsould knock me out, but here I am and am still wide awake. My eyes are droppy, but my mind is going a mile a minute.
Anyone else with these difficulties? I was diagnosed three years ago. Did the PICC line for 9 months and then 3 months of abx. Took 9 months off to get my gut back to normal and went back on abx from August until January of this year. I just felt I wasn't getting anywhere. I feel the same as I did before I started the PICC line. Obviously I felt horrible the whole time on the PICC line but even worse when I went on the oral meds. I slept almost 24 hours a day. I could barely lift my head and would just listen to the TV or music. I couldn't work on my computer (my love), so when I saw me LLMD, he agreed that I was toxic and tooke me off. Then, I had a myriad of problems including gullbladder, major Yeast of the gut and extreme exhuastion, or plain chronic fatigue and extreme weatkness from the gut difficulties. I finally got that straighted out and they put me on Cymbalta. After one month, I finally started to feel better! Oh, I was so excited. We sent to our summer place and I rode my bike and had friends visit on my porch. Went to a movie and a party. but after 3 months, I hit the wall and I crashed. I haven't recovered since.
I went back on abx and was able to got out and watch my sons play tennis and swim team. However, after 6 monts of the abx, I got incresaingly worse. I seemed to gain more weight (50 pounds total now) and I was even more weak and suffered through 1 one of extreme exhaustion. Went to an endo. to see if I had problems, but he was no help. He told me to go to Duke Medical and get a full check up. I did call Duke - and guess what - they don't treat people with Lyme Disease!! Unbelievable!! I have spent the past two months in bed. I am so depressed, I don't want ot leave my bedroom. And when I do, I don't know what to do with myself. I feel like I've become attached to my bed. I'll go tuck my 15 year old in bed (which he doesn't exactly want at his age, but it makes me feel good. Now my 12 year old is sepearting from me and it hurts, but it's the life process and I have to accept that. I just hope they don't distance themselves from me because I'm so boring. I do try my best to be vibrant and I'm extremely involved in what they do (email teachers, create webiste for tennis team, know every grade they make, where they stand, who their friends are, what they are doing, etc. Still scold them when they aren't pulling their weight), but I cna't remember the last time I was downstairs with them for dinner.
I told my lLMD that I was very depresed, but she doesn't want me to stop my Cymbalta until I get my pain and sleep under control. Every time I go, it's some new treatment that will pull me over until I go again in two months. I never feel positive about my treatment - I just feel as though we're putting bandaides over every symptom.
I wonder - has anyone ever been cured by this? Or do they get better and leave the post so we never hear from them. I'd love to hear from people who have gotten better.
I've lost my life, my role as a mother, wife, volunteer, worker bee, aerobics instructor. I've lost my looks: gained 50 pounds, have horrible acne, hair falling out, nothing fits. Plus I'm extremely depressed and can't seem to get this through to my LLMD. I've been taking Cymbalta, but it's not shaking it. I've been on antidepressants since 1982 when I contracted the disease, and Prozac was my lifeline until I stopped taking it when I got extremely ill with Lyme.
Sorry so long - I'm really at a loss. I have two kids and I feel they won't know me from before I was sick. They come and see me in the bedroom after school and their events. I'm totally up on what they do, but I don't do anything for them or with them. I don't cook, clean, do laundry, drive them to the moveies, watch them play tennis or swim for swim team. It's become ridiculous. My 75 year old mother does more in one day than I do in a year. I can't stand it!!
I get up and determined to take a shower and make it a good day and after the shower, I'm back in bed - pooped out. Some times I just cry and cry and cry. I miss my life. I miss my husband and my kids and I just feel like I'm a total burden on everyone. I'm also a concern to my aging parents. My mom and dad have been completley supportive throughout this entire ordeal and I told them, "I'll take care of you in your dotage (old age)", but today I found out that my father has advanted-aggressive prostate cancer, and I just lost it. I want to be well for him to take care of him. I'll do anything to fake being well when I talk to him, but at this point, I can't go to Florida and care for him and this is just not the way it's supposed to be!
