cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
well, i went grocery shopping yesterday.
Last nite i couldnt sleep.....and today i am worn out. Its as if yesterday took everything out of me, when i got home i could barely make myself dinner.
Today i cant do anything, i feel sick and weak....i dont know if it is a herx or what.
But yes i cant do very much. Just like when i was at work and had to walk to the bathroom 20 times a day.......worn out.
I hate this roller coaster.....i had days where i felt good, i had hope.....and now forget it...i dont even know where i am.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Well I'm exhausted before I do anything...
but if I do anything the fatigue gets worse....
Like yesturday I went to the bank ....
was gone less than 30 min....
today I slept longer and still had to take a nap....
the only thing I did today was come on lymenet.
But yes doing anything.... even little things makes the fatigue worse for me.
posted
ditto for me. I had to take a nap today so I can go to my sister in laws for dinner. I went to infusion center then to Costco yesterday, where I almost abondoned my cart halfway through.
I am so exhausted, the nurse tells me its the abx. I've never been a "napper", I hate wasting time, or missing out on "my time".
My house is a mess, I can barely do anything..... I wish someone could tell me when it will get better. There are so many things I planned to do in my life, and I feel I will never be able to do them.
Do you generally get worse? Been on IV Rocephin and 1500 mg Flagyl for 2 months. Before that Doxy & tetra, 3 months. Was keeping steady, now everything is backsliding, everything coming back.
LLMD says my immune system is attacking itself, and wants to stop the current protocol in 6 weeks....try natural. I don't care, whatever works.
Sorry so long, but in answer to your question, YES (and even without physical activity).
Be Well, Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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BostonLyme2005
Unregistered
posted
I have been on Tetra 1500 mg's for over 5 months now...
When I would shovel snow, I was dead for two days..
If I do certain things, I am crucified the next few days...
Sometimes I will have a pretty good day, like even go grocery shopping, do laundry, and vacuum the house. All in one day!! (before lyme this was an easy day)
Now, if I can do all of that in a day, WOW... but I will be dead the next day, falling asleep while playing cards with the girls, I actually fell asleep on the potty, and woke up on the floor!!
I take B-12 shots with glutathione, I give them to myself and it really helps me with the fatigue. Of course, I still can't do some things for hours like you(hehe), but it does help.
Maybe you could try these shots, they hurt but they are worth it.
-------------------- Dani Posts: 102 | From Where there is no lyme | Registered: Jan 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Rob,
I can't remember if you and I have talked about this, but I'm getting a lot of additional energy from taking IM vitamin B complex.
Just a thought.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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BostonLyme2005
Unregistered
posted
Thanks for the thoughts and answers...
Its nice to learn what others are doing to help themselves live better lives while battleing this disease...
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
RIGHT before this last relapse (11/04) I finished my first sprint triathlon.
I had tingling and a feeling of swelling in my elbow that was familiar--I had this when I had a lyme relapse or reinfection in 2001. BUT I thought it was an athletic injury and after PT and eventual STEROID SHOT I could barely move from the nerve pain. It eventually went to all extremities.
I went from triathlete, excercising 4 times a week/1-2 hours a time, to COUCH POTATO.
I was still able to do some hiking or other things without much fall out until just a month ago. I went for a 30 minute stroll and threw on the wheel(pottery) and I was almost bed ridden for 3 days.
My fatigue is now MUCH worse than it has ever been. Cleaning the bathroom sent me straight to bed with buzzing burning and shaking arms.
this is the pits I tell ya.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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I could barely move from the nerve pain. It eventually went to all extremities.
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