Topic: Man, my skin is on fire today! How is everyone else with this symptom doing?
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Wow, I haven't had this symptom for a couple months and I didn't miss it! It started with the top of my scalp burning last night. Now today, its my whole body-skin burning pain.
The only thing I have done differently was to take an anti-inflammatory medicine (Mobic). I wouldn't think this would trigger it? Geez, I hate this symptom!! Hurts to even have someone touch me ya know? At least I am warm today-lol!!
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
| IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hey Nancy,
I can relate and empathize! I hope it goes away soon!
This was one of my first symptoms (nerve burning, but also extends into feeling like skin burning) and has been head to toe for years. The abx have improved some of it, but it's far from gone.
Do you have any sense whether this was Lyme or a coinfection with you? My LLMD and I are still trying to figure out which disease is the main culprit.
I hope you get some relief soon! Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
Funny you should mention this today. My scalp is on fire. Has been since I haven't taken the herbs for bart a week ago. Should have new order by thursday.
I have other body burning as well. If the burning stops when I take the herbs for bart, I will know if the bart is the cause.
I also have bumps and lesions on my scalp. It drives me crazy. Do you get these?
Gael
Posts: 121 | From philadelphia | Registered: Feb 2006
| IP: Logged |
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I also have burning nerve pain all over my body, including my scalp.
Never had the bumps and lesions though, Gael.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
| IP: Logged |
My heels felt as if they were on fire earlier today. I've never had that happen before. Usually I just get the tingling but today it was an "on fire" feeling.
I do get it on my scalp but it's usually more like a lightly sunburned feeling--not on fire.
Posts: 366 | From MA | Registered: Apr 2006
| IP: Logged |
posted
Back to this topic again...I am so sorry you all have this sensation because it is absolutely one of the the worst feelings.
I know I have asked this before but since the topic was restarted, do any of you find that clothing causes burning/odd sensations but when the clothing is not there, the skin feels normal and the burning goes away?
-David
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
| IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
David,
My nerve/skin burning does not seem to be affected by clothing - thank goodness. But I have heard about people being very sensitive to clothing, so I'm sure you are not alone.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I do have Bartonella and I think it is time to start treating that again.
Clothes sometimes affects it, but just putting pressure on my skin hurts (like laying down). Tonight, my whole body is burning again including the skin inside my mouth and everywhere. Not horribly bad, but enough to drive me nuts!!
Does anything help it?? Any ointments or anything?
Also this is weird, but certain medications will really cause this to flare. For example, most antidepressants will really flare it up.
Dumb disease. Horrible symptom too!!
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
| IP: Logged |
posted
I used to have burning skin, this symptom disappeared after bartonella treatment. Also try using tea tree soap, lotion and shampoo.
Posts: 449 | From Vermont | Registered: Nov 2004
| IP: Logged |
Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
My symptom of burning skin has turned into itching after a few weeks of high dose doxycykline with tinidazole.
Itch is way better than pain but doxy is hard to tolerate.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I have this on my feet today, also my hands and the back of my neck.
It used to be all the time, especially after sugar.
I can attribute it to a herx.
Im on doxy now and it gets bad
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
My mother is 87 and of course is getting a bit more frail with age but she keeps having almost monthly spells of weakness where she is confined to bed. She thinks every time that this is it but she always recovers in a few days and is back to playin bridge and visiting people. She has been mentioning how her skin is very sensitive to her clothing and how last night her legs and chest were red and burning up. Of course she has a low temp. I don't want to put the lyme label on her and everyone I meet but all the symptoms she talks about are what I also have had in the past. It is so difficult because of my activism.....everyone...even the visiting nurse just thinks I feel everyone has lyme. Any thoughts
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Margie,
Your mom and my parents are about the same age. Is she on any medication? I'm always shocked to read how many medications have side effects that can include neuropathy, skin issues, etc.
But I know how you feel about seeing the world through the knowledge of Lyme we now have. I, too, wonder about whether my Mom has it - and whether some friends with MS do.
