This is my other post. I am so unorganized now. I use to be on top of things. Now clothes and trash pile up. The bills don't get done. I just don't know what is going on. Lyme has turned my life upside down more than anything I could possibly imagine. Is this common to become so unorganized?
-------------------- HopeandMe Posts: 61 | From Maryland | Registered: Feb 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
hey there!
yeppers, before lyme i was organized...never late on bills. Since lyme:
my home phone has been shut off (forgot to pay the bill)
late charges on my cell phone bills and various credit card bills.
Laundry is never put away
Its a chore to change my cat's litter (poor kitty).
today for the first time in a long time i made all the calls i was supposed to make to dr's etc.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Congratulations Can't Give Up Yet!!! I am glad it is just not me.
-------------------- HopeandMe Posts: 61 | From Maryland | Registered: Feb 2006
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Yes- at least you know you have bills!
I would not be able to find my shoes in the morning, could never remember where they were. Started leaving them on the kitchen table at night, so I could find them. It worked. It will get better.
Keeping things as simple as possible is helpful and a notebook to write everything in.
posted
Yep - Me too. But at least now I can type out e-mails. there was a point when I was just wandering inside my appartment wondering what was it that I was trying to do. LOL I hope at some point I get the motivation back I once had.
Posts: 582 | From milwaukee wi | Registered: May 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I'm having much the same problems for a while now. I have little bursts when I can get a couple of things done but they are rare and short lived, unfortunately.
For a few months I couldn't understand calendars. That struck me as kind of odd. I"m having trouble processing, organizing and staying oriented to bunches of things.
I'm not on any treatment currently and it's very scary to me that it's being allowed to roam wild.
Right now I was able to type this out; most times I type something and have to fix every single word because all the letters and words are wrong. I only had to fix about 4 things in this one. ah, but the day is young.
I'm sorry you're in this place, too, this too shall pass! I just wish it would hurry up!
And thank you Cave for the small comfort.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Hello. You are not alone, dear friend. I, too have a severe neuro lyme with coinfections. It is taking a toll on me with macular degeneration and optic nerve atrophy. That, is the easy part of the equation now. Yes, I was the epitome of organization. I was a registered nurse, actually had a part time second job, athletic and competitive in skating. The whole enchilda. I had to move in with parents. I can't drive due to numbness and poor eyesight. The part I really hate is lack of organization. I am starting with Lyme fog. I don't have the energy to do anything. I need an electric shopping cart now on the good days that I can get out. I fight through the numbness, pain, and if I can endure a shower, dress and get out, with Mom driving ( who has lyme, too) I am lucky to remember what I am going down the aisle for. It seems as if posts on the board, that things will improve for all of us. I hope so. I will keep you in thoughts and prayers. Please hang in there.
Posts: 719 | From Delaware | Registered: Jan 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Hope -
Its Very Very Common-- Ah -What was I talking about? oh ya
I used to walk around in circles trying to remember what I was going to do--
I am Much Better now -- You will get here also- --Jay--
Ps--I used to get Most of my excersize by walking around my home trying to figure out what I was looking for--
So I guess there is some good points to the Daze ---
--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
THIS SOUNDS EXACTLY LIKE A NEUROPSYCHOLOGICAL PROBLEM RELATING TO **EXECUTIVE FUNCTION**!! PROBLEMS WITH ACETYLCHOLINE ACTIVITY (LYME APPARENTLY CAUSES THIS) COULD VERY WELL RELATE HEAVILY TO THIS, AS IT SEEMS TO WITH ADD AND FRONTAL LOBE SYNDROMES. (sorry for the caps, but this is very familiar to my experience, and i think is very important for clues on how to deal with it, like possibly with galantamine and other cholinergics)
Posts: 244 | From Ottawa | Registered: Dec 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I did try for about three weeks to stay organized after I was first diagnosed with Lyme and started antibiotics.
And then, well, there was no possible way I could do it.
I had a Palm, which helped me organized the most fundamental things I had to get accomplished. The rest just went forgotten...
I found that it was useful to explain my situation to the people around me, so they wouldn't feel slighted by unreturned phone calls or missed appointments. As far as paperwork, it's still stacked somewhere. I'm not sure entirely where it all is but I figure it wlil all be waiting when I crawl out from under this Lymey rock.
Actually, I have to say this has all gotten a LOT better in the 11 months I've been in treatment. I'm actually beginning to deal with some of the things I've neglected over the past year.
Thankfully, nobody has relied on me to pay any of the bills; that would have been a total disaster.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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bettyg
Unregistered
posted
Yes, me too!
