Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi everyone,
I was on babesia meds, the clindamycin and azithromycin for 6 weeks. I was supposed to get the liver and kidneys checked over a week ago, but have been putting it off because I have
been so ill. I stopped the antibiotics one week ago, because I KNEW something was wrong. Severe liver pain, and naseua, could not tolerate the antibiotics anymore, could not tolerate anything.
Since off antbiotics my light sensitivity has come back, it had improved about 30% on babesia meds in 3 months,
I have to go in tomm to get the organs tested, but wanted to ask anyone here....
After WATER, I get severe bloating, I drank about 1 1/2 cups of water and get so bloated it sits in stomach for few hours with bad pain.
Liver is in pain too. I need the antibiotics now but would never take them, LLMD wanted the testing done last week, I just sunk into severe depression because of another FALL, and not wanting to go on just ly in bed and die.
Anyways, I am thinking strongly I have permanent kidney or liver damage, as I have been off antibiotics one week and this bloating has not gone away. I am off everything except one probiotic a day,
What would bloating from water mean? never had this never had liver pain either. I had also been taking oil of oregano, and this made the liver pain happen.
I never had a problem with oil of oregano with any other anitbiotics.
I am scared, really scared that I have permanent damgage.
The severe light sensitivity returned 3 days after stopping babesia meds, some symptoms have not returned.
I could NOT get mepron no coverage.
thanks,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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posted
Have you actually confirmed liver damage with a blood test?
If so, you need to be on milk thistle and alpha lipoic acid. My liver became toxic on Ketek, taken w/Bicillin LA. My LLNP had me start taking one milk thistle capsule twice a day and 300mg ALA twice day and I stopped abx for a month. During that time, my enzymes came down enough for me to start abx again.
After I started abx again, I cont'd taking the milk thistle and ALA and my enzymes kept coming down.
If you haven't had a blood test, you need to get it done just to be sure it isn't something else that's causing your symptoms.
It IS scary, but hopefully is reversible as mine was.
Patti
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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Daughter has had severe bloating and pain in her abdomen, can't eat, can only juice and it hurts her too. She has had all her organs tested,
everything is "normal".............Have you checked out systemic yeast? She has thrush and is now on Amphotericin, hasn't really helped any. She has been on it going on 2 weeks. Sure
wish it would kick in and get that yeast. She is also on Oregano Oil, probiotics, Olive Leaf and Caprilic Acid. She also takes detox things.
-------------------- ICEY Posts: 468 | From Las Vegas NV | Registered: Jun 2005
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
thanks, milk thistle makes me burn like I am on fire. I took it for several days and thought I was going to die from it.
I used it years ago, and it did not make me like this, actually it did nothing for me back then, but it did not make me burn alive.
This is not a detox, as when I am in the light, light makes me feel like I am burning alive,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
You need to get your liver enzymes and kidney function tests done, no matter how ill you feel. It's the only way to determine what to do.
Like Patti, I too had serious liver problems from Ketek. In fact, my liver biopsy showed my liver was already in failure and doctors were talking transplant.
But I didn't need one - so don't panic! I spent months crying, being off of antibiotics, herbs, supplements, everything, and all my disease symptoms coming back. I had to go through this for five months until my liver enzymes became normal.
It was a frightening backslide, but I survived, I'm back on antibiotics and I know you will be fine, too. But if your liver or kidneys need a break, you have to do that - you cannot mess around.
Even though I had been on liver and kidney herb support while on Ketek, they couldn't protect me from the damage. And despite wanting to do some detox to help my liver repair, I could not be on ANYTHING!! I had liver pain, fatigue, loss of appetite - but never got jaundice or too much nausea. But those can all be liver symptoms.
All doctors agreed I had to go off of everything, and you might have to, also. But the liver can regenerate itself - if that's what is going on. And the water bloating does sound like it could be a kidney issue - but again, you need to know precisely what it is, and then the appropriate action can be taken.
Lyme has been one big rollercoaster for me and for many patients and it sounds like you're going through that too.
Please know you will get through this. Please post and let us know what happens.
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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WildCondor
Unregistered
posted
I would go ahead and get a full blood workup. Where is your liver pain, can you describe to us more detailed? Definetly get your blood checked and maybe an abdominal ultrasound if your doc agrees.
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suki444
Unregistered
posted
Hi I definately agree get the blood work up done but there is a chance it could be drug side effects that are causing your symptoms...both drugs can cause gut symptoms. Better to run tests and be on the safe side though,
posted
Clindy is notorious for causing C. difficile. You have to take a lot of probiotics while on it to keep from getting it, also yeast. The pain in your liver could be galbladder, but it might also be from C. diff. You'll just have to wait and see when your results come back. I hope it isn't as serious as you think it is.
