Thank you for taking the time to be Counted! Thank you for spreading the Word! Keep spreading the Word! Still Plenty of Time to be Counted!
Together We CAN Make a Difference!
The results and data of this Petition are available to everyone and their respective States.
April 1, 2006 Count = 1051 United States = 997 Outstide US = 54
AK 0 AL 9 AR 3 AZ 30 CA 115 CO 6 CT 38 DC 3 DE 3 FL 77 GA 7 HI 0 IA 6 ID 4 IL 12 IN 8 KS 2 KY 4 LA 8 MA 31 MD 25 ME 7 MI 24 MN 12 MO 19 MS 1 MT 1 NC 50 ND 2 NE 0 NH 13 NJ 32 NM 2 NV 0 NY 53 OH 8 OK 8 OR 14 PA 91 RI 7 SC 7 SD 1 TN 24 TX 121 UT 2 VA 42 VT 6 WA 36 WI 22 WV 1
9 Countries Count = 54 Signatures
2 AU 15 CA 1 CH 1 DE 2 DK 18 FR 13 GB 1 IT 1 NL 54
Keep Spreading the Word ... Let's all get counted ... We Deserve to be Counted!
Feel free to add link to your website, or forward to other Lyme Groups.
We are still missing a few states (Alaska, Hawaii, Nebraska and Nevada), so if you know of folks or support leaders in those areas ... please forward this to them.
By the way .... GREAT JOB TEXAS! Texans added over 84 votes since February 26th! Way to go Texas!!!
Also a special Thanks to Melissa Kaplan for adding a link to her site, and to all of you who have helped to spread the word!
Thanks for signing the petition. I created it at 4 am in the morning, and did it because I am just so mad at how we continually get "dis"-counted!
I really had no expectations on it actually being something folks would sign. I was shocked to see so many sign up so quickly. So now I feel I need everyone's help to make it successful. I want to slam them with numbers and stories and just get them to pay attention to the distress we are going through as a patient population.
I take time to read through each story, and it just breaks my heart. Story after story ... the lack of proper medical care, the years of suffering, and the debilitating effects on peoples lives, is just so very unacceptable.
My main reason for responding to you is the note you posted at the end of your message, where you talked about it taking 5 + years to get SSDI.
I too went through nearly 3 years ... living on $3.00 a day for food, no medical, and at times came very close to being homeless. All this while being so very very severely sick.
The disabilty process is so incredibly inhumane and broken.
It was after going through that process that I made a decision that I wanted to a difference in other peoples lives. To some how find a way to make this path easier for the next person.
I really do believe ... as we find each other and unite with each other ... we will make a difference.
Again ... I am so very sorry you were put through all of that unnecessary inhumane treatment. However, with that step behind you, my hope is now you will be able to create an optimum healing environoment for yourself. You deserve it, and no you did not deserve to have to go through 5 years of additional stress.
My very best to you!
Alexis
Posts: 38 | From Seattle, WA | Registered: Oct 2001
| IP: Logged |
bettyg
Unregistered
posted
Alexis, I checked out the petition again looking for my name; didn't see it so signed up! I hope I did it right.
Yes, no lymie deserves to be put thru the dog and pony show of 5 years to be approved for SSDI benefits!
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[woohoo]](graemlins/woohoo.gif)
![[kiss]](graemlins/kissing.gif)
![[bonk]](graemlins/bonk.gif)
![[Frown]](frown.gif)
![[confused]](graemlins/confused.gif)
Printer-friendly view of this topic