posted
This came in from North Carolina Lyme Disease Association:
Hello All, Just a quick note to let you all know that Dr. Jemsek's hearing will be June 14, 15 and possibly 16th.
Although details will follow soon, I need all you guys to be there at the hearing.!! This is the most important thing we can do to help him and the cause . So please reserve those dates now.
I realize some of you will have to take off work, that is what I am doing because this is the single most important event in the lyme community in NC EVER. PLEASE RESERVE THESE DATES.
We need everyone there including your families, friends, coworkers, and anyone interested in keeping a lyme literate Doctor in NC.
Although we are hoping for the best possible outcome DR. Jemsek could lose his license and your presence at this hearing could potentially sway the outcome. Details later this week.
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
I'll be there!!!
Posts: 2276 | From NC | Registered: Oct 2000
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Is this in charlotte or raleigh?
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
Raleigh, 8 AM
Posts: 2276 | From NC | Registered: Oct 2000
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Reading the article from the Charlotte Observer contained a serious flaw, "he couldn't proove I had the disease"
Well sir, did someone Proove you had Fibromyaglia, or Chronic Fatigue Syndrome....
Show me the blood test if you will, I'm sure we would all like to see positive seriologies for your condition, and if you will, we would like a confirmatory test as well.
Whats that you say, no such blood tests exist for these conditions, does that mean you also can't proove you have chronic fatigue syndrome??
I wonder, when does the circular logic end??
This is a flaw in argument commonly known in philosophy. Here is the link about circular reasoing and why it is not, and does not proove anything.
Why cant Dr J prove that you have lyme disease? That is his job. The spiroketes can be seen under a microscope, why not biopsy some tissue and find it. Has that ever been an option? He clinically diagnosed me with no positives.
No you cant prove some one has cfs/fibro but you can prove lyme. Why dont they?
I would never say that I dont have lyme, cfs, fibro or all of them. I can understand why Drs. such as Dr J are in trouble, they are getting filthy rich off of something they could prove with a microscope and a little time. Instead they go by test that always give false negitives or false positives or they just clincally diagnose.
Posts: 208 | From Greenville SC USA | Registered: May 2005
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posted
I actually have Lyme, and contrary to what others' experiences, I can document, and proove its existance, then again, that pertains to my inpaticular case. That was NOT my point!
Will post my point again, this time more clearly. I SUPPORT DR. J. He's a darn good doctor, and one heck of a person. Without people like him, those of us who have Chronic Lyme would be in major trouble.
Posts: 559 | From Cary, NC | Registered: May 2006
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posted
To explain a bit about Lyme, I will make this clear point. If diagnosing lyme were as simple a procedure as you suggest, then, this website would not exist.
I would suggest you to be the first to submit to multiple brain biopsies so that we can find it under a microscope. Tell us how it turns out.
Best wishes!
Posts: 559 | From Cary, NC | Registered: May 2006
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posted
According to conservative extimates, there are 240 thousand cases of CDC positive Lyme every year. Conservativly, lets assume there are 2400 cases each year of "chronic lyme", that assumption is based on certain studies which say that about 10 percent of all people with lyme have continuing symptoms. Ok, I think its much higher in certain populations and stages of Lyme, but being conservative, 2400 cases each year!!! Add that up over a number of years.
Is a patient load of 400 to even up to 1000 a huge number of patients. Any person with common sense can easily see the answer to this question as NO.
Then, the question of doctors becoming rich comes to mind. That calls into the question of snake oil. If there were definitive answers for Lyme, then the insurance companies would be forced to pay, but knowning them, they would probally find a way out. My point is that this is an expensive disease to treat, and since insurance companies rufuse to pay for us, we usually end up paying ourselves.
The question you should ask is whether the treatment is helping you.
The fact that he profits from Lyme Disease, SO WHAT! Priests also take money from the church in the form of a salary. Just because someone is a doctor doesn't mean they should run their buisness in the red. Only the government can do that, at least thats what this country likes to do.
I might also add that he does not always recommend IV therapy. So, for all those office visits and oral meds, there is no cash cow in that. And I Have seen him do that many times, and he still see's patients who have had to stop taking IV therapy. If he was such a money hungry goon, why not dump those patients and only accept those who will pay the big bucks for IV therapy??
I'm sorry for your condition if things are not working well for you. If that's the case, ask some questions, there are a lot of people here who have a lot of answers. If what your doing isn't working, we can figure this out together. There is always an answer, we simply have to ask the right questions.
[ 22. May 2006, 11:05 PM: Message edited by: LYMESCIENCE ]
Posts: 559 | From Cary, NC | Registered: May 2006
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posted
I am much too tired to say what I would like.
If you are trying to make a point you are not doing a good job of it, smart guy. I will say this, The LLMD does not make more money off of IV therapy. The drug companies and home health services make that money!
I do like how you answered my questions. You must be completly recovered to come up with all that brain under a microscope stuff. Real good!
Best of wishes to you too.
Posts: 208 | From Greenville SC USA | Registered: May 2005
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posted
The brain biopsy thing was a joke.. Tell me you didn't laugh:0
I'm only saying that people who argue against Lyme use false arguments. It is a circular logic. For example, the statement "Dr. Jemsek diagnosed people incorrectly with Lyme" assumes that there is an aggrement on how Lyme is diagnosed, a clear fallacy of argument.
Another would be, "late stage lyme should have a positve blood test" is another fallacy because it assumes everyone agrees this is correct. The person who said this in the article should have been called on his fallious statement. The facts do not support that statement. The facts can best be described as inconclusive until there is a definitive test for Lyme. But for someone to claim that another person doesn't have Lyme is an argument that can not be proven. My meaning refers to how foolish it is that Jemsek is investigated concerning the Treatment and Diagnosis of Chronic Lyme.
Furthermore, one of those patients, namely the one who died, I would argue, did in fact have Lyme. While it is certainly a horrible thing she died, I argue that there is a certain movement disorder that occurs in southern lyme. There are numerious vidoetapes concerning this effect. It happens in response to successfull therapy.
The post partem examination means little unless it is held under strict scrutiny. My guess is that is not fact.
Posts: 559 | From Cary, NC | Registered: May 2006
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What I am saying is it is pretty pathetic in this day in age that we know what we are looking for and still cant find it.
You should not be able to clinically diagnose lyme. It creates loopholes. If we did not know what we were looking for than I would say yes, as in the case of cfs/fibro. With lyme we know exactly what it is we are looking for, in all its forms. So at the same time the clinical dx. allows the LLMD to flourish it can generate lawsuits.
Posts: 208 | From Greenville SC USA | Registered: May 2005
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