LymeNet Flash: Trying to find best pplace to go for treatment of this complex case

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Trying to find best pplace to go for treatment of this complex case - any help?

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Topic: Trying to find best pplace to go for treatment of this complex case - any help?

lymiebabe
Member
Member # 8890

posted

Hi all -

Like many of you, my case is complex, and even my LLMD in NM says she is out of her league. No one knows how much of my porblems are from Lyme, and how much are

unrelated or other. It has been suggested that I try to go somewhere that has a team approach or at least is multidisciplinary, like the Mayo in MN, Cleveland Clinic in

Cleveland or Naples, FL, or Columbia/NY Pres. Hopsital in NYC. Obviously, Columbia Lyme would be great,, but in calliing I have not gotten the response I was hoping for -

ie - any reccomendations on other docs at Columbia who would work with them to figure out all my wierd issues. I only have Internet research and America;'s Best Doctors book to go on for Mayo or Cleveland.

Anyone have any suggestions or ideas? My case involves severe neuro issues, arthritis, IC, gut issues, medication intolerance, adrenal near failure, other

hormone imbalances or lack of any hormone production, neurotransmitter imbalances/severe lack of anything but norepinephrine, 15 years misdiagnosed as

CFIDS/Fibro, now Tertiary Lyme, and a c5-c7 spinal injury (too many head tramas rollerblading and car accidents,). Anyone have any suggestions, please

contact me,privately if you can name doctors. Otherwise - any opinions on the places mentioned, please also let me know. Thanks so much.

ps - What do y'all think - is this all Lyme-related, or does it sound like not? Yes, I know you are not doctors.

Thanks and take care everyone!

-su

--------------------
Forgiveness is the fragrance that the violet sheds on the heal that has crushed it. (Mark Twain)

"It's only after you've lost everything," ... "that you're free to do anything." (Chuck Palahniuk, Fight Club)

Posts: 24 | From somewhere outside Boston, MA | Registered: Feb 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Hold the Mayo and hold the other major hospitals!! NO! Mayo has admitted to "not doing Lyme"
I'll PM you.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

WildCondor
Unregistered

posted

Sent you a PRIVATE MESSAGE.

IP: Logged |

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