posted
my name is frankos living in the uk i been suffering with severe symptoms in the last 9 months it all started last summer. my symptoms are the following cold hand, cold feet , stomach and intestinal growls and pain, dhiarr�e, constipation,indigestion, sore ribs,muscles pain, loss of muscles and muscles tones, muscles twiching, white tongue, headaches, joint pain, difficulty breathing and funny feelings under my skin.....ect there's so much symptoms i guess i will stop there
i just been diagnose with lyme disease through serologique(blood) testing and have been treated with 20 days of doxycline and 14 days of rocephine . but my health has not improve seem to be getting worse especially the digestif symptoms and muscles symptoms. i wonder if is the lyme disease can cause such digestif complication? cause have seen gastro doc and they couldnt help.
i also lost a lot of muscle bulk i dnt know why but everytime i train i seem to be losing muscle instead of getting it.
1)please tell me can lyme disease cause all those symptoms?
2) can lyme cause you to have a white tongue?
3)and has anyone with lyme disease experienced digestif sytem problems and muscles loss?
4) and wot can i do about it
please help me cos my life has been transformed to hell
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I am so sorry to hear you are in such pain. It sound like many of your symptoms ARE on the long list of lyme symptoms.
As you know, lyme disease can imitate ANY disorder.
I also had horrible GI problems. I got an upper and lower GI, but GI doc said that I had irritable bowel.
It did resolve on its own. For you, you may consider that doxy causes stomach problems, too...also advil or ibuprophen.
You said you have white tongue. This could be yeast. Check newbie links - yeast can intensify the lyme symptoms and cause many GI problems...
You may need to get treatment for yeast to see improvement for lyme.
Also, co-infections. Have you been tested for bartonella, babisia or erlichiosis? These and others are often transmitted with lyme and need individual treatments to resolve.
If I understand you, you have only been in treatment for a little over a month.
This is not enough time to clear the lyme from your body, you have been ill for nine months...plenty of time for a systemic infection to take hold.
Many here find it takes many months or a year or more to get symptom relief.
It took me over two months of treatment to be able to funcion normally.
All of your symptoms and the feeling that your life has gone to hell is reported on this board. I personally went from a normal healthy person to a week, desperately ill skeleton with no muscle mass.
Hang in there, make sure your doc is the best lyme doc you can find and be patient. You will get better but it takes time and pain before the hell moves on.
Best to you...this is a wonderful place to find support, information and comfort through this tough time.
-------------------- We are spiritual beings on a human journey...
posted
Hi Franko, I'm sorry to hear of your symptoms. You might want to join the discussions over on the Yahoo Euro Lyme board where you'll meet some other Uk Lymies.
Have you seen a Lyme specialist?
Posts: 229 | From United Kingdom | Registered: Jul 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Yes, all of what you describe is possible. The system is impacted in almost every way with LD. You definitely need longer treatment, testing for coinfections, treatment for coinfections, and a good Lyme doctor. Good luck!
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
It definitely can cause digestive problems!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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WildCondor
Unregistered
posted
It can be a bunch of things, including Lyme. The white tongue sounds like yeast(Candida) If I were you I would get a full evaluation done by a LLMD, you may have to come to the USA, and soon. get tested for co-infections, Babesia, Ehrlichia,bartonella etc. Read up on the Treatment guidelines in the meantime, if you would like assistance in finding a doctor email me [email protected] thank you and good luck!
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I get lots of stomach problems!! I have gastritis. I hurt like hell and I definately feel like I am in a living hell myself!!
The GI dr's say it has to be from the Lyme. I think its from the prilosec they have me on. I wish I knew someting that would make it better but I haven't found anything and believe me, I have been trying everything!!
nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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