See, so many issues, I could go on and on. I actually made an appointment for counseling ($100/HOUR) but forgot! because of my brain fog. I just feel like I will never be well, never be "Grace" again. Never walk on the beach with my husband because I can't walk and can't stand the heat..... Anyone else feel so hopeless? I want to be well. I want ot have the energy to be well, and even though I go to the best LLMD in the southeast, I'm not getting anywhere.
Help!!
Posts: 75 | From NC | Registered: Dec 2004
| IP: Logged |
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hi NC
I picked up my tick bite in NC too. I lived in the Greensboro area for 15 years. I ride horses and competed in long distance competitions which had me riding all through the woods of NC. Hard to say exactly where I was bit.
It sounds like your LLMD is only using abx to treat and is not looking at other sources. Those of us who do not get well after an adequate round of abx are almost certainly dealing with more than just Lyme bacteria.
Good LLMDs incorporate much more than just abx in their treatment. I have been tested by two doctors for metal toxicity and found I have very high levels of mercury, aluminum and silver. Everything I read says you cannot get well while you have toxic levels of heavy metal in your body. It prevents you from eliminating toxins. So I am having my two remaining amalgams removed (I had 11 originally)by a biological dentist and this will be followed by chelation with a medical doctor to remove the heavy metals from my system. I also have 5 root canals and have been diagnosed by one dentist as 4 of the 5 having bacterial infection. The dead root of the tooth becomes a perfect breeding ground for the bacteria because the blood and immune system do not enter dead tooth areas which means the abx can't get there either. I am getting a 2nd and may well get a 3rd opinion about this as removing 5 teeth is a major step to take. There is very good research out there that supports this cause of chronic illness. It makes a lot of sense based upon my symptoms which have included migraines, short term memory loss, cognitive difficulties, stiff neck issues, TMJ and hearing loss. All "above the neck" issues.
Homeopathy completely cleared the migraines, brain fog and short term memory issues. Also much of my neck problem is gone. The TMJ is intermittent as is the hearing loss. Joint pain is extreme especially in my wrists and ankles. I believe the toxins are collecting there because the heavy metal is binding them.
Regarding the weight gain. Too many months of daily Advil damaged my intestinal wall causing Leaky Gut Syndrome. My stomach began to burn when I ate anything. Some research on the internet found this website www.drmcdougall.com. I don't know this man or how legitimate he may be, but he has an article on his website about "Hope for Arthritis" which talks about leaky gut, joint pain and how diet affects both.
I know you haven't mentioned joint pain in your post but you do lament weight gain. Your thyroid probably plays a big part in that, but I am sure your diet does too. Even if you aren't overeating, what you eat has a big impact on your body.
I went on his strict vegan diet (which cost me nothing extra and he gained not a dime from it). I was amazed at the rapid improvement in my joint pain. But I was even more amazed at the weight that just started falling off. I believe my entire body was inflamed and swollen and the diet (vegan is the least inflamatory way to eat)got rid of all of it.
I don't know how much weight I lost. I don't own a set of scales, but I can now pull all my pants off without unbuttoning them. I need to go shopping!
I'm just sharing with you some things to consider. You may not have to go vegan to feel better, but definitely cut out sugar and dairy. I had to also cut out wheat and corn as I was reactive to it. I have an appointment with an Electrodermal Screener to see if she can pinpoint which foods I am allergic too so I can just avoid the necessary "trigger" foods. I will continue to avoid animal fats and proteins until I am well because it seems they do cause joint inflamation. This is important for my illness. It may not matter at all for yours, but something is making you gain weight and changing your diet is a first step.
Also, please look at more causes to your illness than just the lyme.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
nclymie-i have been where you are. the kids were toddlers in the 80s when i was in bed and they had to learn to carefully lean over the bed to kiss me without bumping the bed because the bump would cause me so much pain.
a few things make me wonder if you have a good llmd. there are many docs today saying they are llmd-but i believe-when it comes to lyme, its best to use the older, more experienced docs who have been in on it from the beginning(i like older meds too-we are more aware of the side effects-less surprises)
many of us with low thyroid use armour thyroid not synthroid. i have used it for years-i never feel a difference-but my doc tests me and says the numbers are better when i am on it so i stay on it. i think it probably is helping in some ways-but i have so many symptoms i wouldn't know which it is helping with
I AM NOT IN BED ANYMORE...AND I DID PARTICIPATE IN RAISING MY KIDS WHILE I FOUGHT LYME...PLEASE DON'T GIVE UP HOPE...
