posted
Well, I went for my MRI today, now I have to wait a few days for results.
They did this with contrast. I am so scared, is there really alot of people that have been diagnosed with MS thay have Lyme?
My problem is so strange, and these strange feelings never go away, like typical MS does.
Today, I am trembling in fear, worried, sick, and very depressed, tired you could say also.
My biggest problem is the facial tingling, its there almost everyday.
What I need to know is, when I get these results, should I be alarmed, or should I go straight to a LLMD? How can he tell from MRI results what disease I have?
Thank you, you guys are great!!
Posts: 21 | From Pittsburgh, PA. | Registered: Mar 2006
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posted
My MRI was normal, but the SPECT was abnormal.
What this will tell your doc is whether the brain structure has been affected adversely. It will not determine what disease you have. It is just a piece of evidence, so calm down and think about something else while you wait for results.
Keep cool, in other words. Easier said than done, to be sure.
Posts: 8430 | From Not available | Registered: Oct 2000
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Hi, I went through the same thing. Please check a post of mine that is about MRI results. Just search in the discussion search (put in MRI). Not the site search. So many people go through similar things. I have had Lyme for 16 years and alot of facial tingling and twitches. Does your LLMD suspect you have Lyme? So many people have been helpful to me as they found small "hyperintensities" on my MRI which my LLMD took one look at and said "yeah this is Lyme". From what I understand. Lyme and MS are both demylinating diseases. And the more research I do I feel like it all could be Lyme. But I am not a doctor. The point is to get treatment for the Lyme. In a sense, any duck could look at an MRI and say yeah, you have MS if you have lesions, but both Lyme and MS have the same kind of lesions. So what they say is that if you have Lyme then it seems the lesions come from that. Strangely they also say that people rarely have both. Which makes no sense so my feeling is that this demylinating process is caused from Lyme and that when people say MS it is Lyme that has progressed to demyelination. From what I understand that can be reversed. Don't panic. I know it is so hard.But if you do have Lyme educate yourself on what that really means and how to take care of yourself and make yourself better. Careful of scary stuff on the internet. Go check out the Columbia Presybeterian site for Lyme research Alot of good stuff on advanced Lyme. Take a deep breath. SOOO many people have been right where you are now.
Posts: 298 | From los angeles | Registered: Mar 2006
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WildCondor
Unregistered
posted
Jennie,
Try to relax, it will be allright. An MRI is just a diagnostic tool. Mazny of us have had then, yes, some are abnormal, but it doesnt necessarily mean anything significant. Sometimes they show things, sometimes not, some are serious, some are not. When I had mine, I was told I had a lesion on my brain and I immediately thought I was dying of some cancerous tumor and went into a total panic. This is before I knew I had Lyme and the docotr's scared the life out of me. Many are labeled with MS, when Lyme is the cause. You will have your results soon, so hang in there.
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posted
I also know of someone who had lessions on their brain from this lyme thing and after treatment they were gone.
Posts: 582 | From milwaukee wi | Registered: May 2005
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posted
dont worry... eric
Posts: 593 | From long island ny | Registered: Apr 2006
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LostCityAgent
Unregistered
posted
Jennie, I have a plethora of information. If you want tp pvt message me I will give you my telephone number and we can talk about this. I have multiple lesions that look like MS and the report clearly states SUSPICIOUS FOR MS plaques, but the report also considers Lyme as a possibility. I have tested positive for Lyme. I have spent a year in fear. Let me help you.
posted
Forget fear and go with the possibility of getting WELL after Lyme treatment. Let us know how you're doing tomorrow...OK??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Jenny.
NOT to stress!
There are SO MANY of us on LymeNet who were first diagnosed with MS that we could start a separate sub-board... "People who usedta think they had MS."
I have brain lesions too -- a truckload of em - and worried myself into quite a sweat over it.
However, I also tested highly positive for Lyme, and had a ton of Lyme symptoms.
My neurologist wouldn't know a lyme symptom if it hit him in the head.
Your facial twitching is EXTREMELY lyme-ish, by the way.
Don't wait for your neurologist to figger this all out for you. Neuros are famous for the wait & see approach. And for the "I don't see any Lyme disease here" approach. Please get evaluated by an LLMD ASAP.
While they're "waiting and seeing," bacteria are flourishing that you could be killing, if indeed you have Lyme.
Take assurance from the statistic that most people with Lyme have a normal MRI despite having neurological symptoms. I hope you will too. When you get on some good treatment, you will start feeling much better.
Read everything you can lay your hands on in the meantime. Put yourself in the hands of a good LLMD and relax!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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bettyg
Unregistered
posted
Hi Jenny, I too went thru a brain MRI lately where they called it only a "mini stroke" .. no lyme! I was put under since I'm so claustrophobic!
My remedy for you is: find the FUNNIEST movie you have or ever saw, and play it over & over with great BIG BELLY LAUGHS. This will do you more good than anything.
Fear of the unknown stinks; but once you find out anything, you will LEARN to take it head on and attack. My thoughts & prayers to you Jenny.
ALSO, go to TREEPATROL'S NEWBIE LINKS; towards the very end of all the pages is something about MRI/CATSCANS/SPECT ... go to the HARVARD link; that shows lyme, MS, Alzheimer's etc!
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