Posts: 132 | Registered: Jul 2005
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posted
I have to agree that it is yeast because the exact same thing happened to me.
After being on ABX for about 8-9 months, my stomach started to bloat after meals, snacks and eventually water. That one I couldn't believe.
I went to my trusted chiropractor who practices muscle testing and it definitely came up as yeast. She had me taking 6000mg of Vit. C daily which relieved it within days. She says that the stomach and intestines can become very inflamed with this much medication.
It is also always interesting that I muscle test very strongly in favor of the ABX. So I must definitley need them but have to be careful of the yeast also. I also take oral nystatin and an occasional diflucan with tons of probiotics.
I saw her last week after another yeast flare up and she added fish oils to the Vit.C to help with the inflammation. Everything she ever suggests helps me tremendously.
Hope this helps!
Posts: 460 | From Illinois | Registered: Aug 2005
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liz28
Unregistered
posted
You are experiencing signs of high liver enzymes. I take Dr. Zhang's Hepa Formula 2, which you can get through the HepaPro website, or through Dr. Zhang's office. It takes about two weeks to work. The best vitamin store supplements for the liver are N-A-C and milk thistle. Babesia does cause liver damage and liver problems.
I don't know much about clindamycin for babesia, but am pretty sure the whole point of taking a macrolide like zithromax is to slow down the development of drug resistance, not to kill babesia. People usually take it with mepron.
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
thanks everyone,
Had the test done on Wednesday, waiting for results.
In the mean time I wanted to try something. I am off all supps except 1 probiotic. I did the milk thistle and was so ill from it I thought I was going to die. I read that milk thistle is not to be used if in accute gallbladder phase, something like this, canot recall exact words.
I also drank some carrot juice and near died from burning pain in the liver area, I was stunned from this, initially I felt the pain go away from the liver, then later went to bed, and never in all 3 years of lyme treatment had such horrifying pain. I wanted to take my life it was so bad.
I had some coffee the lasst 2 weeks, a few cups here and there, not a regular coffee drinker anymore, but was soo tired had one, was ill as can be, pain and bloating and breathing really bad. No more coffee, but now know something is really wrong for me to be soo ill from 1 cup of coffee, never a problemm before.
I read in some of my natural healing books coffee caused gallbladder attacks in those with gallbladder disease many times. So am thinking gallbladder too.
Does anyone know if this would make things worse for me? Here is this recipe. My light sensitivity is back FULL FORCE. Have been off antibiotics 11 days, and computer is making me ill as heck, brain fog, this is all I needed, when I was starting to get well from the light, and now this, I am sinking again to ill deathly health, again. I dont even like to write on here sometimes because things dont come out right.
* Mix one teaspoon of olive oil with one teaspoon of lemon juice and drink once a day for 10 days. """ Use for gallbladder
thanks,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi again, Trish,
I am so sorry you are continuing to go through this.
I know I am probably in the minority about this, but I would NOT do a gallbladder or liver flush right now (the recipe you posted is a gallbladder flush).
If you have even a tiny gallstone lodged in a bile duct, or the bile is not moving properly, forcing the gallbladder or liver to dump toxins could be extremely dangerous - because your gallbladder might not be able to process them, bile could get backed up - you could end up with emergency gallbaldder surgery.
I would wait until your test results are in.
I am like you, milk thistle has often made me very sick in the past. Right now, it sounds like anything that is forcing your liver to dump toxins or detoxify something like coffee is too hard on you.
When I had serious liver damage, so many well-meaning Lyme patients and even a practitioner I consulted kept telling me to do colonics, enemas, flushes, herbs, etc.
The reality was, this would have forced my liver to work even harder and at the moment it was severely damaged - making it work harder could have made the damage worse.
If it's just a matter of waiting a few days for the test results, I would let your body have a chance to rest - even though I know it's scary to watch your Lyme symptoms return.
These are just my opinions. I wish you well.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
thanks Jill,
I am not going to do it, now that I hear from you, I am too worried like you said.
My dryness is returning, the breathing is getting dry, this is what is scaring me.
I get dry in the light, and hope things dont progress too quickly.
thanks, will post later
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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posted
Interesting that this thread came up. I noticed that my pee was a dark color and my eyes are yellow.
Prior to my eyes becoming yellow I was feeling so bloated that I was sure that I was either constipated or had ovarian cancer. I did an enema and that did not help. I continued to feel bloated and nauseus (sp??) so I went to my gyno for a cancer screening.Waiting for those labs.
