posted
I started IV Rocephin on Monday (2grams M-F). This stuff is making me soooo much worse. I can barely take a step even with help. I'm tired a lot, drowsy too.
My dr hasn't suggested anything before to help with a possible herx.
Has anyone felt crummy as a result of rocephin? Did it clear soon? How??
Searching for help & hope...
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I found with Rocephin that drinking lots of water helped rinse it out. Rest, drink and eat!
Yes, I was herx-errific in the beginning, especially, but it was working.
I used to notice that after a little while my urine started to smell weird and could tell when that happened that I was getting rid of the stuff in my system and would feel a little better in a day or so.
Not sure that helps much but it does get better.
Hang in there, kiddo!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
WATER WATER WATER>
R will knock your socks off herx!
Also---I discovered the epsom salts baths with a peroxide rub or poured over me towards the end of the bath. THis was KEY to detoxing for me while on R. I know baths are hard with a picc, but you can do them...just be careful with your arm or get or make a sleeve.
I feel for ya.
Try your best to rest and take care of your body the best you know how.
If you get beyond tired, dizzy or have a fever or rash--time to call your LLMD!
Posts: 1950 | From New Mexico | Registered: Sep 2001
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posted
Please stick with it!! I felt the same after the first few weeks on rocephin. It was because of the herx. After a while, I couldn't wait until my next shot of iv as I knew it was working for me, not against me!!!
I also took samento-toa free during the entire course. It helped with the herxing. But start with just one drop in a full glass of water every day. Then build up.
My prayers are with you.......and just so you know how much I believe in the rocephin, I wish I was you right now. Then I had hope.
(PS...I asked my doc about the samento toa free before I took it. She said it was ok to do. Please remember to check with your doc before starting or stopping any medication).
[ 27. March 2006, 09:20 AM: Message edited by: tothepoorhouse ]
Posts: 867 | From PA | Registered: Jan 2006
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posted
I am in my 9th week of Rocephin and 1500 mg Flagly daily. I had my only herx (which I thought was a stomach flu) for three days at about week 2+.
I noticed a little improvement in the first few weeks, but in the last couple of weeks I've been straight downhill.
My neuro sx are back, with the joint pain, muscle weakness, and terrible fatigue. I have ZERO energy. Plus everything tastes like metal in my mouth, and I did the spit test this a.m. and sure I have yeast/candida.
My LLMD told me 2 weeks ago that after 6 more weeks of IV we're going to stop and work on my immune system, He says it's crap, and it needs to be strengthened to fight this disease.
I was very anxious to get the Rocephin, because I heard so many success stories. I don't know if this is all one big long herx for me or what. I did really well on the doxy.
Good luck with it, I'm hoping yours will be a success! Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Get off of it. It has been the general experience in Dr. K's practice that most people on Rocephin turn highly allergic to it within 4 weeks. Most everyone stops it. I lasted a little longer with it. I was not treated by Dr. K. at that time, but I am absolutely sure that he would have taken me off in a hurry.
There are so many other much more gentle meds available now. Why torture yourself? Nobody can get well that way. I do not call that a herx. It's a hundred other things before you could call it a herx. Who knows what you are setting in motion. If you are mercury or heavy metal toxic like most people are if you have lived on this planet for a while, that should be your first suspicion. And if you are really, really killing some bugs, a colonic would do wonders for you. It's the neurotoxins that make you feel so sick - they are making you sick, your liver congested, plus a few other things.
Don's suffer like that. You cannot possible be healing that way.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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JimBoB
Unregistered
posted
YES, by all means do not stay on it or any abx TOO long. They CAN be detrimental to your health.
Usually about 4 weeks at a time for any abx. And change them up IF you MUST be on them.
You didn't say if you were clearing out your lymph system or not?.
Red Root is good for clearing out your whole Lymph system. Milk Thistle is good for the liver, which is part of the Lymph system. Also IF you are taking abx, you should be taking Acidophilus either in pill form or LOTS of good Yogurt.