this disease is horrible-it really screws up lives-i didn't live the life i planned and i wasn't as good of a mother or wife or daughter as i wanted to be-and i am certainly not living the retirement i planned...BUT...my kids are ok. sometimes they whine and complain about things that went wrong cuz of the lyme...but kids do that no matter how perfect their life is. i believe for whatever reaseon it was our path to experience this and good stuff did come from it. as the kids get older, and start to have families of their own-and deal with life problems-they look back and realize i did the best i could and was really pretty tuff and strong considering.
so-i really think if there is any way you should try to get to one of the top llmds in nys or ct.
i took huge doses of orals for 2-3 years and then did a year of heavy duty cleansing. it got rid of my fatigue and severe foot pain. i am left with a lot of osteo arthritis that keeps getting worse and will need surgery and some neuro stuff that is tolerable and some cognitive stuff that is getting worse. (however-i also had 2 head injuries so we are in the process of trying to sort out what symptoms come from what and how to treat)
i believe-as many on here do-you really need to zap this bug(bugs) big time with abx and then when you get to a certain level you can maintain with a cetain lifestyle (diet, sauna, exercise etc) and crtain important supplements.
i just think you might really need a better doc...i can pm you numbers if you want. good luck. take care. please don't give up. there are some threads on here about the good that has come from us going thru this lyme experience. sometimes reading that stuff helps put it all in perspective. lp
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I'm sorry to hear that things seem so bleak for you now...
BUT please realize that MANY people recover from lyme disease with treatment -
they leave the board because they are busy with their lives.
Ive been on and off her for quite a few years and I have seen so many names come and go.
If you go into the general section there is two threads titled sucess stories....
maybe they will make you feel a little better.
I've been bed bound... dying in pain.... and to tired to get a shower or move.
I completely understand when you say you want your life back....
I can't do 20% of the things I used to. hardly any of things I enjoy.
I am not the me a was before I became disabled... pain and fatigue have made me a watered down version of myself. so I completely get that.
But I know I will get better... progress has been slow.... but I believe in my llmd ... and I hang on to hope...
Just realize that there is hope.... I think that when we lose hope with this disease - we are lost.
Treatment is slow for many.... but some of us like me had lyme for years before any treatment, and/or recieved inadequate treatment.
I think that if you feel ur treatment isnt going well you may want to take the above advice....
posted
NCLymie, I am so sorry for what you are going through! Your condition sounds so much like my daughter's -profound fatigue, pain, skin, hair, insomnia,and despair ( I use this word instead of depression).
I very much agree with Luvs2ride that toxicity is a big roadblock after years of treatment. The die-off from the bacteria is filled with neurotoxins, which adds to the toxic load created by everyday living and becomes overwhelming. The best my daughter has felt in her 3 year treatment process was when she did the Ritchie Shoemaker cholestyramine and actos protocol. It was amazing. However, she was still testing positive for borrelia and bartonella, and symptoms returned slowly when she stopped the protocol. Dr. Shoemaker is going to speak at the Maryland symposium next weekend. If you can't make it to that, take a look at his website www.chronicneurotoxins.com.
My daughter's doctor is trying to continue the detox with homeopathic remedies from Germany. They have been very helpful in restoring her trashed digestive system. And we did see much more reaction from oral abx after doing these.
So why is my daughter not better? There is another complication she has that you might want to research - hypercoaguability. Many chronic lyme victims develop this.
There are some excellent threads on both toxicity and hypercoaguability that you can search on this board. I have found them to be so helpful.
Stay tuned to this group! Anything having to do with lyme will make its way into print here. Best way to keep up. You will be in my prayers.
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
If I wasn't on the Zoloft, I would have burst into tears while reading your post.
Sorry, I feel waaay too crappy to post what I'd like to, but it did occur to me that the antidepressant might not be effective because the dosage is too low.
You say you're always in bed, but at least your kids always know where to find you. It's not like you're spending all evening out somewhere, sitting at a bar....
I spend all day mustering my energy to make supper, and then sometimes I feel too sick or fatigued to sit down with them.