Take care, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Thanks Jill...I will take a look at her meds and see what the side effects could be. Coumadin and 2 blood pressure pills. Thanks for empathizing with me
posted
I have intense skin burning that comes and goes. It's all up and down my right thigh from just below the knee to just starting into the hip area. When it's bad, ANYTHING touching the skin hurts like a bad sunburn or something. Also it seems to get worse if I lay on my back or stand/ walk for even a few minutes.
Weird.
-------------------- Pam Live well. Laugh often. Love much. Posts: 53 | From Ohio - south/southeast | Registered: Oct 2005
| IP: Logged |
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Im wondering. I am detoxing my liver ( I have a dr supervising this of course). I wonder if the detoxing could be triggering off the neuropathy (skin burning pain from hell)?
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
| IP: Logged |
WildCondor
Unregistered
posted
Sorry to hear this! I had it too, more like flushing face for me, but I did have the burning skin all over and treatment for babesia and bartonella made it go away for good. One thing that might help the pain is Neurontin, or possibly benedryl? Aloe spray mist?
IP: Logged |
posted
I am taking Cymbalta for neuropathy nerve pain and it works great for me.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I have burning off and on as well as the scalp sores and lesions. My scalp burns but even worse, it stings. It comes as goes.
The burning is in my feet, hands, nose, private parts and eyes. My husband used to mention that my skin feels acidic sometimes, like it burns him when he touches me.
My brother, who I also feel has lyme and co-infections, has burning and clothes really hurt him sometimes. He is diabetic and these symptoms are also commonly seen in advanced cases of diabetic neuropathy.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Hi all, Do you all feel that burning skin is always from a coinfection? Could it maybe be caused by the Lyme itself? My coinfect tests, which I had repeated twice, were negative, while my Bb was very positive.
I have the same sx as Terry...my whole body burns, esp. the smooth areas like lips, privates, and palms of hands and soles of feet. My face turns red sometimes.
Sometimes waistbands, bra bands,wrinkly sheets, etc. leave marks that last for hours after I take them off, as if my whole body was slightly swollen, like one giant hive. Antihistamines do not help this.
The pain is a burning, prickling pain. I have noted it happens more often in summer,so I think it may have to do with acid, since I drink a lot of iced tea in our long, hot summers here. I always add lemon to alkalize it though.
Mine is not caused by ABX, since I use only herbs, due to allergy to ABX.
Klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Mobic Active Ingredients: Meloxicam Representative Names: Mobic Available Product Images:
What are meloxicam tablets? What should my health care professional know before I take meloxicam? How should I take this medicine? What if I miss a dose? What drug(s) may interact with meloxicam? What side effects may I notice from taking meloxicam? What should I watch for while taking meloxicam? Where can I keep my medicine?
What are meloxicam tablets? (Back to top) MELOXICAM (Mobic�) is used for osteoarthritis or rheumatoid arthritis to reduce pain and inflammation. Meloxicam has also been used to treat mild to moderate pain due to other conditions. Generic meloxicam is not available.
What should my health care professional know before I take meloxicam? (Back to top) They need to know if you have any of these conditions: *asthma, especially aspirin sensitive asthma *bleeding problems or taking medicines that make you bleed more easily such as anticoagulants ('blood thinners') *cigarette smoker *coronary artery bypass graft (CABG) surgery within the past 2 weeks *dental disease *diabetes *drink more than 3 alcohol-containing beverages a day *heart disease or circulation problems such as heart failure or leg edema (fluid retention) *high blood pressure *kidney disease *liver disease *stomach or duodenal ulcers *systemic lupus erythematosus *ulcerative colitis *an unusual or allergic reaction to aspirin, other salicylates, meloxicam, piroxicam, other NSAIDs, other medicines, foods, dyes or preservatives *pregnant or trying to get pregnant *breast-feeding
How should I take this medicine? (Back to top) Take meloxicam tablets by mouth. Follow the directions on the prescription label. Swallow tablets whole with a full glass of water; take tablets in an upright or sitting position. Taking a sip of water first, before taking the tablets, may help you swallow them. If possible take bedtime doses at least 10 minutes before lying down. If meloxicam upsets your stomach, take it with food or milk. Take your doses at regular intervals. Do not take your medicine more often than directed.
Contact your pediatrician or health care professional regarding the use of this medicine in children. Special care may be needed.
