SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Having attended the Hope to Heal Lyme conference this past weekend, there was lots of good information shared. I just published my 22 pages of notes from the conference today. To find them:
posted
Scott, this is great. I look foward to reading through this tonight.
Thanks.
Posts: 263 | From UK | Registered: Mar 2006
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dontlikeliver
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posted
Excellent job, Scott!! I am just reading your notes now. Very comprehensive. I wish I could've gone, but I'm too far away, and two long-haul return flights to the US were just not possible in one month (going to see LLMD in 2 weeks).
Do you happen to have any insight into what the DNA being re-written by the Lyme means to us? Does it mean no matter how many abx or other tx we take, it will not matter as we are now effectively Borrelia-mutants?
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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5dana8
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posted
Thanks Scott
Great job with your notes.
I ordered the DVD but this was a treat to hear ahead of time the overview.
thanks for taking the time and the effort I really appreciate it
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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SForsgren
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posted
The bugs incorporating into your DNA is likely a topic that will require more study. They did not mention much more beyond that. I would be interested as well if anyone else has further insights.
What they did say is that even with this possibility, people get well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Thanks so much for the time and effort you put into this.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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SForsgren
Frequent Contributor (1K+ posts)
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posted
Very welcome. I am glad that the information is useful. Information is power and I really do think we improve our odds by understanding and being our own healthcare advocates. Be well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Good work Scott, extremely generos to the community of you to do this for us.
Burrittos, personally I'd be thrilled if they wer not on a Mx menu. Here there are a dozen taco wagons and tacorias that roll circles around the established restaraunts.
God forbid they could have had *WRAPS* on the menu (I have seen the on menus). What a blight on white peoples culinary accumen. Sorry, WRAPS have irritated me long before lyme. They are TORTILLA"S people!!
quai
-------------------- "In spite of the ever increasing cost of living, it remains quite popular" S. Shackel Posts: 87 | From walla walla wa | Registered: Dec 2005
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Did Dr K mention anything about yogurt, or homemade yogurt? There seems to be a wide difference of opinion on this. I was wondering what he thought about it.
Posts: 132 | Registered: Jul 2005
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posted
This is a fabulous resource, Scott. Extremely helpful information which I will bring to my doctor. Thank you for such a thorough and clear set of notes.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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Dave6002
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Member # 9064
posted
It's a great job.
I never heard of a bacterial DNA could integrated into human DNA genome, cause it's too big, in the case of Bb, it is clos to 1 million base pairs.
So the integration may be just partial DNA, wich may not contribute a lot to its biology.
Posts: 1078 | From Fairland | Registered: Apr 2006
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Dave6002
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posted
One thing interesting in a interview is that the tick bite on the head is the most serious.
Because it is the closest to the brain. If the bite is on the toe, I bet it is the least serious. Why, too far away from the brain.
Bbs appear to first affect tissues or organs that are closest to the bites, like EM. Some studies suggested this.
One of my first symptom is muscle pain in my right arm. I speculated that the bite was on my right arm. The pain is still there. Thus the pain may not be neurological, rather may be resulted from Bb infections of the muscle cells. A shot directly on the muscle may kill Bb there easier.
So I guess the movement (or more accurate, the pathological establishment) of Bbs in the body probably is very slow.
What this mean for Lyme therapy? The Bb loads may decrease gradiently from the bite site.
So for IM injection, the inction site if is closer to the biting site may gives better results.
Posts: 1078 | From Fairland | Registered: Apr 2006
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posted
Wow Scott, I don't know how you do it, many thanks. You've are a great asset to our Lyme community. I got detoured at the link for film donations and went over to paypal to send one. I'll head back now to read some more. hats
Posts: 956 | From MA | Registered: Nov 2004
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Scott,
You've done such a wonderful thing -- taking notes and ordering them so clearly and eloquently.
Thank you SO much for this and for everything you do.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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robi
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Member # 5547
posted
quote:Originally posted by Dave6002: One thing interesting in a interview is that the tick bite on the head is the most serious.
Because it is the closest to the brain. If the bite is on the toe, I bet it is the least serious. Why, too far away from the brain.
I was at the conference......... misssed this bit of info .... but then my bite was on the head .... guess hts proves the point.
Any other's here bit on the head?
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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5dana8
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posted
Hi Scott
I didn't read anything in your notes and wondered
if any of the speakers had anything to say about
fatigue? Any new information on this topic?
Thanks dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Nothing specific. I think it is just assumed most of us have it, and it improves with treatment. No specific treatments for fatigue that I recall.
Aside from the conference, I have read some good things about Corvalen of late.
Be well
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Reading thru you notes, it is amazing that new information comes so slowly. Am always hoping for a breakthru....but it never happens. It is just slow, almost glacial progress against this disease.
I guess the good news is that it can be controlled.
Thanks again!!! Ernie
Posts: 546 | From Cascadia subduction zone | Registered: Mar 2002
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Reading thru you notes, it is amazing that new information comes so slowly. Am always hoping for a breakthru....but it never happens. It is just slow, almost glacial progress against this disease.
I guess the good news is that it can be controlled.