My boys have become fine young men, although they'll probably be in therapy later because their mother missed so many of their important events. Sigh....
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Your post broke my heart, and I'm in no way an expert first hand. I did suffer with epstein barre when my children were toddlers, lasted three years! However, my daughter is infected with the Bartonella bacteria. Our LLMD believes that chronic Lyme may be attributed to that particular bacteria. This may require a different medication. It's worth being tested for.
As for Cymbalta, my daughter was put on that several months ago and has experimented with 60mg, going up to 90mg. It has worked well for her, and she went back down to 60mg Sometimes you need a second medication to partner with it or a different dose. Lyme really affects the brain and nervous system.
Weight gain is a part of the disease. Estrogen is stored in fat, so you may be estrogen dominant which can whack out thyroid, cause acne, mood problems, etc. You may want to find a good progesterone cream and apply 20mg daily. This is my opinion, of course, but you can get some good information from a website called www.johnleemd.com. He was the pioneer of bioidentical hormone replacement.
That's about the only thing I'm confident to share with you at this point, except to let you know that as a mom, I can understand your sorrow at not feeling "adequate". But...you are wonderfully, perfectly adequate! You love your children and they love you. They just don't know what to do.
Doctors are still learning..don't give up.
I'll be thinking of you each time I pass your post.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I'm so sorry that you are suffering so much. I can relate to how frustrating it feels when you are so ill and you feel like you are missing out on your life.
I don't know that I have the right answers for you, but I have some thoughts that I hope will be helpful.
First, have you read the treatment guidelines by Dr. B.? Has your doctor read them? Is your doctor a memeber of ILADS? In case you don't already know, ILADS is the medical society of health care practioners who have the weight and experience of the most experienced LLMD'S. They are a resource for health care practioner's treating lyme patients. Go to the newbie links to find the ILADS link and the treatment guidlines if you don't already know them.
Has your doctor tested and/or considered treatment for lyme co-infections? You may have something like that going on that is complicating your treatment and needs to be addressed in order for you to feel some improvement. What about yeast infection? Yeast infections can cause terrible depression and can make one feel horrible.
Dr. B's guidelines mention that if one has a treatment failure, you need to have an immune system workup in order to determine if you have some underlying immune system problem. I don't know if you are having a treatment failure at this point, since I'm not sure what issues have been addressed or even what issues should be addressed. That's where the experienced LLMD's come into play.
If it were me, I'd work with both an allopathic practioner and an alternative practioner who are both lyme literate doctor's if at all possible. I think you will get the best results and your body will deal with the toxic affect of killing these infections better. If you don't have a lyme literate ND available then try to find one who is willing to help.
If it were me, I'd work very hard to get the depression under control ASAP. You will be able to think through and plan your next steps much better. If your current doctor is not able to address the depression then you must find someone who is. I don't know that it means going to a new LLMD because I don't know your situation with the one you have but find a way to deal with that right away.
I do know that it can take some time for some of the antidepressants to take effect and also that one can have temporary symptoms while getting used to an antidepressant. I also know that you may need to try several before you get the right one. Also, some of the alternative means of dealing with depression can be very helpful.
As a person who has dealt with some of your issues, (severe weight gain, depression, being bed ridden), my heart goes out to you and I sincerely hope that you are able to get some relief from this miserable situation quickly. Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
I can only tell you, that if you have read any of my threads I am probably in the same shape as you are. Many of the same emotional concerns and issues and the devastation you are experiencing in your life. I think there are alot of people out there like this. I know now my super tik was loaded to the gills in bacterial load and severe strains. Marshall protocol is next since it is CWD- it will take a long time. I can only pray for the best and hope in the course of my travels and suffering, I can help someone else and make some good of this.
Lyme, the little rat, defies everything we know about traditional medicine: progress is not measured in minutes or hours. You must keep fighting, keep believing we will get better and have your lyme board freinds here for help. I can't help you or I or other patients recover what we have lost, but, we can ban together with friendship, knowledge, this board, the new research center to reclaim the future.
May the world give you some strenght today, hope, and a sense of that there are people who care and share your plight, take care, stay strong and send a PM when you need a friend.. Ice
Posts: 719 | From Delaware | Registered: Jan 2006
| IP: Logged |
bettyg
Unregistered
posted
Welcome NClyme to the board. Breaking this up for us neuro lymies so we cn comprehend/read. NC, please hit enter more often & double space.
