posted
I am curious what form of magnesium the people that say magnesium saved them are taking. I have always taken citrate & orotate but can't take too much without bowel intolerance (diarrhea). I can take about 800 mg daily. It still hasn't helped my severe leg spasms and hoping there is another form that people think works.
Posts: 85 | From Eugene | Registered: Jun 2005
| IP: Logged |
posted
My doc recommends a product called "Peter Gillham's Natural Vitality Natural Calm". It is a powder which is dissolved in boiling water to which you add cool water. She said that it is the best absorbed format.
I never notice any of these things making a difference, so I can't speak to that.
At least as of a couple months ago, the best price was at Vitacost, but it's always worth a search to see if you can do better.
-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I have had a real bad problem with leg cramps. I had read that Glycinate was the best form, most absorbable and it did help some with the cramps. Then my LLMD also recommended the Calm that Suzanne mentioned above. I use both of them now and I still was having problems with some cramping.
I have read up on Marshall's Protocol and while I do not use it at this time, there is one thing that I know to be very true of me. I have very high Ds, second highest on the board in the early days, and if you ascribe to what he says, this can cause hypercalcemia. I did notice that when I stopped taking fish oil, vitamin D and calcium it helped my leg cramps quite a bit too. If I even have a couple of eggs or drink a whole glass of milk, I can expect to be running around the house in the middle of the night after being jolted out of bed by leg cramps. So, I avoid anything with D in it.
Still, having a problem with leg cramps to an extent, I did a little research. I can't remember what words exactly I searched, but it had to do with to much 1,25-D, and 25-D, hypercalcemia, and maybe some other words along that line. See to much D can cause calcium to leach back into soft muscle tissue where it doesn't belong, actually calcifing them, causing leg cramps.
What it recommended somewhere, actually several places was selenium and vitamin E, not in massive doses, but together. I gave it a try and the leg cramps have settled down to almost nothing at all. Interesting thing is that when I do get a cramp it is a different place then where it was before. Before it ws down around the tendons of my ankles and then went upwards, now it is more just in the calf muscle itself and very mild, don't know what that means, if it means anything at all.
Also some very stiff spots in my upper arm muscles seems to be softening up.
I wish I had saved the info I had found, sorry, and I hope with a little research you will be able to find it if you are interested.
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Like everything else with this DD there is no "best" or "works for everyone".
I have heard Mg malate, Mag - SR.I take both of these and recently statrted Mg Sulfate IM injections weekly. They all help.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
posted
i had good, but nonetheless some scary results with magnesium chloride.
below is a list of magnesium compounds.
Forms of Mg followed by percentage of magnesium as it occurs in a given form. NOTE: ``---`` = magnesium
---peroxide---43.17 http://www.earthsbounty.com ---phosphate dibasic ---20.21 --- `` tribasic---27.74 ---pyrophosphate---21.84 ---salicycylate---8.14 ---sulfate---20.19 ---citrate---16.16 ---mandelate---7.44 this might be edible, even though merk index didn't say so. ---lactate---12.01 ---oxide---60.30 a whopping amount of Mg for cheap ---acetate---17.07 ---acetylsalicylate---6.35 ---benzoic acid---9.12 ---chloride---25.53 ---hydroxide---41.68
posted
I take Magnesium Plus from immunesuppot.com It is magnesium glycinate/lysinate chelate. I can take more of it without it bothering my stomach.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
| IP: Logged |
posted
I think magnesium, at least in oral form, does not stay in the body long, so to see a difference in cramping and twitching, it has to be taken multiple times during the day, which can be a little difficult to keep it away from abx.
Also, the ratio of calcium and magnesium is important. In healthy people, they recommend 2 to 1, but I found that to be too much calcium, and am now down to a 1 to 1 ratio, and it helped with the cramps immediately.
In the past it wasn't such a big deal to me, but now with the muscle wasting, magnesium has become VERY important. So, it might have something to do with the stage or presentation of your particular symptoms as to whether magnesium is needed in larger quantities. And how much relief you get.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
This is all good info- thank you all. What I want to be clear on, is that I don't have muscle weakness or cramps, but severe leg spasms that actually can catapult me out of my wheelchair.
They happen about 12 -15 hours a day, every 10 seconds and can be very distracting to life! Trying to work can be ridiculous as my legs will bang into the top of my desk.
The neurologist wants to put me on anti seizure drugs but I have to work and do not want to go around like a zombie so I am always hoping for something that will help.
Eating marijuana helps alot, but once again, I have to work and need to be able to function.
Posts: 85 | From Eugene | Registered: Jun 2005
| IP: Logged |
WildCondor
Unregistered
posted
This is a very common Lyme disease symptom, and it will get worse when you are herxing.
To take care of the twitching, our bodies need magnesium. You should take MAG-TAB SR daily, not cal/mag supplements because they are not absorbed. I use magnesium sulfate injections 1 gram 3x weekly and it stops my twitching completely. You need a prescription for the injections, I do them myself.
IP: Logged |
David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Like Wild Condor, I use magnesium sulfate injections. They pretty much get rid of twitches and muscle cramping. I could never take enough orally to do the job.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I have tried every Mag out there, used to work at a Health food store (good discount) but all affected my bowels. Even did Mag shots (ouch) for awhile. Then heard about MAG-TAB SR but cound't take them because it has proplyene glycol (a chemical I am allergic to, makes me dizzy)
The best Mag (I think) is Natual Calm. I love this stuff, doesn;t affect my bowels. My body seems to really absorb it. Other lymies I know said it is better also.
Everyone should try it once.
Posts: 315 | From USA | Registered: May 2005
| IP: Logged |
posted
at least two studies on medline, and some infromation on some commericial site for the processing of borrelial antigens,used magnesium chloride in one to two of the last steps of their processing techniques; phosphate-buffered saline solution(PBS) was also used in these last processing steps. the PBS is a chemical used in research environments, and is not meant for human consumption.
my choice of the magnesium chloride was based soley on this. i feel that teh magnesium chloride did eventually help over time, despite a very scary increase in symptoms relating to the peripheral nervous system, but NOT the CNS.
i found magnesium citrate to help with an increase in productivity, in that i get more things done, and that, without the this form of magnesium would not have been done. hypothetically, i'd attribute this effect to increased ATP production.
when initially taken,the magnesium sulfate form(oral epsom salt) tended to give me intense symptoms of some kind in my upper torso, shoulder girdle (nerves(?/muscle(s), a sense of muscular weakness in arms/shouldr girdle muscles, and to an increased coughing, all of which diminished over week(s) in frequency and intensity. this yrs. ago, so its difficult to recount the effects.
while a magnesium thiosulfate solution with 1-2 other ingredients in it didn't seem to do anythng that i could sense, this lack of effect could due to the week-long period over which i did only 10 drops twice a day, per instructions on the bottle.
so i really can't say what, if anything, this did. using magnesium thiosulfate, one doc claimed to have actually cleared the plaque off walls of the arterial tree--actually reverse atherosclosis, attributing this effect to the catabolic properties of the magnesium, sulfur, and oxygen comprising the mag.thiosulfate, and viewing atherosclerosis as an anabolic(construction/"build-up") process.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/