timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
HI all~
Anyone take cholestyramine? My PCP wants me to take it to help with C. difficile. I've heard it can be constipating. I don't need it for it's constipating purposes...she wants to use it to absorb toxins.
Suggestions and input needed.
Thanks...Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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WildCondor
Unregistered
posted
Me! I've taken Questran many times. First for Lyme toxins, then for c.difficile. For active c.difficile, when the diarrhea is really fierce, I took 4 packets per day. Its hard to space out the meds, because the Questran binds to them. if you are on oral antibiotics its really hard to space out eating and pills. I think you can take 2 packs/2x a day of you can tolerate it. It is constipating thats for sure! C. diff is so evil, its a match for the spirochetes I tell you!
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posted
I was on it to bind the lyme neurotoxins, however, had significant problems with constipation. It has more staying power than gorilla glue. For me, defeated the purpose of binding toxins, if I couldn't expel them. I am still in the process of trying different protocols and means to address the neurotoxins to see what holds the best solution for me.
I have heard that other people have had better results with the product. I would like to see if other board members had less constipation effects if water was increased or prune juice added, or if there were any " tricks" I might have missed on to solve this problem. --------------------------------------------------
" The absence of proof is not proof of absence." Posts: 719 | From Delaware | Registered: Jan 2006
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
I had it compounded with Magnesium & Metemucil and it made a big difference. Didn't help the fog, though. Posts: 1010 | From Mars | Registered: Feb 2004
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quote:Originally posted by iceskater: It has more staying power than gorilla glue.
My body couldn't handle that stuff either, but it may have been because of my bad gallbladder.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Wildcondor~ 4 packets a DAY?! I'm starting out with 1/4 teaspoon each day! Doesn't taste too bad though!
I did go buy a big bag of prunes today at Sam's Club. And some Activa Yogurt. I figured, what the heck...gotta try to keep things moving!
Oh, I also bought more Charmin toilet paper. 30 rolls to be exact.
Timaca Sustaining member of the Poo R Us Union and the Abdominal Agony Association Newest member of the Stools Are Stuck Society. Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I've had very good results with cholestyramine. Vitamin C and magnesium can be helpful in dealing with the constipation issues.
Also, do a search on CSM, cholestyramine, or Questran. there has been a lot of discussion lately.
posted
Charlie: For me, it was more apporpriate to get a few sticks of dynamite!! A new interpretation of Ricky Martin's song; " She bangs" For you West Coast people, confused on the explosion on the East Coast just another Another member of the Questran gang. --------------------------------------------------" The Absence of Proof is not proof of absence."
Posts: 719 | From Delaware | Registered: Jan 2006
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posted
Giving to my son 2scoops 2x day....It helped tremendously with his aggressive behaviors and not being able to release toxins...I also gave him Magnesium Citrate for constipation and he has always had a problem with this anyway.....No problem with CSM after starting the Magnesium Citrate...
Posts: 127 | From Rock Tavern, New York | Registered: May 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Timaca Sustaining member of the Poo R Us Union and the Abdominal Agony Association Newest member of the Stools Are Stuck Society.
Really funny!
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Heatherkiss~ Glad I could make you laugh
Daniel~ The TP is for when I taper the vanco...if the C. diff rears it's ugly head again, I'll be PREPARED!!
Thanks for the advice on the magnesium. I'll check into that.
Timaca (who vascilates between things really moving and things really NOT moving, if you get my drift )
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
I found the cholestyramine has made a tremendous difference with herxing: particularly neuro herxing. It does really "stop up your system," but I found it helped a lot to take extra magnesium, and Milk of Magnesia occasionally. I also took 4 packets a day, but took breaks when things really got blocked.
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I am gonna be takin CSM whenever it comes via the mail order pharmacy. I will be slowly working my way up to 3 packets a day. It is gonna be a real struggle to find times to fit everything in. We made a schedule and I have to wake up in the middle of the night to take my probiotics. It is the ONLY time to get them in.
I will be taking: CSM/mepron/zith/plaquenil/artemisinin
I already have a form of motility disorder that is caused from endometriosis. This will make the constipation issue even more STICKY! I already take psyllium daily so that wont be making things run any more smoothly. But I intend to up the mag and cross my fingers!
Which type of vit c is most diahreal? IS that a word?
posted
is there any website or way to get the questran without a prescription? my local doc doesnt understand about toxins!! radha
Posts: 392 | From New York | Registered: Dec 2005
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And some Activa Yogurt. I figured, what the heck...gotta try to keep things moving! ![[toilet]](graemlins/toilet.gif)
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