Elderly patients over 65 years old may have a stronger reaction to this medicine and need smaller doses.
What if I miss a dose? (Back to top) If you miss a dose, take it as soon as you can. If it is almost time for your next dose, take only that dose. Do not take double or extra doses.
What drug(s) may interact with meloxicam? (Back to top) *alcohol *alendronate *aspirin and aspirin-like medicines *cidofovir *cyclosporine *drospirenone; ethinyl estradiol (Yasmin�) *entecavir *herbal products that contain feverfew, garlic, ginger, or ginkgo biloba *lithium *medicines for high blood pressure *medicines that affect platelets *medicines that treat or prevent blood clots such as warfarin and other 'blood thinners' *methotrexate *other antiinflammatory drugs (such as ibuprofen or prednisone) *pemetrexed *water pills (diuretics)
Tell your prescriber or health care professional about all other medicines you are taking, including non-prescription medicines, nutritional supplements, or herbal products. Also tell your prescriber or health care professional if you are a frequent user of drinks with caffeine or alcohol, if you smoke, or if you use illegal drugs. These may affect the way your medicine works. Check with your health care professional before stopping or starting any of your medicines.
What side effects may I notice from taking meloxicam? (Back to top) Long-term, continuous use may increase the risk of heart attack or stroke. Patients should seek immediate emergency help in the case of a serious allergic reaction.
Side effects that you should report to your prescriber or health care professional as soon as possible: *signs of bleeding - bruising, pinpoint red spots on the skin, black tarry stools, blood in the urine, unusual tiredness or weakness, vomiting blood or vomit that looks like coffee grounds *signs of an allergic reaction - difficulty breathing or wheezing, skin rash, redness, blistering or peeling skin, hives, or itching, swelling of eyelids, throat, lips *blurred vision *chest pain *decrease in the amount of urine passed *difficulty swallowing, severe heartburn or burning, pain in throat *nausea or vomiting *slurred speech or weakness on one side of the body *stomach pain or cramps *swelling of feet or ankles *unexplained weight gain or edema *yellowing of eyes or skin
Side effects that usually do not require medical attention (report to your prescriber or health care professional if they continue or are bothersome): *constipation or diarrhea *difficulty swallowing *dizziness *gas or heartburn *minor upset stomach
What should I watch for while taking meloxicam? (Back to top) Let your prescriber or health care professional know if your pain continues; do not take with other pain-killers without advice. If you get flu-like symptoms (fever, chills, muscle aches and pains), call your prescriber or health care professional; do not treat yourself.
To reduce unpleasant effects on your stomach, take meloxicam with a full glass of water and never just before lying down. You may also take this medicine with food to decrease stomach upset. If you notice black, tarry stools or experience severe stomach pain and/or vomit blood or what looks like coffee grounds, notify your health care prescriber immediately.
Meloxicam cannot take the place of aspirin for the prevention of heart attack or stroke. If you are taking medicines that affect the clotting of your blood, such as aspirin or blood thinners such as Coumadin�, talk to your health care provider or prescriber before taking this medicine. If you are currently taking aspirin for this purpose, you should not discontinue taking aspirin without checking with your prescriber or health care professional.
Do not smoke cigarettes or drink alcohol; these increase irritation to your stomach and can make it more susceptible to damage from meloxicam.
It is especially important not to use meloxicam during the last 3 months of pregnancy unless specifically directed to do so by your health care provider. Meloxicam may cause problems in the unborn child or complications during delivery.
Avoid taking other prescription or over-the-counter non steroidal anti-inflammatory drugs (NSAIDs), such as ibuprofen (Advil�) or naproxen (Aleve�) while taking meloxicam. Side effects including stomach upset, heartburn, nausea, vomiting, or serious side effects such as ulcers are more likely if meloxicam is given with other NSAIDs. Many non-prescription products contain NSAIDs; closely read labels before taking any medicines with meloxicam.
Where can I keep my medicine? (Back to top) Keep out of the reach of children in a container that small children cannot open.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Well, the pain was gone again for a couple days but has now flared big time!!!!!!!! Im still wondering if its a herx from detoxing my liver??? i don't know.
Thanks for the info on Mobic BTW, I am no longer taking it.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic