posted
my hands have started to tingle. It seems like since I started taking doxy. It is really noticeable when I wash my hands. They tingle and sting a bit. It is a stange feeling I have never had. I am wondering if it is from the med. or a new symptom or what.... Anyone else ever had this? I mean I have had the numbness and burning in other parts of my body but this is not that it is differen't. Maybe I am just wierd I know most of the time until I found this web site I felt like a freak of nature!
posted
Hi, I had tingling in my hands and fingers for 6 months before treatment. It is mostly gone now, 8 wks of IV Rocephin knocked down 80% of my symptoms. Good luck getting well!!
Posts: 44 | From Northeastern Wisconsin | Registered: Sep 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I've had practially total body burning since pre-treatment and still during treatment, along with a little tingling. But when I started IM Bicillin, the tingling and achiness started up in my hands, arms, shoulders - very carpal tunnel-like symptoms - plus numbness at night, again carpal tunnel symptoms - which Lyme can produce. So I had to back way off of my computer for several days and it helped. But I'm thinking it's a herx for me - although I've never had this as a herx - but it started with a new antibiotic. I'm going to be seeing my Lyme doctor next week and will be discussing this with him. Another Lyme pal of mine also got tingling in her arms from Bicillin. So even though you're on Doxy, it's worth asking your doctor if you're herxing. I was on Doxy for months (it was my first antibiotic) and I never got tingling from it, but of course we are each different in terms of our symptoms, herx reactions, medication reactions, etc.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I have tingling in my left foot and toes now. It used to be in my toes up through my mid calf right and left.
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
When I first got sick, I had tingling in both arms, sometimes clear up to the elbows. That was in 2001. These days, off of antibiotics, a get occasional tingling in my hands and/or feet, but it stays there.
Auto-immune? Permanent damage? Active Lyme? I dunno, but since I am in good health overall, I am not going to pursue treating it.
Regards, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
I get tingling in my hands and feet, sometimes radiating up the back of my legs and my tongue tingles as well. I didn't start to have tingling until last November and I've had the disease(unknowingly)for at least five years, so it's a relatively new symptom for me.
Posts: 366 | From MA | Registered: Apr 2006
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-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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bettyg
Unregistered
posted
I've had tingling/numbness for quite awhile in my hands/wrist and right arm is especially bad.
When I saw my new holistic LLMD last Thursday, she asked me & checked this out. She discovered NEUROPATHY galore in my fingers and toes. She took a sharpie and went all the way down my arms, hands, and feet to toes; a lot of difference in feeling & NOT feeling pain.
Last year saw a neuologist; he did the special testings, and NO neuropathy anywhere!
I have diabetes 2 and now on a rx med; was on 2 yrs. diet/exercise.
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Diabetes causes neuropathy too, but I am sure you are aware of that. Sounds like you have a double whammy.
-------------------- We have only this moment, sparkling like a star in our hand... and melting like a snowflake. Let us use it before it is too late. Posts: 221 | From the hills | Registered: Mar 2006
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posted
After almost 3 months on IV Rocephin and 1500 mg daily of Flagyl, when I put my fingers under cold water, I had this "icy-hot" feeling. Kindof wierd. Two weeks later the soles of my feet started to get the same feelimg, then feel like they were burning.
For the last 2 weeks I have been in terrible pain in my feet, and LLMD pulled PICC and took me of Flagyl.
He says I have peripheral neuropathy and sending me to a neuro. The Flagyl will cause this side affect. I looked it up (under HIS direction) at www. LEF.org. I am scared that this might be permanent, as I have been off meds for almost 2 weeks.
Good Luck, Jillybean
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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posted
I also have neuropathy in my extremities as a result of Doxy. My LLMD said it's a typical reaction to doxy, and gave me B12 (sublingual) and B6 to help the problem. They've helped somewhat. I hear that B1 can be very helpful too. I'd ask your LLMD.
My sensitivity increases when I have had ANY kind of sun exposure, and especially if I've been burned at all. Just another reason to stay out of the sun on Doxy.
