posted
I tried Heparin before diagnosed with Lyme for 1 month and didn't feel any difference. My LLMD is big on working with it and I was curious if people that took it long term started noticing difference. I have one friend that was bed ridden and heparin was what got her out of bed. But I'm not in the bed ridden stage.
Jay
Posts: 805 | From Utopia | Registered: Feb 2006
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If you're not bed ridden - no wonder you're living in "Utopia"! ha!
I've been on heparin 2 separate times.
One time for 9 months and I think it did make a differene.
I just started it again this past month as I supposedly had a TIA and doc wants my blood to be thin. Immediately after starting it, I felt better. Placebo effect? Don't know -- but if you've ever had a TIA or a TIA-like experience, you'd be happy to inject heparin or whatever -- no questions asked!
Did you doc perform a hypercoagulation test on you? Do you have air hunger? Did the doc tell you WHY s/he wanted you on heparin?
I think if you understand WHY you're on various drugs/supplements - it helps with issues of compliance.
Good luck with it - I hope it helps you.
Hugs &
-------------------- DR. Wiseass NOT a real doc - just a real wise Posts: 792 | From USA | Registered: Jan 2005
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posted
My first doc checked my fibrogen {sp} and sed rate and thought I would benefit from heparin.
My current LLMD says 90% of his Lyme patients test positive for hypercoagulation and claim patients feel better on it.
At times I do have shortness of breath after exertion if thats what you mean by air hunger.
Posts: 805 | From Utopia | Registered: Feb 2006
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posted
I've been on Heparin for almost 9 months. I didn't notice any difference one way or the other (except for the lovely black and blue marks on my tummy and the bumps -- yuck)
I do feel it helps with the thinning blood so the lyme can more easily be rooted out.
posted
I've been doing very low dose sublingual heparin for about 3 months and it has given interesting results. I have less muscle stiffness when I'm taking it.
Also, after the first month, I started running low-grade fevers and having lots of lymph symptoms. When I stopped the herparin, the symptoms went away, only to come back again when restarted. Over time, both symptoms got less intense, but haven't yet disappeared.
Besides helping your body access hidden infections, there is also a theory that heparin is a TH1-shifter -- that is, helps the immune system fight intra-cellular infections. See http://www.anapsid.org/cnd/diagnosis/cheneyis.htmlPosts: 47 | From California | Registered: Feb 2006
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liz28
Unregistered
posted
If you don't mind "two cents" treatments, you could take a look at vinpocetine. Both Source Naturals and Jarrow market it, and there are probably more versions on the way. It's a derivative of the periwinkle plant that increases oxygen flow in the brain, is given to stroke victims in Europe, and has a good rep in the smart drug community as one of the safer, cheaper products of its kind on the market. You don't have to take more than 5mg per day.
As far as boosting the immune system, you'd probably do just as well on a good zinc/copper supplement for $5.
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posted
My doc uses heparin, he's found that more lyme and CFS patients have a high fibrin count. If your fibrin is too high things have a hard time getting though to your veins for absorbtion including ABX. Plus the fibrin traps nutrience(can't spell..damn lyme), hormones and anything and everything else, including the lyme bacteria. I actually got worse at first when i first started to use it. It helped my brain fog though.
Posts: 31 | From Los Angeles, Ca | Registered: Oct 2005
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posted
I had great results on it. I took it for three years and now take the Bolouke, or lumbrokinase instead.
It helped my brain fog, pain, and fatigue....alot.
You can indeed feel worse on it for awhile because if you're on abx, the heparin makes it easier for the abx to get to the cells.
If the blood vessels are clogged with fibrinogen, the abx can't get deep into the cells. That's another reason this therapy helps Lyme patients get well.
I had trouble with the injectable form, but after switching to the sublingual, I did fine.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
hmm i find this interesting. After my bladder procedure this is one of the drugs used to irigate my bladder.....might be why i felt better...who knows.
I didnt realize this was used in LD treatment.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Hey can't ... I used to instill heparin in my bladder daily [or was it twice a day??]. It really did help with the pain. However, the catheter part kind of caused "more" pain so it sometimes was offset by the heparin.
Karate...Yes, I took it that long. LLMD wanted me to go off but I always whined and said I couldn't take the pain!
I'd skipped doses before and knew what would happen when I stopped the heparin! UGH! Once I got on Xango, I was able to get off the heparin.
I'd never heard of anyone taking lumbrokinase AND heparin at the same time. Guess it doesn't matter as long as you're being monitored.
Sure gets expensive though.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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pq....If you're thinking Xango is a blood thinner, it's not. Mangosteen has anti-inflammatory actions, so I was able to get off the heparin. But I then switched to lumbrokinase for the hypercoagulation. I just wanted to go the natural route.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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just caught your post. i didn't have xango on mind; actually, some how i missed your statement on stopping heparin and going on lumbrokinase.
never did xango, but have it on mind. approx. a year ago, i read a lot on it and looked at one or more molecular structures of some of the ingredients. looks like good ancillary stuff. if xango has blood thinning properties,i'm unaware of this.
Posts: 2708 | Registered: Feb 2005
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