posted
Investigating antibotics use in ALS is a step, it is, in my opinion a dangerous one.
Wouldn't it make more sense to test for Bb using the WB first? Making sure Bb was not the base disease before giving one antibotic that will only do half of what is needed. Without a cyst destroying drug like flagel, relase is certain in cases of Bb.
Testing for hypocolaguation is also an important step. Losing patients in the middle of the study doesn't help.
I wonder why they have not contacted someone with experience treating Lyme-ALS patients to help design a workable program without wasting all of those lives?
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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posted
Yes, lou, it is amazing how quickly they shift their position on the danger of long term antibotics when it is to their advantage. I'm sure they can cover up their reasoning in so much medical mumbo jumbo that no one can follow it.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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posted
Yes, lou, it is amazing how quickly they shift their position on the danger of long term antibotics when it is to their advantage. I'm sure they can cover up their reasoning in so much medical mumbo jumbo that no one can follow it.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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posted
Well, I think they are not admitting some ALS cases could be infection-caused. They are saying that rocephin affects glutamate accumulation. So, they would naturally not be contacting any ALS/Lyme treating docs. Of course, our docs are not thought to know anything. Treating ALS-like symptoms in Lyme is not all that easy.
This is very eye opening. Tells me why we have not made more progress in diseases of all kinds. Science is just as prone to human prejudice and ignorance as any other field. I had previously thought that the scientific method forced people to think more clearly. And that it was a field which would attract clear thinkers.
Posts: 8430 | From Not available | Registered: Oct 2000
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My mother passed away in 1989 from "ALS". She also had every symptom of lyme since the mid 1950's. She died a horrible death. It was awful to watch a loved one go through that.
It is unbelievable to me how so called highly educated doctors blatantly ignore this obvious epidemic.
I think they are being subliminally strongarmed by the AMA and messages from "The New England Journal Of Medicine".
As one infectious disease doctor put it to me, "if it's in the TNEJOM, that is what I follow as the standard treatment of care."
I think they CHOOSE to stay in the "ILLUSION" and justify it to themselves, even when deep down they really know better.
It's like the AMA has their own "ONE WORLD GOVERNMENT". No one will ever convince me that doctors from the most prestgious schools in America don't know what's going on.
In my opinion they are all guilty of the biggest "HOLOCOST" on the planet,and should be brought up on charges of mass torture.
We should look at the "Aids Community" and follow closely how they finally got everyones attention and use that as a protocol.
When I think of how so many people are suffering, it makes my blood boil.
I am sure I am not alone with these feelings.
Gael
Posts: 121 | From philadelphia | Registered: Feb 2006
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The "standard of care" should be what or how do the doctors treat their mothers or children when faced with illnesses like MS, Bb, ALS.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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Personally, I place the blame on the govt, instead of the AMA, since they are the ones who have decided to manage lyme this way. And I think their views are enforced by the funding they disperse, which is crucial to a lot of big name medical institutions. No one is going to take a chance on losing these big bucks. So, the research follows the party line and that is what is published in the medical journals.
Posts: 8430 | From Not available | Registered: Oct 2000
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I agree with what you are saying about the governments' role in this.
You hit the nail on the head when you speak about the government dispersing money to the large medical institutions, and therefore having the ultimate control.
Yes, the government does control everything, however, the AMA does have enormous power in it's own right.
They have let their enormous thirst for greed be their God, and have forsaken their original oath as doctors, "Thou Shall Do No Harm".
It then trickles down to the individual doctor who goes along with this abomination. Society in general, has been placed under a deep sleep that we all need to wake up from.
There is more going on here than meets the eye. Conspiracy theories have started to make sense to me, and I am generally not a paranoid person.
Thanks for letting me vent.
Gael
Posts: 121 | From philadelphia | Registered: Feb 2006
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posted
When I started out on my lyme journey, I also thought the AMA was a spokesman for the best interests of the patients. But now I have been educated, read a lot, and find that it is in fact a trade association for doctors. Looking out for the best interests of doctors. So, I no longer expect much from them.
Patient advocacy mostly seems to come from patient advocate organizations and groups. And some of them have been taken over by professionals who no longer are true patient advocates. I will name no names (not lyme orgs except for the ALDF is in this category of pretenders), but some other major disease advocacy orgs are not doing much to help patients.
Posts: 8430 | From Not available | Registered: Oct 2000
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No one will ever convince me that doctors from the most prestgious schools in America don't know what's going on. ![[rant]](graemlins/rant.gif)
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