I sat down and wrote my symptoms down the best that I can remember. Here they are:
Summer 1998- Weird body weakness, lasted 3 days.
Minor car accident, headaches started about 2
months later, only on occasions.
Fall 2000- facial tingling on left side,
muscle spasms in chest(felt like suffocating)
Jan. 2001- Anxiety attacks started, left me
with 3 months of nausea, bloodwork results:
Reaccivated EBV virus, and high platelet count.
Stabbing pains between ribs, and stabbing pain
under right eye.
May 2001- Crawling sensations in legs, only on
occasions, headaches more now, hormonally.
2002- Fell in hole, chiropractor adjusted me,
started burning in legs and back, told me to see
a specialist, thought I had early MS, or fibro.
2003 to present:
Tingling left and now in the last week right side
of face and nose tip, no numbness.
Left ear pain
Right eye pain
Burning feeling in legs, this is worse with pants
on. Cold weather really irritates it, hot bath
helps.
Alcohol does make everything worse, and get drunk
quick.
Right eye floaters
heartburn, only ever had when pregnant.
dentist wondering about weird x-rays
heart palpitations, I do have MVP, but never
bothered with it til the last 3 years.
Motion sickness
No sex drive, ziltch, decreased orgasm, don't
laugh!!
swollen neck glands that come and go.
Hubby has had 2 ticks on him removed, one was definently a deer tick, lab lost the other.
As you can see, my problems started out fairly vaque, and as the years have gone by they have gotten worse.
Went to the doc office today, asked nurse to put Lyme test on my script of bloodwork, she said,
"I doubt very seriously if you have Lyme, you would have had a rash."
But I'll let you get the test, lab said something about IGG and IGM levels, is this the Western Blot or ELISA?
Will you guys here be able to help me with the results until I get to the LLMD?
I'm scared poopless, I don't want this to end up being MS, I hope I can be treated and feel well again, my grandmother was dx at 60 with MS, and I've been scared to death, please help me out, you people here have been great!!!
Thank You, Thank You, Thank You, Thank You,
What about Dr. S? Any feedback will be helpful.
Posts: 21 | From Pittsburgh, PA. | Registered: Mar 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
quote: ...lab said something about IGG and IGM levels, is this the Western Blot or ELISA?
With "levels" probably is ELISA, which is very unreliable.
You need Western Blot tests from Igenex.
Many Lyme patients didn't have a rash, don't remember biten by a tick, or never saw a real tick in reality.
But you have a lot of symptoms and don't know why, this would point to Lyme disease.
Lyme is treatable, a lot of people here including me are getting better and even pratically cured.
Take care
Posts: 1078 | From Fairland | Registered: Apr 2006
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WildCondor
Unregistered
posted
Jenny, it does not matter what the tests say. Lyme disease is a clinical diagnosis. The doctor you saw doesnt know what they are doing. Less than half of all people bitten by ticks ever get a rash! You are being given WRONG information. It is up to you to seek the truth, and arm yourself with the correct information. You will find all of that here in links on this site.
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