posted
Hi, everyone: I have a dilemma. I've had two negative Western blots (6 months apart) and am now waiting for my Igenex results to come in. I saw an LLMD last week who diagnosed with with Lyme encephalopathy (nausea, fatigue, dizziness, ear pain/fullness, intermittent depression and brain fog, etc. - all in my "head" so to speak, except the nausea). I have been ill for a year.
This week I went to a specialist in Boston (I'm naming no names!) at a Lyme clinic who said my symptoms and negative Western blots don't support a Lyme diagnosis.
However, I have been on antibiotics (doxy, tetra, and now Biaxin and Plaquenil) and am feeling better.
What's the general consensus? Could it be some other bacterial infection, not Bb? A co-infection? (I think I'm waiting on co-infection results, too).
Thanks for your input,
Katie
Posts: 9 | From Massachusetts | Registered: Feb 2006
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Hi Katie,
I've had some joint issues, but 90% of my symptoms are/were "in my head" also. The dizziness, head and ear pressure, blurred vision, balance issues, severe cognitive dysfunction etc. etc. etc..
Have you found a LLMD? Unfortunately, the non LLMDs took the same class I did that informed us that lyme disease consisted of joint pain (knees), a bullseye rash and with or without treatment would be gone in about two weeks.
Glad you're feeling better.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Welcome Katie!
Absolutely, joint pain can be minimal or non-existent. Coginitive, memory and vision issues were my worst symptoms. I had major fatigue too with some joint pain.
I initially had pain in my fingers/hands and was denied treatment with positive bloodwork because I didn't have swollen knees. I knew nothing of the problems getting a good doctor at that time.
When I was finally treated correctly, the joint pain went quickly but the neuro symptoms have taken longer to resolve.
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Lyme can decide to settle anywhere in your body
Sometimes it hit the hearts and thinks "I like it here and think I will stay a while" and they end up with just heart problems. I have a friend in CT where he just has -for the time being- heart involvment.
Sometimes it can spread to just the joints and then people don't have bad neuro problems just joint pain.
Some unlucky people get lyme and it wants to "see the world" and it will venture to many ares in the body.
it's different with each person and depends on how well traveled it is.
And by the way Lyme is a clinical diagnosis- get thee to a real LLMD!
This week I went to a specialist in Boston (I'm naming no names!) at a Lyme clinic who said my symptoms and negative Western blots don't support a Lyme diagnosis.
[/QB]
I'm assuming this is some ID doc [we call most of them DUCKS, as in quack quack!]?? Either way, this dr doesn't know much about Lyme, obviously.
And I will also assume these negative WB's were from QUEST or LAB CORP??
Then none of the above is anything to set your hat on!!!!
PS....The answer to your question is YES!
Welcome to Lymenet~!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
welcome to lymenet!!
very little joint pain here. exhaustion and big neuro head stx.
as stated above, get an llmd.
if you get better on atx, then you gots the lyme bug.
good luck
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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