Our systems were NOT designed for synthetic materials. Get as MUCH natural things that do good into it as possible.
Take care of yourself, no one else will.
When most people are young they think they are invincible and literally ruin their bodies and minds with drugs and improper foods.
It is only when we get older that we realize we ARE going to die, and start caring for our bodies in a more appropriate way.
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I think it needs to be said again that, for the most part, those of us who post on Lymenet are NOT doctors or medical professionals.
In my opinion, treatment (or changes in treatment) should be done under the care of a doctor who is knowledgable both about Lyme (a LLMD) and about our individual cases.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by GiGi: Get off of it.
Are you sure you're qualified to treat someone else's patient?
A gentle suggestion (if that's the way you feel about it) or offering what you believe to be effective and has worked for you, is great!
And thank you Andie! (for saying what you did in your last post, in a calmer more rational way than I could)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
I am on my 5 1/2 month of Rocephin. My body loves it!!! Unfortunately or fortunately, (I'm not sure which yet) I have not herxed badly on it nor have I made much improvement. Mind you, I have this bad! My legs no longer work and my hands have trouble too, so it might just take a while for me. I am an herbalist by trade and never thought that I would go this route, but my body absolutely loves this stuff! I would suggest talking to your LLMD and after ascertaining that you're not allergic to the stuff, just hanging in there with it and do lots of detox therapies. Don't forget the water with lemon juice and make sure to eat wholesome foods. Of course tons of probiotics and milk thistle, red root & turmeric have all been life savers for me. Good luck!
Posts: 85 | From Eugene | Registered: Jun 2005
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi,Sounds like a herx to me!!!!!!!!!!!!!
Watch that gallblader!!!!!!!!
MADDOG
Posts: 4083 | From Ohio | Registered: Oct 2000
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posted
I had herx's from hell on Rocephin, but it is the drug that saved my life and once i got thru the herx's it is the one that has given me the most improvement.
I was on it 17 months and then for another 3 months and if it weren't for those pesky gallstones (twice) i would much prefer to be on that than the IV Zith I'm on now. Got much more results, much quicker on Rocephin.
Good luck, I hope you improve very soon.
Posts: 56 | From RI | Registered: Aug 2003
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JimBoB
Unregistered
posted
I have the tendency to agree more and more with GiGi, the more I learn about my body AND about this Lyme thing.
You MIGHT take a peek at this URL that I found on another thread a few minutes ago. IF you are able to comprehend it, it just might open your eyes.
MANY of the symptoms I have supposedly from Lyme, COULD be from Mercury Poisoning.
This may be one time, I wished I had enough money to actually see an expensive doctor. My duck is a great pill pusher.
I will just have to do the best I can. BUT I am STILL in AWE, when I read that someone feels like they are dying from an antibiotic and STILL keep on taking it.
I am STILL wondering, HOW something that is destroying parts of the body, can in actual reality be considered "helpful" to your body.
I personally would RUN, not walk away from things that MAKE me feel bad.
Sorry, if I can't comprehend that mentality, but I just can't. Especially when there are SOooo many alternatives out there that do as good OR better.
I have had LOTS of pain in my 64+ years, but I NEVER like it. It just isn't fun.
I have NOT treated my own body like I should through MOST of my life, but I am sure trying to do better now. And it is NOT easy to change old habits. It would be best if we did not get into those bad habits to begin with.
posted
Im lucky I lived thru it. Realy. But, I guess it helps alot of people, maybe even me to some extent... It could be that it was too fast a die off for me without my knowing how to detox. And, I have absolutely no support system. Actually, with 2 teenagers and two exhusbands, I have an antisupport network
It also caused an insane ramping up of systemic candida for me, which also explains some things as there is overlap between what you perceive as dieoff and what is caused by candida. Adressing this helped ALOT even while I was still on Rocephin.
Just not eating sugar and white flour was not enough, evidently.
