posted
1) How many LLMD's have you seen? Were any specialists?
Hubby -- 2 regular LLMD's and 1 LLMD neurologist
2) Were your LLMD's in-state or out-of-state?
Hubby -- all 3 out-of-state
Thanks,
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
One LLMD, a rheumatologist.
Since I'm a disenfranchised DC resident with no state and no vote in Congress, the second question doesn't apply. But my LLMD is 40 minutes away, so basically in state.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Michelle M
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Member # 7200
posted
I'm very lucky.
Just one great LLMD.
A short drive -- hour and a half away (75 miles), far northern California.
Family practice doctor.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
2 Family Medicine doctors 4 Neurologists 1 Infectious disease doctor 1 LLMD in California -- 1 hr away Took nine months to get a diagnosis with treatment
This could be a great national poll
mag
Posts: 259 | From California | Registered: Mar 2006
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Mathias
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Member # 5298
posted
2 LLMD's
1 LLNeuro
1 LL ID
Only been treated by the LLMD's.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
2 LLMD's - In state
1 LLNeuro - OOS
1 LL ID - In state
Only been treated by the LLMD's.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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First one i went to lost my blood results before seding them away waited a month to find that one out (obviously did not go back to her).
Second one gave me ceftin for 20 days, said because i did not react to the abx in that amount of time he does not think I have Lyme although Western Blot IGM showed band 31++ 34 IND 39 IND 41 IND
Third LLMD took a look at results (from Igenex) and listened to what I told him of my symptoms. Thought right o way that I had Lyme and thats my major problem right now along with some co-infections (which he is testing me for right now).
Hopefully We will see results soon, cause i am twitching everywhere now, even after i open my mouth my muscles twitch on nmy neck. pretty weird feeling.
Posts: 167 | From Los Angeles | Registered: Jan 2006
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posted
Woke up 2/26/05 unable to walk. Several ER visits. Two hospital admissions. Three neurologists , in two hospital stays thinking I was okay and finding nothing ( two hyperintense signal flares in brain, but I am okay ? My family doctor treating me. Lyme titers found. Move in with parents who started to take care of me. Parents dr tx me with Iv Rocephin. Wheelchair/walker Consult with and tx from 2 LLMD , out of state, in conjunction with parents GP. Lyme literate neuro opthamologist and retinal specialist and glaucoma specialist here in town- macular degeneration and optic neuritis from lyme. Pain management will be next. GP doing a good job, despite my severe neuro lyme and all the nasty little co's that we have found so far. Gp going to ILADS conference this past fall, going again this year, attended Eastern shore conference. Consulted Dr B. Family GP now has 8 patients in her practice with lyme ( all this past year). My doctor by virtue of the fact that had so many patients starting to be diagnosed, had to learn very fast and study alot and consulting the big guns.I know I have missed some doctors along the way to post as having treated me and said nothing was wrong. I just want to forget those jerks that knew nothing about Lyme. In summary, a laundry list of learned medicine men who learned nuttin' about little tickies. Posts: 719 | From Delaware | Registered: Jan 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I've only seen one LLMD since starting treatment in June.
I'm getting steadily better, so I see no need to seek another opinion at this point.
My LLMD is out of state, about 1 and 3/4 hours drive. Not bad.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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HEATHERKISS
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Member # 6789
posted
On my 3rd.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
I did not see any LLMD. I was treated by a medical doctor who is aware of Lyme Disease. Also addressing all possible underlying conditions of a chronically ill person is what cured me from Lyme Disease and all other problems I had for a number of years.
That taught me to be the only approach to conquer Lyme.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
In spite of the Lyme, I feel incredibly lucky to have a great LLMD 15 min. away. Other than my PCP(who I had to bully abx out of),and the neuroligist fool I saw for a second opinion, he's the only LLMD I've seen.
Posts: 175 | From ma. | Registered: Aug 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
1) LLMD neurologist (diagnosed me) 2) LLMD (family practioner, my all time favorite) 3) LLMD psych (evaluation) 4) LLMD rhuemy 5) LLMD internist 6) LLMD ID
Numbers 3 and 5 were in state; not the same state, but the state I lived in at the time.
The first may not deserve the LLMD label. As a matter of fact I tossed her into the Alligator Pit! Anyone see the Alligator Pit lately?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Gp going to ILADS conference this past fall, going again this year, attended Eastern shore conference. Consulted Dr B. Family GP now has 8 patients in her practice with lyme ( all this past year). My doctor by virtue of the fact that had so many patients starting to be diagnosed, had to learn very fast and study alot and consulting the big guns.I know I have missed some doctors along the way to post as having treated me and said nothing was wrong. I just want to forget those jerks that knew nothing about Lyme. In summary, a laundry list of learned medicine men who learned nuttin' about little tickies. ![[cussing]](graemlins/cussing.gif)
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