To all replying, please hit your return key often and double space so we ALL can read these posts.....thanks! Betty
quote:Originally posted by NCLymie: I have many questions for you Lymies.
On the lightest note: occasionally I have a case of violent, loud hiccups that can last for up to 1/2 hour. They hurt and the only cure is to drink water and hold my breath. I wonder if the nerve in my diaphram is creating these hiccups,
since I have neuro lyme and it creates tiwches, pain, numbness and tingling in just about every other part of my body.
Also, I'm off abx right now and don't feel worse or better. I'm very discouraged.
My LLMC discovered I have hyopthyroid and I've been on synthroid .088 mg table 1x/day. Seems like a very low dose. I haven't noticed a bit of difference and I was really hoping that after 8 weeks, I'd lose one pound or have some increased energy.
She also prescribed me Lyrica because I have such dibilitating pain (especially at night) but I find that I still have to add my Morphine Sulphate, which seems to keep me up all night.She was hoping the Lyrica would help my sleep.
I'm typing this at 4:30 AM. I also took a 2mg Clonopin for siezures and it also hsould knock me out, but here I am and am still wide awake. My eyes are droppy, but my mind is going a mile a minute.
Anyone else with these difficulties? I was diagnosed three years ago.
Did the PICC line for 9 months and then 3 months of abx. Took 9 months off to get my gut back to normal and went back on abx from August until January of this year.
I just felt I wasn't getting anywhere. I feel the same as I did before I started the PICC line.
Obviously I felt horrible the whole time on the PICC line but even worse when I went on the oral meds. I slept almost 24 hours a day.
I could barely lift my head and would just listen to the TV or music. I couldn't work on my computer (my love), so when I saw me LLMD, he agreed that I was toxic and tooke me off.
Then, I had a myriad of problems including gullbladder, major Yeast of the gut and extreme exhuastion, or plain chronic fatigue and extreme weatkness from the gut difficulties.
I finally got that straighted out and they put me on Cymbalta. After one month, I finally started to feel better! Oh, I was so excited. We sent to our summer place and I rode my bike and had friends visit on my porch. Went to a movie and a party. but after 3 months, I hit the wall and I crashed. I haven't recovered since.
I went back on abx and was able to go out and watch my sons play tennis and swim team. However, after 6 monts of the abx, I got incresaingly worse.
I seemed to gain more weight (50 pounds total now) and I was even more weak and suffered through 1 one of extreme exhaustion.
Went to an endo. to see if I had problems, but he was no help. He told me to go to Duke Medical and get a full check up. I did call Duke - and guess what - they don't treat people with Lyme Disease!! Unbelievable!!
I have spent the past two months in bed. I am so depressed, I don't want ot leave my bedroom. And when I do, I don't know what to do with myself. I feel like I've become attached to my bed.
I'll go tuck my 15 year old in bed (which he doesn't exactly want at his age, but it makes me feel good.
Now my 12 year old is sepearting from me and it hurts, but it's the life process and I have to accept that.
I just hope they don't distance themselves from me because I'm so boring.
I do try my best to be vibr ant and I'm extremely involved in what they do (email teachers, create webiste for tennis team, know every grade they make, where they stand, who their friends are, what they are doing, etc.
Still scold them when they aren't pulling their weight), but I cna't remember the last time I was downstairs with them for dinner.
I told my lLMD that I was very depresed, but she doesn't want me to stop my Cymbalta until I get my pain and sleep under control. Every time I go, it's some new treatment that will pull me over until I go again in two months. I never feel positive about my treatment - I just feel as though we're putting bandaides over every symptom.
I wonder - has anyone ever been cured by this? Or do they get better and leave the post so we never hear from them. I'd love to hear from people who have gotten better.
I've lost my life, my role as a mother, wife, volunteer, worker bee, aerobics instructor.
I've lost my looks: gained 50 pounds, have horrible acne, hair falling out, nothing fits. Plus I'm extremely depressed and can't seem to get this through to my LLMD. I've been taking Cymbalta, but it's not shaking it.