I went real restrictive the first few weeks. Soaked almonds, almond butter on brown rice crackers, lots of green veggies, eggs, quinoa, unsweetened soymilk with stevia and carob powder (hot chocolate, pretty much), coconut oil right off the spoon. Thats about it. Oh, I think I may have started chlorella then, too.
I felt like I was starving, the candida screamed and caused cravings.( But, I was realy eating enough, you can calculate this out) The cravings went away, and my crazy symptoms were reduced dramatically. I need to do it again I think!!
Realy, realy, realy watch your diet. And start taking LOTS of chlorella.
Detox the killed bugs that need to be removed
Start anticandida big time.
My line ended up being pulled for allergic reaction to the adhesives and plastics that cover the insertion site, it was in for about 2 months.
Posts: 222 | From Santa Cruz Mountains, CA USA | Registered: Nov 2004
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
I responded to SAK in the way I did because she has told me about her personal situation in private.
That does not mean I would not respond likewise to anyone saying "Rocephin is killing me!" , simply because anything that feels that bad, can't possibly be right or without leaving something damaging behind. Every biochemical reaction brings forth another reaction in the body - at any level.
We will probably never know what, if any, that "damage" may be, or why this severe reaction, but knowing how many have gone through that (and Rocephin) who are still not totally well, makes one think.
I am aware from my own experience that if sulfa antibiotics were present in the body, they had to be treated and released first before any sulfur containing nutrients or chelators could be effective. I will leave it at that.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
I know I wont do Rocephin again. My doctor has actually suggested it ! Ive told her no way, Im lucky I survived the first time and Im absolutely not doing it again. I have a ton of emotional scars from teh experience. It may well have killed some lyme bugs....its so hard tell
Posts: 222 | From Santa Cruz Mountains, CA USA | Registered: Nov 2004
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JimBoB
Unregistered
posted
Just another case of thinking for yourself. Doctors are people too, and make many mistakes. Remember, they are "practicing" on YOU.
Our bodies were designed with the pain feature so we would get enough sense to quit doing something that was harmful to us. But unfortunately some people never learn.
Would you keep putting your hand in a fire IF it kept burning and hurting you? How about slamming a hammer on your big toe? Or maybe if it hurt so bad on your right foot, you might try it on your left foot to see IF maybe the hurt on the right foot was just a fluke???
Or maybe you would use a one pound hammer instead of a two pound hammer?
I have suffered MUCH pain in my life. Some by accident, some out of stupidity, some caused by me, some caused by others.
But you know, I always wondered WHY would I want to actually PAY someone to do it to me??? I am sure many would be happy to do it to me for free!
THINK about those paragraphs for awhile.
THAT is what Mountainmomma is talking about with her doctor. But SHE is smart enough to say NO to that doctor, or is it a duck? JUST because a person is a specialist doesn't mean they are NOT a duck, either.
Take control, be firm. Sure they won't like it, but so what. WHO is suffering, YOU or THEM?
There ARE much better ways to take care of this illness.
posted
My guess is that borrelia like all other bacteria I've read about not only resist abx treatment they fight back with their own toxic arsenal. I know what I went through was much more than bacteria die off.
SAK anyone who tells you to stick with it and you'll be fine is selling you a bill of goods. It's possible but many other less pleasant possibilities exist as have been posted.
I strongly urge you to learn more about silver and it's medicinal properties. It's much safer and if it doesn't work completely, abx can then be thrown in for a proven synergistic effect.
From the company who did the research on MSP.
Although, DEDI had developed a rough form of this product in 1993, which revealed the potential effectiveness; without the help of Dr. Willie Burgdorfer of the National Institute of Health (NIH), the product would never have been developed to its highest effectiveness.
With the information gained from Dr. Burgdorfer; DEDI redesigned the mineral product to Dr. Burgdorfer's specifications, which now brought forth a product which, at varying strengths, was deadly against bacteria, viral and fungal infections.
The laboratory test results, animal test results and human trial results, revealed the following regarding infectious diseases:
1. Very effective against AIDS/HIV 2. Very effective against Lyme Disease.......
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