trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Welcome back! Glad to hear you are SWELL!! Wanna tell more, I'd love to hear.
The board has missed your sage advice and wisdom.
Not so good over here, but still trying. Trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Love that qualified yet optimistic answer, 'swell some of the time!'
Well, back in the day, I usedta have an exploding head. (Among other things.)
I got in treatment with a good LLMD.
I got on here and handed around a lotta cheap advice (while not always payin particular attention myself to most of it).
One time I even felt great for 'bout six weeks and tried to proclaim to everyone in earshot I was cured! Hah! I proposed this to my doctor, who started laughing.
Then my head started exploding again. So I figgered I better start taking some a that advice I was handin out so liberally.
And tested positive for babesia freaking WA-1.
Hah!
NOW I know why my head's been exploding for a few years!
NOW I'm fixing it!
There you go!
I'm an idjit!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Wow!!!!!!!Can I believe my eyes!!!!!!!!!!????
Yes, I think its true........... WELCOME BACK!!!
Great to see you here.......
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by Lymetoo:
quote:Originally posted by Tincup: Be grateful!
HA!
Tincup!!! What are you doing here?? I think the world's going to come to an end!
Hey, I'll be away from the puter next week ... so you'd better come back the week after so we can harrass each other....OK???
Toots, we'll see if we can't hold down the fort until you can get home and all ready to harrass properly again.
*breathes a sigh of relief that tutu will have someone else to chase around the forum* (All this running and hiding since the birthday thread incident is tiring me out.) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Now for honeysuckle chewer's question...
A few things medically... I'm still not being treated and have been continually diving for almost a year now.
A whole lot of pain, new neurological, cognitive problems, a whole lot of fear (a lot of it worry about not being able to cover for the cognitive stuff much longer). I've got Michelle's exploding head, too. Except for today, I saw you were here and it miraculously feels better.
That said I'm about to embark on a journey to a new LLMD and "My whole world lies waiting behind door # 3".
In the meantime, I have gotten an actual copy of my positive b. microti test from 9/98. I'm hoping the new doc can get me straightened out and help me, finally, treat this crap for real.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Otherwise, waiting patiently for Tutu to get home so I can sit back and watch the show.
I am grateful!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Wow! who is tincup! whoever she/he is they are well loved by the peeps in this grooup!
Well, welcome back and hope to get to know ya! Lori
Posts: 58 | From boston | Registered: Apr 2006
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
LOL, badtick, Tincup was sicker than a dog, and still stumping for the Lyme cause on Lymenet and behind the scenes, long before I was ever infected.
TC, dunno if you remember me, because I've been in and out, doing the mommy thing, the job thing, the angry ex-wife thing...
I was infected in '01, kicked it into remission, relapsed in '05 with more symptoms than before, babesia treatment kicked it back into remission.
But all the time I thought my kid was battling depression and a strange learning disability, it turns out he had ... well, you know ... CDC positive. He's been undergoing treatment with DR. J, and the results have been slow, but amazing.
We will both be in Hartford on Friday. Totally looking forward to it. Please come introduce yourself after my son tells his story. I owe you one huge HUG.
Take care, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Hello grrlfriend. Been a long time. Unfortunately I am back here again. Fortunately I have this place to come too.
Posts: 160 | From texas | Registered: Oct 2005
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posted
Hello grrlfriend. Been a long time. Unfortunately I am back here again. Fortunately I have this place to come too.
Posts: 160 | From texas | Registered: Oct 2005
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Hey TC!!! Long time no hear!! So glad to see you back in action!! Your wisdom and patience has been sorely missed.
And who the heck are all these people posting now? Another year goes by and a whole new crop of names... Sigh...
I'm doing fantastic! Off abx since November 2004 and living a pretty normal life. I still battle the yeasty beast, but compared to where I was, it's light years away.
Thanks for checking in!!
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
WOW! Look at all the folks dropping by!!!
MY OH MY!
I have read.. with great interest and delight.. all of the posts so far... AND.. due to the late hour and fighting with my email box...
I will have to check back tomorrow night and respond to you all.
But in the meantime.. just want to say WOW.. it sure is great to see ALL of you!
posted
Tincup! We have all missed you! Hope you are well! Big Hugs, WC
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
hope your doing well,, Its amazing how the names change on this board.
I think often people just give up on posting because they feel so awfull/depressed but i think youve been busy
thats what we want!!!! the infection wants to convince us to do nothing about life,, just eat a little and dont move
doxy is kicking some but after almost a year on and off flagyl and biaxin.
taking 1/2 capsule twice a day now. Noticing herxing then better.
2 caps a day and I felt like someone was jabbing a hot knofe in my neck bone.
I also thought my matress was bad again. Been through that,, 3 matresses didnt work. Its the lyme dummy it migrates and goes dormant. Was waking up in to much back pain.
Now im leaning into the doxy and not worrying too much about sun yet.
talk soon on here
Posts: 2905 | From New England | Registered: Sep 2004
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Medically speaking, some things were better until a few weeks ago, when gloom and doom snuck back into our picture..