Thanks again!!! Ernie
Posts: 546 | From Cascadia subduction zone | Registered: Mar 2002
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posted
thank you for posting this, Scott. It took a lot of work, and I know it's helped me decide to buy the DVD's.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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posted
thank you for posting this, Scott. It took a lot of work, and I know it's helped me decide to buy the DVD's.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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SForsgren
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posted
All very welcome. I am glad that the notes are proving to be of some value. Be well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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valymemom
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posted
Scott
I just spent time reading and copying info since I could not be there this year. Thank you for all this info!
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
Wow, Scott! What a wonderful job! I am so sorry that I didn't get to meet you and others on lymenet while there. There was so much going on and so little time. If you come next year, I will give you some restaurant suggestions! I'm glad you are doing well; and after this conference, I have more confidence that my daughter may get back on top of this.
Thank you for your very valuable contribution to this forum.
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by SForsgren: Having attended the Hope to Heal Lyme conference this past weekend, there was lots of good information shared. I just published my 22 pages of notes from the conference today. To find them:
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
You are a shining example of what being pro-active is all about! Excellent work! It's so nice to see other sick patients working hard to gain information and help everybody else out in the process. Thank you so much! We can all do this, it just takes determination, patience, open mindedness and learning! We all HAVE TO arm ourselves with information to beat this disease. Keep up the great work Scott!
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Sorry for the typo. I'll get it updated next week. I am away at a Dr. K conference learning ART this weekend and don't have the source file here. Be well
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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mbroderick
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Member # 5220
posted
Scott,
You did a fantastic job on the Lyme Conference notes! This is very much appreciated by all, I'm sure. In fact, Gail (pinchotgail) said that there was a guy in front of her with a laptop - typing the entire time! Glad that it was you!!!! You've really done a great service to the Lyme community with the information that you've gathered and posted on your website, as well.
Thanks!!!
Posts: 2097 | From PA | Registered: Jan 2004
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posted
Scott, Thank you for writing this up, and posting it for all of us to read. It's a very helpful resource. I'm going to print this one out and save it as a resource!
I'm sure many of us have been interested in knowing what happened at the conference. Now we can read this and share it with others.
!!!!EXCELLENT JOB!!!! !!!!!APPLAUSE!!!!!
Posts: 873 | From WA | Registered: Dec 2005
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lymemomtooo
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posted
Scott, Thank you very much..It is great...lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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posted
Thank you for sharing your inforamtion with us. I bought the DVD's after reading your notes.
I refer to your website often, thank you for doing it.
Posts: 243 | From chicago | Registered: Dec 2005
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klutzo
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Member # 5701
posted
I would also like to thank you for posting your notes, I think.
They were very bad news for me, since I am allergic to all but one ABX which does not work on Borrelia, and I have life-threatening reactions to all quinine derivatives.
The consensus of the LLMD's there seemed to be that herbals, which is what I am using, are a death sentence. They did not actually say that, but they did say long-term ABX are an absolute necessity, and that not assuming and treating for multiple coinfections will result in no recovery, which IMO, amounts to the same thing.
It's always better to know the score though, so one can make informed decisions.
Thanks again for all your hard work.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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robi
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posted
klutzo..... these guys are MD's thats what they know is ABX. And yes it probably is better if you can take the abx,BUT.......... there are others that have gotten better without ABX.
Rife, herbs, salt/c ...... you have to look into some of these. DO NOT LOSE HOPE. And I do not believe I am giving false hope here either.
Start reading otherlyme groups and see what folks are doing. They are getting better. ....
Hugs, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
Thanks very much for the notes, Scott. I printed them out and am in the process of reading them.
Klutzo...Please try rife.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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SForsgren
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Member # 7686
posted
To be very clear, I agree with what other's posted here. This conference was more conventional with a focus on ABX. These are not the only options. Though, often they are needed as part of a Lyme treatment program. Rife, KMT, lots of different herbs, etc. are all useful for many.
These notes should not be taken as an indication that I believe this is the only or the correct approach. There are many different opinions and options.
Those reading my site know that I do many things not discussed here and am also a very big supporter of Dr. K but those concepts are not mentioned in these notes as he was not involved in this event. I have other notes on the site of his conference as well.
All presented for each person to be informed and decide their path to healing....
Be well
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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SForsgren
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posted
Yes, you are correct. There is an error in the bands listed. I will updated that as soon as I return from travel.
The correct information is listed in Dr. B's protocol as:
Western blots are reported by showing which bands are reactive. 41KD bands appear the earliest but can cross react with other spirochetes. The 18KD, 23-25KD (Osp C), 31KD (Osp A), 34KD (Osp B), 37KD, 39KD, 83KD and the 93KD bands are the species-specific ones, but appear later or may not appear at all.
Dr. J lists the bands as: 18 23 30 31 34 37 39 83 93
Thank you for pointing this out. I make every effort to ensure the information is accurate and appreciate your catching this typo. Be well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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BostonLyme2005
Unregistered
posted
Hi,
Thank you Scott, for your never ending, and devoted convictions to not only bettering your own health, but those of all of us as well!
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SForsgren
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posted
Very welcome. Current version has the one typo in the WB band listing corrected as well. Be well.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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WildCondor
Unregistered
posted
back to the top!
This is genious! Scott gets 5 gold stars and a panini for all your hard work!
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treepatrol
Honored Contributor (10K+ posts)
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posted
quote:Originally posted by SForsgren: Sorry for the typo. I'll get it updated next week. I am away at a Dr. K conference learning ART this weekend and don't have the source file here. Be well
Okay . You did a good job.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
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