Today I noticed that my eyes turned yellow. Called my NP and she has me off of antibiotics ( ketek and amox) and on milk thistle and ALA ( which I will get tomorrow)
I am so tired of this! I know that the lyme symptoms will now come back now that I will be off abx.....this is FRUSTRATING! It is like we are chasing our tails - abx works great -all is fine then this happens ( hey did you notice that if you scramble the word this spells exactly you know what happens??) So now I have to deal with my liver, lyme goes on backburner...Today I am MAD! Thanks for allowing me to vent. Advice or venting welcomed! Posts: 66 | From Texas | Registered: May 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Health.
I would be doing NOTHING. Taking NOTHING. Until I heard back from my LLMD. If he requested test results STAT you should know pronto what the results are and can go from there.
The Oil of Oregano has caused problems for some. Babesia meds are not easy to take. I'm a week into mine and having bloating too. Even with water.
The liver has an amazing ability to heal itself. My mother was on a transplant list for many months and slowly but amazingly bounced back after stopping drinking. She still has cirrhosis but is no longer in the danger zone.
You will get through it. Try to think positive. Perhaps you can get on IM shots and bypass your tummy later on when things have calmed.
Please keep us posted. Don't give up!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
One of your symptoms is dry lung, dry breathing. I had this several times at my worst. What helped was taking minerals. My ND figured it out and when I took minerals than I gradually got better. I think the liver and gallbladder take a beating but other things can happen at the same time like mineral and vitamen deficiencies.
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Thanks everyone,
I heard from the LLMD and he said the tests were normal.
I was shocked. SHOCKED. I thought for about 10 days I would not make it, I lay with the holy crosses again all over me praying to live. What was with the carrot juice causing me to almost die? this is so insane for me to handle.
He said it could be the stomach, and said to not take the antibiotics if I am getting pain from them. I am wondering if it is an ulcer?
but then this doesnt make sense that I could not even detox coffee, 1 cup, or when I took 1 tbsp of olive oil on my ceaser salad I was in so much pain.
I really thought the tests would show something.
I tried the oil of oregano this AM and I had some mild pain, but am now thinking if it is an ulcer. Maybe in the duodenem area, I looked on in the medical book, this is where the pain is.
I am feeling for myself it is best to only do my one probiotic now, see how things go with this, things have improved somewhat since stopping the clindamycin and azithromycin.
I am to get testing done from GP, LLMD is out of town.
My nerves cannot take any herxing whatsover, the oil of oregano is making me herx and I feel to die, I cannot tolerate anymore pain, this is to do with the adrenals, I know this feeling.
Any stress is killing me it feels, herxing is a stress.
What could have done this? I dont know. I did the minocycline and flagyl and could not tolerate even these last week, my nervous system was about to collapse, it was like a herx feeling.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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posted
Hey that's good news! That means that it is probably a yeast problem. That's why you're getting all the bloating. Carrot juice has A LOT of sugar in it! That's why it caused you so much trouble. Anything that is high even in natural sugar, or high glycemic carbs will cause you problems. You should be taking probiotics 3 x's a day while staying on a very stricy diet. This will help you to feel better and avoid any flare ups.
Posts: 132 | Registered: Jul 2005
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi everyone,
Does anyone know if this could be my gallbladder?
Would a malfunctioning gallbladder show up on liver tests? I forgot to ask the LLMD.
thanks,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi Trish,
When you say the tests were normal, can you be specific as to which tests? Was it just the liver enzyme tests?
Have you had kidney function blood tests?
A gallbladder ultrasound?
I know doctors are really hard to get a hold off, but it's important that you know precisely which organs they have run tests on and whether there are additional tests that might help.
I've had gallbladder/liver/pancreas ultrasounds in the past, so I know those are often used for further investigation.
When I had liver damage last summer, I believe it was explained to me that if my gallbladder bile ducts had been blocked, it would have affected a specific liver test - but I can't remember which one. But in the past, I've had gallbladder ultrasounds when it was the gallbladder that was suspected of causing my pain.
I will keep you in my prayers.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
Hi Jill,
I only know that they were blood tests for the kidney, liver and the muscle.
The antibiotics I was on were hard on these organs, and the muscle, could cause damage so had them checked with the blood testing.
I have not had ultrasound done, will this week I hope.
I am off all antibiotics, have been for about 10 days. I am getting
SEVERE itching, and pimples. I have never had it this bad, the pimples and itching, it is not ongoing, just 2-3 times a day. Intenese itching.
I had it about one hour ago, it was the chest, like a rash, pimples too, under the jaw, the cheeks of my bum, intense itching here, like an acid itch, the calfs, and the back, pimples too, and the cheeks of my face.
I am only on one probiotic I did do the oil of oregano, 3 drops today but the pain in the stomach near killed me so stopping this.
Could a toxic gallbladder cause all these pimples? and itching?
I am one mess right now.
I feel something is up, something is wrong, the right side feels inflamed, aches.
thanks,
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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