posted
Just wandering what to do in this situation.....My 4 year old dd who has been treated for lyme and bart now for almost two years is symptom free now except for one symptom. She still is having some popping and cracking in shoulder joints and arms and this does not seem to be clearing up. It is not severe but i notice it becuz i have it badly and i have a ways to go left with my treatment. Just wandering if this is damage or still lyme with her and if any of you have any feedback on this. She is still on meds now per Dr J but just wandering if this gets better on its own after stopping meds. Thanks for any advice, Robin in Houston
Posts: 121 | From Houston, TX | Registered: Mar 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I CAN FINALLY POST SOME GOOD-HAPPY INFO HERE. oops-sorry about the caps.
my kids did not have the smptom you are describing...the worst symptom one had was pain so bad in his feet he couldn't walk-and the other finally could not get up for school because of fatigue.
they were treated, because they had symptoms and positive tests. their symptoms and treatments were very different-but they are both graduating from college next month-i am quite sure lyme(+) is still in them and shows up in different ways-but it seems to be controlled enoough that it is not ruining their lives...i can't say it doesn't affect their lives...but at this point-they are young adults, making their own decisions, and have decided not to seek tx.
the aggressive tx we did began when they were 2-3, and was repeated when they were reinfected or relapsped. one usually had short term orals-but he did this at least 6 times growing up. the other had orals for a year and then a year of detox, etc.
my grandson had orals for a couple years and still has some joint problems, but plays hockey at a high level and is doing well in high school.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Robin, I can relate to the popping and cracking, my teenage son had that as well. It did clear after several months of abx.
If Dr. J is still treating then he may feel there's still some active Bb present.
Lyme can do great damage to muscle, tissue, cartilage, etc. It can take a couple of years to fully recover from the damage. Many adults are forced into unseemly gait's, canes, walker's, etc. Children, however, often recover fully in time.
My son had some residual leg/arm pain after his treatment ended. Our LLMD said and we agreed that it was not from active infection, but more the remnants of the damage down from being ill so long.
We visited a local MD/Acupuncturist/Heralist who did some thorough testing and evaluation. He determined that his adrenal's were still in a hyper state causing the inflammation and consequently the aches and pains. He see's this often with long-term illness. Essentially, the adrenal's never go back to "relax" mode.
He laid out a supplemental treatment plan and in a week's time my son lost all the residual pain he was experiencing. We're continuing the supp treatment plan because he's really feeling great.
Your child may need some type of supplementation to rebuild tissue, cartilage or muscle. Absolutely, check with your LLMD, but perhaps supps may be a great addition. Following is the supp treatment program we're following.
1oz. Liquid Life multi-vitamin/mineral B-Complex Pantothenic Acid Vit. C [Lot's] [10,000-15,000mg p-day] Vit. E Omega 3 Magnesium 400mg Tox-Away from TRC [My son swears by this stuff]
We're also using freeze-dried garlic and acidophilus for any yeast issues that may still be present. He's had no pains whatsoever since starting this regimen.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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