I think what you're experiencing is pretty normal. A friend who is a diabetic and a PhD/MD in infectious diseases says that eventually your body should acclamate to the neuropathy. Hopefully it should get milder as time goes on...Good luck!
Posts: 20 | From Chicago, IL | Registered: Mar 2006
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LostCityAgent
Unregistered
posted
Lady Lyme, What you have is called parethesias most likely. Do you have plaques/lesions in the cervical spine?
posted
The tingling hands on Doxycycline can be a side effect of the drug. Before you start freaking out, and thinking its some sort of bizarre herx...remember that Doxycycline is extremely skin sensitizing. Even 5 minutes of basic sun exposure, driving in your car, or sitting in a sunny window can cause the tingling and burning sensations. When I was on Doxycycline last year for a tick bite, I had the tingling, numbness and pain while doing anything like washing dishes, or the slightest sun exposure. Mine was really noticeable when i washed my hands too. Remember even with SPF 50 and clothes on, you can burn right though, and hands are most common. Stay totally OUT of the sun. I hope this eases your mind some!!
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posted
Thank you for all you input on this I really think it is the doxy. I have had the neuro~burning, this is not like that.
Posts: 24 | From Iowa | Registered: Apr 2006
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posted
The photon stimulator has helped with my neuropathy. You can google it for more info. The manufacturer is Bales Scientific.
Shazdancer, do you have a specific maintenance program in place to stay well? Congratulations on achieving overall good health!!!
Posts: 925 | From California | Registered: Sep 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I have also been struggling with this. I took Doxy for many months, am now on Biaxin and Plaquenil. It comes and goes for me, but last week I had 3 or 4 days of tingling, numbness, coldness, and loss of feeling from the elbows down. It does get worse at night, and makes it difficult to sleep because I try and position my arms so that they won't feel so numb. I was holding something in the crook of my arm the other day and the entire arm, elbow down, went totally numb for about 30 minutes. I also get this in my feet sometimes, primarily in my feet it is a loss of feeling. IT is very freaky, and I hate this symptom. I hate not having feeling or a reduction thereof in my hands and feet. But otherwise I am so much better, I hate to complain, and it comes and goes!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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quote:Originally posted by ladylyme: my hands have started to tingle. It seems like since I started taking doxy. It is really noticeable when I wash my hands. They tingle and sting a bit. It is a stange feeling I have never had. I am wondering if it is from the med. or a new symptom or what.... Anyone else ever had this? I mean I have had the numbness and burning in other parts of my body but this is not that it is differen't. Maybe I am just wierd I know most of the time until I found this web site I felt like a freak of nature!
Thanks everyone!
Posts: 1 | From North Carolina | Registered: Apr 2006
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posted
My 15 y.o. daughter started having tingling and numbness in her finger and hand. She was on a 14-day course of 250 mg bid of Flagyl at the time (along with her regular regimen of Ketek, Omnicef, Malarone, and Plaquenil). I stopped the Flagyl 3 days early and things improved a bit, but it is still bothering her.
Anyone get tingling from either Malarone, which she just started a few days before the tingling started (she had switched over from Mepron) or Ketek, which she's been on for about four months?
Lesley
Posts: 164 | From USA | Registered: Jul 2005
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WildCondor
Unregistered
posted
FYI, Flagyl can cause the tingling and numbness too but this is a bad side effect of the drug, not a herx. When you experience these things always tell your doctor. Read labels, look up the drugs. I think every Lyme patient should own a medical dictionary, and a drug reference guide. Look up the diseases, learn the lingo, and the drugs, the side effects. It can save your life and get you further in your treatment with more understanding.
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posted
Wildcondor, great point.
Posts: 925 | From California | Registered: Sep 2004
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WildCondor
Unregistered
posted
It's important to remember to look at the most likely cause of symptoms first...medications, diet, and such before jumping to conclusions that the situation is severe and a massive herx or some bizarre new phenomenon. Many times these things are medication side effects. Like I said earlier, buy some medical reference books and drug dictionaries, arm yourself with information, call the pharmacy, ask questions! Okay tinglers?
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