I've been on antidepressants since 1982 when I contracted the disease, and Prozac was my lifeline until I stopped taking it when I got extremely ill with Lyme.
Sorry so long - I'm really at a loss. I have two kids and I feel they won't know me from before I was sick. They come and see me in the bedroom after school and their events.
I'm totally up on what they do, but I don't do anything for them or with them.
I don't cook, clean, do laundry, drive them to the moveies, watch them play tennis or swim for swim team. It's become ridiculous. My 75 year old mother does more in one day than I do in a year. I can't stand it!!
I get up and determined to take a shower and make it a good day and after the shower, I'm back in bed - pooped out. Some times I just cry and cry and cry.
I miss my life. I miss my husband and my kids and I just feel like I'm a total burden on everyone. I'm also a concern to my aging parents.
My mom and dad have been completley supportive throughout this entire ordeal and I told them, "I'll take care of you in your dotage (old age)",
but today I found out that my father has advanted-aggressive prostate cancer, and I just lost it. I want to be well for him to take care of him.
I'll do anything to fake being well when I talk to him, but at this point, I can't go to Florida and care for him and this is just not the way it's supposed to be!
See, so many issues, I could go on and on. I actually made an appointment for counseling ($100/HOUR) but forgot! because of my brain fog.
I just feel like I will never be well, never be "Grace" again. Never walk on the beach with my husband because I can't walk and can't stand the heat.....
Anyone else feel so hopeless? I want to be well. I want ot have the energy to be well, and even though I go to the best LLMD in the southeast, I'm not getting anywhere. Help!!
I'll come back with my answers later; I can't stay awake since I didn't sleep last night..sorry.
IP: Logged |
Maybe you've heard of this before, but if not, this may be useful information for your dad.
I just recently learned while watching the news about a new kind of cancer treatment that appears to be very successful. It's called Proton Radiation Therapy. The proton is shaped and sent in at the exact angle of the tumor. It apparently only affects the tumor and none of the surrounding organs or tissue. A man with prostate cancer went through this treatment and has been cured. The news went on to say that many doctors don't know about this treatment but it is available.
There are 3 places in the US that do this: -Loma Linda Univeristy Medical Center -Massachusetts General Hospital -Indiana University
The University of Florida, Jacksonville and The University of Texas-MD Anderson Cancer Center are scheduled to open up their therapy centers sometime this year.
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
| IP: Logged |
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I am looking into amalgam removal and I have read and been told by one other who had her amalgams removed (followed by chelation) that she had instant healing of her depression.
Could this be causing your depression?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
suki444
Unregistered
posted
Hi there
If you still have crushing fatigue and seem to have done considerable treatment then perhaps co-infections are an issue for you...both Bartonella and Babesia love the GI tract so they could be causing gut symptoms?
Sounds like yeast is still an issue also so maybe another course of anti fungals would help? Is your tongue white in the mornings? Raw garlic, caprylic acid and lots of probiotics can help.
Have you been checked for Helicobacter Pylori - it could be causing gut symptoms?
All I can do is suggest areas to investigate to get to the bottom of your symptoms...if your LLMD has not suggested or explored these then maybe it's time to see someone more experienced.
hang in there...it is a waiting game to get better but I do know people who have with the 'correct' antibiotics for them
posted
I was just about to post everything that Suki just said.
Treat for co-infections!!!! and yeast.
My healing thoughts are with you.
Posts: 175 | From ma. | Registered: Aug 2005
| IP: Logged |
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I can so relate in a lot of ways. Im sorry you are so sick. Many of us on here are. I hate this disease. To me, its no better than having illnesses such as MS. Thats just me though.
People do indeed get better and yes, many of them leave the group. I know I probably would if I was cured because I certainly wouldn't want to be constantly reminded of this dreaded illness.
I have 3 youngs girls: 2,8 and 11. I can so relate to worrying about your kids and how they feel about you. Spend the time with them that you can and make sure you talk to them about your illness. Its important that they understand what is going on as well.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
| IP: Logged |
BostonLyme2005
Unregistered
posted
Hi NY,
I am turning my focus to a higher power and will pray everyday. It is vital to believe but more importantly, know there is someone above us all who loves you dearly!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[bonk]](graemlins/bonk.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic