posted
Just had my follow-up with LLMD yesterday. A little down cuz test was kinda inconcluesive? 18 kDa. - 22 kDa. - **23-25 kDa. IND 28 kDa. - 30 kDa. - **31 kDa. - **34 kDa. - 37 kDa. - **39 kDa. IND **41 kDa. + **45 kDa. + 58 kDa. - 66 kDa. - 73 kDa. - **83-93 kDa. -
These are my IgM Western Blot results. Test says: IGENEX IGM RESULT NEGATIVE CDC/NTS RESULT NEGATIVE My urine tests all came back negataive.
I so wanted a yes you have lyme or no you don't! Now I am still in the same place I was before I feel, 2 Indeterminate results and one positive on 41.
What does a positive on 45 mean?
My doctors says I have two choices, do nothing, or treat with antibiotics and see what happens. I choose to treat and now I am going to take Biaxin. Last month was amoxicillin. I got sick at fourth week and he said it could have been a herx reaction. Stopped for a week.
Do you think I have LYME with my test results? I know Lyme sometimes is a clinical diagnosis but I feel so down that it's still a unsure thing. I just want to feel better.
Yikes
Posts: 33 | From OH | Registered: Feb 2006
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posted
I am not a doctor, but from the research I have done, yeah...you have been exposed to Lyme. Look under Newbie links under the test part that talks about the Lyme specific bands which you have IND on your test. IND does mean there is something there, just weakly seen. The bands are 39 and 23-25 I believe. I personally think that was a herx and you should DEFINITELY get treated. I tested positive years ago and had the rash and was never properly treated. I now only test IND on 39 and 41a and positive on 66 all others negative. So that's just to tell you the test never really is conclusive at all. But to me you could never show IND on Lyme specific bands if you didn't have it. Also the test coming back Neg is because the CDC is NUTS and have a really bad way of juding if the tests are positive or negative. Do research on that too. YOu won't believe your eyes. The government is insanely irresponsible and getting alot of people much sicker.
Posts: 298 | From los angeles | Registered: Mar 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Possible HGE infection also.
Analysis by immunoblotting of serial samples from persons with culture-confirmed HGE or patients with Lyme disease and antibodies to the agent of HGE revealed a reproducible pattern of the immune response to specific antigens. These samples confirmed the importance of the 42- to 45-kDa antigens as early, persistent, and specific markers of HGE infection. Other significant immunogenic proteins appear at 20, 21, 28, 30, and 60 kDa. Use of the two-test method of screening by EIA and confirming the specificity by WB appears to offer a sound approach to the clinical immunodiagnosis of HGE.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
dang doubled up
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
23 and 39 are Borrelia specific. So, it is very possible that if you started treatment, you would see a stronger test result. Happens in about 40% of negative WB.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Do think after a month or two on biaxin I should have WB redone?
Yikes
Posts: 33 | From OH | Registered: Feb 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Human Granulocytic Ehrlichiosis (HGE) is a rare infectious disease that belongs to a group of diseases known as the Human Ehrlichioses. The Ehrlichioses are infectious diseases caused by bacteria in the "Ehrlichia" family. Several forms of Human Ehrlichial infection have been identified including Human Granulocytic Ehrlichiosis (HGE), Sennetsu Fever, and Human Monocytic Ehrlichiosis (HME). Though caused by different strains of Ehrlichia bacteria, the disorders are all characterized by similar symptoms.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Would the Biaxin I am taking work on the HGE also?
Yikes
Posts: 33 | From OH | Registered: Feb 2006
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Read Dr. B's protocol for treatment information on Lyme and coinfections. You can find it under "Protocols" on my web site below. It has all of the answers on what treats what...
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
My first WB was negative for both Igenex and CDC. Then I had one month of abx (Ketek) and was retested. It had changed to Igenex IND but still CDC negative. I had enough INDs on significant bands, and had clinical symptoms that my LLNP said that I could continue abx (thank god!) and have been on abx since last Sept.
Was just recently retested and am waiting to get the results tomorrow. I'm hoping to be positive for at least Igenex, if not both Igenex and CDC. Regardless, I'm MUCH better now than I was anytime last year. I just went to the gym this afternoon and did 35 minutes on the elliptical machine, 10 min on the recumbent bike and a lot of work on resistance machines, for a workout of over an hour.
I'm THRILLED! Last year I was just getting weaker and weaker to the point I felt like I wouldn't live much longer.
Thank god for the internet, this board and Brain Talk, which led me to the possibility of Lyme disease and my Dr.
Patti
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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That is so reasuring! I hope I feel better and am able to go back to the things I love to do. Right now I am so tired and weak sometimes I feel like an 80 year old. I get wiped out so soon after beginning anything that it is so discouraging. I'm only on day 2 of abx. How long before you noticed an improvement?
Take Care, and thanks Yikes
Posts: 33 | From OH | Registered: Feb 2006
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