A few suggestions:
1. If you have enough money in your checking acct., set it up for AUTOMATIC PAY DEDUCTIONS FROM UTILITY COMPANIES, so on appropriate day, they withdraw that amount of money; . no check to write or mail....
2. My husband does the bookwork otherwise on everything. I'm writing what few checks I have to due to his non-step TREMORS where hands are going all over the place/"essential tremors'.
3. Organization...to think I really used to be no. 1 in this! uffda.
I'm trying to do 15-30 minutes of working with mail daily: read, file, or THROW away, or TAKE ACTION if necessary.
4. I have filing to do back by my pc and 4 drawer file drawer. As I'm waiting on my "slow pc" to do things, I file some things while waiting.
5. It's a real effort for me to type any more! Typos, letters missed out, etc. Now I just do NOT care; I'm managing to be by....that's it.
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posted
Some time ago, I was told that people with Lyme disease are "paper shufflers".
I know I am. Trouble is..... the stacks just keep growing & I'm reluctant to throw things out. Afraid I may need it later.
I used to be able to juggle several things at once, but now I usually just tackle one thing at a time.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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posted
Yes, piles of paper, clothes, stuff. It drives me crazy. Used to be efficient, functional, on top of things. I have times where it gets better, and times where it is terrible!
Now I can better understand people who have dyslexia, other learning disabilities, and ADD. I found some helpful hints on an ADD website.
What helps me is: *letting go of perfection *letting go of expecting to have it like it was before lyme *having a couple of simple systems and sticking with them
*paying bills online *using a calendar to mark down bill due dates *paying the bills weekly, so as not to have a huge pile all at once *another calendar to mark down medication and supplement orders
It helps, but not when I'm in a severe herx! Then, delegate, delegate.
Someday the fog will lift.
Posts: 873 | From WA | Registered: Dec 2005
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posted
I just thought I was a bad at keeping the house up. You can't see the floor of my kids rooms. I am too tired to help them or even yell at them to pick it up. Yippy for them.
Posts: 188 | From NM | Registered: Feb 2006
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paradoxically,for me, i've so far identified mod-high dose vit. C(at least with oral intake), B6, a liquid Bcplx i was taking as culprits. with the latter suppl. because i could not identify if the whole mix, or just some of the B vits. worsened this, but so far, according to my own suspicions some lit. and essays by tom grier, i've identified the above nutrients as increasing this and other signs and symptoms.
vit. B3(niacin), and magnesium i found helped reduce this,with some lyme lit., and grier's treatise helpful in this regard, in identifying their helpfulness.
the B3 can be problematic, with doses over 50mg., and sometimes even with lower doses, can worsen liver enzymes, and, at least with me, gave me some heart symptoms.
despite the heart symptoms, B3 clearly helped but only temorarily with this.
thiamine, and choline had a significant positive effect on focus.
the vit. C, and B6 will induce increase production of quinolinic acid in the brain; some other suppls. might do this also, but i forget which.
zinc and melatonin affects some lymies negatively.
with the vit. C, done i.v., but done years later, and after considerable prior abx therapy, did NOT give me increase my symptoms.
see tom grier's treatise, either here or on wildernet.org, the latter having most, if not all essays published there.
vit. B3 and magnesium induce a temporary decrease in quinolinic acid(natural brain toxin) production in the brain.
posted
At my worst I would carry around a notepad. It helped alot. I literally would forget things from one minute to the next. It was vitually impossible to sustain two consecutive constructive minutes. Addition and subtraction was very difficult and frustrating (as in trying to balance a checkbook). I would forget what I was saying mid sentance and even mid word.
- Mike
Posts: 153 | From Watertown, CT USA | Registered: Feb 2004
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
This is what I did to stay more organized--
On the wall of my room I would pin any important papers so I could find them
I just cleared my wall a couple of days ago and there was stuff many layers deep--9 yrs worth-LOL
I had divided my wall into sections- Bills -Medical -Personal-Bussiness- and a section for all others--
Newer things were on the outer layer so it was easier to keep track-
Doing this worked perty well-- My walls looked like Hello tho --LOL
Also- Postit- notes are a real good thing to get a bunch of--
I also got a ditigal voice recorder- there perty cheap now -$30-- They can really make things easier and better-
Today I am going threw my room and trying to trash a bunch more stuff --Its a Jungle in here- Wish me luck --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Yes it is common, Unfortuneitly, I use a lot of post it's a PDA and I leave myself notes when I am thinking of doing something versus trying to recall it later.
I have found that this is helping me to recall things sooner. I hope this helps
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
I am also in the club. In the past no missed bills at all. At present every other is with late fees.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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