Had Lyme for 15 years and just started getting more pronounced jerking of muscles. Had had real dizziness and now have had an MRI as requested by my doctor, not Lyme doc. The results came back saying that I had "multiple foci of hyperintensity in the white matter of the cerebral hemishperes and that most are located near the white matter junction" and then goes on to say that myelin aging disease should be considered. Is this Lyme, MS? Has anyone heard of this? Thanks..I'm kind of freaking out.
Posts: 298 | From los angeles | Registered: Mar 2006
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posted
The symptoms are more cosistent with Lyme. But the twitching of the nerves has incesed so much that it makes me very uneasy. If it is Lyme will the "aggressive treatment" be in the form of intervenous antibiotic therapy?
Posts: 298 | From los angeles | Registered: Mar 2006
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posted
Thank you very much. The intial report said "foci of hyperintensity in the cerebral hemishperic ehite matter" and goes on to check for demyelinating disease...so as you can imagine I have spent the better part of 24 hrs panicked. Thank you and it does make me feel a bit better. Does anyone know what the treatment is for this as far as Lyme goes?
Posts: 298 | From los angeles | Registered: Mar 2006
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posted
Hi- I just had an MRI done about 3 weeks ago..I was trying to finally find a reason for my constant headaches/migraines..My report showed the same small lesions in the white matter "noted small subcortical punctuate T2 hyperintensities of the white matter...blah. blah...chronic demylinating disorder..
I was freaked out too..followed up with a neurologist who didn't seem too concerned-said it was likely the lyme and/or migraines. My LD wasn't concerned either, so I am trying not to be. Neurologist is sending me for another MRI in July to see if anything has changed. Never did find out why I get all the headaches either... Natalie
Posts: 37 | From NJ | Registered: Feb 2006
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posted
I also have lesions from Lyme/Bart/Babs. Let them call it MS, then you could get ins to pay for IVIG treatments. It will help your immune system and reduce the brain inflammation.
Also check into LDN.org, B1, B12 injections. Others use BVT along with abx. Just don't depend on abx to get you through this, you need to support the nerve repain process
Posts: 315 | From USA | Registered: May 2005
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posted
I wanted to thank you all for responding. You are awesome people. I really appreciate it. Seeing neuro tomorrow. Hope everyone feels better
Posts: 298 | From los angeles | Registered: Mar 2006
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Check HERE for more information about MRI, SPECT, and PET scanning.
HTH, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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bettyg
Unregistered
posted
Shaz, wonderful site info you provided.
Please copy/paste this info to TREEPATROL'S NEWBIE LINKS; and ask that he add to his links.
Would be a great addition to another site I sent him the other day on MRIs/PET/CT scans. Thanks so much.
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posted
My MRI indicates scattered punctate T2 hyperintense foci are present by lateral frontal centrum semiovale and corona radiata, most consistent with microvascular change. No evidence of mass or stroke or extra-axial hemorrage. No mass.
Lyme or something else, vasculitis?
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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Alv
Unregistered
posted
My son has the same thing .He has neurolyme and BABS and BART.
He is in the treatment with antibiotics.Very common with lyme .
Was told from the Dr that will have improvement on Antibiotics in the future.well the MRI came up like that after 7 month of antibiotics .Imagine what was before that!
Treat it .I am going to ask for B12 shoots.I get them and is helping.I will ask if he can have them too.
tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
lalyme,
May I ask if your MRI was done with or without contrast? I had one done that was supposed to be w/ and w/out but the radiologist didn't sign off on the infection and wasn't present at the time so I had to get it done only w/out. It showed nothing but I'm thinking it was a waste of my time having it done w/out contrast.
Posts: 2541 | From Northeast | Registered: Jan 2008
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by laura j: lalyme,
It showed nothing but I'm thinking it was a waste of my time having it done w/out contrast.
Laura, I wouldn't say this is so.
I have had two done. The first was without contrast and showed multiple lesions.
The second - a year later -- was done both with and without contrast.
Lesions were evident whether there was contrast or not.
So, I don't know if I would repeat it just because it was done without contrast. Unless my LLMD wanted me to, of course.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
LA...
Those lessions are common with Lyme. They can be diagnosed as MS. Years ago they weren't considered to be anything but MS related. But now SOME folks know better.
Also note.. there should be NO difference in the MRI... with or without contrast dye.
I have several folks in my family highly allergic to the dye (stopped breathing) and chose NOT to risk it.
I was told by head of hospital radiology that the ONLY reason they use contrast dye is because it is easier for the puppy mill docs.. and it is used to run the reports by them faster to make more $$ for the hospital facility.
In other words.. you ABSOLUTELY need NO dye. It is for THEIR benefit only (making it less time to read the MRI's).
And with the major problems they are finding related to that dye now.. and the law suits over it... I would NOT risk it, ever.
Now.. they may be VERY pushy and VERY nasty about it... so do be warned.
I had one guy argue with me (foolish him) and he go so mad when I just kept saying "NO" dye... that he went in the back office and called my doctor to get approval that way.. and was trying to go around my wishes so he could use the dye.
After he made the call he came out all puffed up and proud of himself for pulling a fast one... and was telling me he HAD to use dye cause my doctor ORDERED it.
I told him to go fly a kite and called the hospital admin and told them while I was there what he did.
They removed him and got someone else in there who did it without the dye... so be warned they can be very insistant and nasty too.
Also note-
With proper antibiotic treatment... IV and/or orals (each person is different- so are the meds they react to different)... the lessions I had went away.
posted
I had a doc tell me w or w/o contrast depicts different cuts cuf the picture. Personally myself give me the hi resolution w/o I believe smaller cuts. Just pray it gets all all well in the long run and a proper doagnosis is made....
Thanks for the posts it's a little reassurung for some of my aliments.
-------------------- Raymond Leave the gun, take the cannolis Posts: 214 | From Rhode Island | Registered: Nov 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I also refused contrast on my MRI's. My gut told me that it didn't seem the thing to do. One very nice Tech told me that it wasn't necessary because they got really good pictures of my brain w/o it.
Ultimately, the decision is uniquely our own. I prefer less poison.
Feelfit Posts: 3975 | From usa | Registered: Aug 2007
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Too many people think that just because a doc orders a test you have to have it done. It is still your choice.
Some things are worth standing up to the docs about and sometimes it is easier to just go with the flow.
The way I look at it you are paying the doc to give you advice. It is up to you whether you take that advice. There might be a financial reason to either postpone or delay a test or you might want to research alternatives or as in your case a potential allergic reaction is a very serious consideration.
The problem with MRI's is that neurologists try to interpret them to fit whatever diagnosis they have come up with. Hubby has 4 or 5 lesions. MRI reports have said they were due to everything from migraines (has never had one) to microvascular disease to Lyme -- a couple even concluded that overall his MRI was normal due to aging (he is only 53).
In total hubby has had I think 10 MRI's over the last 7 years. He had at least 3 or 4 during the first 2 years when nonone had a clue what was wrong with him.
At least 75% of the 20 or so neuros who have seen those reports end up putting in their office notes that MRI's were normal. If I am in a grumpy mood (now that HIPAA is in effect) I make them go back and change their office notes to include the fact that the MRI's were not "normal" -- that white matter lesions were present.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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