AND TONIGHT........she comes home with what I fear to be a bull's eye.. She has had some new ticks on her..
Shepherd Pratt is probably preparing a room for me. If the boys in white coats come for me, please come visit!!!lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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bettyg
Unregistered
posted
Tincup, welcome back. To the newbies, go to TREEPATROL'S NEWBIE LINKS, top of medical, and look thru his links. You will see TINCUP'S name over and over for ALL she's done for this board.
She is also a very active lyme activist & on the go constantly. Go TC!
He, I'm worse; could see my mortlity looming ahead of me so went out of state to Minn. to a new LLMD/holistic MD in April. She had 15-20 body tests done on me; been getting the medical jargon results for last 2 weeks.
I have posted LLMD's early summary after our 1st, 3 hr. appt. & all lab results.
Go back June6 for a 2 hr. appt. where she will explain all my new diagnosis & ailments.
Found out I'm allergic to glutin, case-in, COW'S MILK, garlic, wheat ... so starting a whole NEW diet; really hard after 57 years eating these staples.
Learned also I have 3 types of epstein barr virus, ACTIVE HHV-6, and herpes simplex virus in me.
Also lots of intestinal stuff, lack of vitamins/minerals, etc.
Can't wait to start buying some of these GLUTIN foods so I can eat again...uffda!
She's a wonderful LLMD I'd recommend to anyone. She was so thorough! Private pay but worth it; don't know if my BCBS will pay any or not. Medicare is paying a few blood lab bills like IGENEX.
Take care my busy, activist friend. I hope my frozen banana split with lots of chocolate & strawberries is still in your freezer! NOW, I can't eat it....allergic to milk you know! LUCKY YOU!
Me...I'm still hanging around, but layin low Made my way to Flagyl and Azithromyacin. The Flagyl has been rough.
Glad your back and with a smile, must be contagious, cause I got it from you!!!
~laserred~
-------------------- "Life is mostly froth and bubble; Two things stand like stone; Kindness in another's trouble; And courage in your own." TTFN -laserred- Posts: 493 | From MidWest NorthWoods | Registered: Jan 2005
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
quote:Originally posted by trueblue: *breathes a sigh of relief that tutu will have someone else to chase around the forum* (All this running and hiding since the birthday thread incident is tiring me out.) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Otherwise, waiting patiently for Tutu to get home so I can sit back and watch the show.
[/QB]
Heeeheeh, trueblue!!
BTW, TC...I'm doing well! Rifing and doing the "mangosteen rock!"
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
Well, well, well...who's that a comin'? Well, well, well...hold my hand....
Or should I be singing: Mel, Mel, Mel...
We all know where Tinnacious has been...ahem...
I am glad to hear that you are feeling mostly better.
Me? Exploding head...going to get a midline Tuesday AM for at least (hopefully) 8 weeks of Claforan.
I asked the Dr. about the possibility of Babesia and he thought I had just Lyme...although...when I read Dr. B's 2005 Guidelines, he mentions that if initial symptoms included sweats, headache and fever, one should suspect Babesia.
I only tested positive for IgG on a Babesia WB. Did the FISH through Igenex and zilch.
HOWEVER...DR. B states that there are a few more strains of Babesia that have no corresponding tests...nice...freakin' nice huh?
Tincup...what medicine did you take to get "mostly better"?
I hope you STAY better...but to all of you who do not know who Tincup is, well, if Lymenet had a Mother Teresa, she would be Tincup.
Happy Memorial day to everyone!
Peace, love and wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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posted
Just can't believe my eyes!! Absolutely thrilled to have you back on board, Tincup!!
You sure have been missed. It just ain't the same without cha'.
So glad you're "pretty swell some of the time." I hope it's most of the time.
I'm doing pretty good. Trouble is, I've had Lyme so long that I don't know how I'm supposed to feel at this age.
I'm smart enough to know I can't take antibiotics until I feel like a 40 yr old again.
Welcome back!!! What a special day this is!!
Posts: 4638 | From South Carolina | Registered: Mar 2001
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LostCityAgent
Unregistered
posted
Good question, Well in my stint with LD (now 27, dx 2 months ago) I seem to be doing better. I am 2 weeks on doxy only at 200mg daily until Tuesday when it will go up to 300mg, 2 weeks after 400 mg. Some of my most annoying symptoms have vanished, of course mild herxeimers have come and gone in this short time. Yet, none of these horrid symptoms have come back. I have lost the symptom of: 1. Numbness. 2. Lhermitte's Sign. 3. Parethesias. 4. Leg weakness.
And everything but myoclonic jering (nocturnal), malaise, depression, etc. I seem to be doing much better.
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hi Tincup,
You probably don't remember me but we did write in each others posts a few times before you left. You were very helpful.
THANK YOU!
So glad to see ya visiting. I can say for everyone hope you stop by more often.
I have been recovering very well and can see myself getting back to 100%.
All the best,
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Looks like we have a combo of the good, the bad, and the ugly here!
tee hee hee
Sorry.. couldn't help myself!
Suki.. Yes.. a steady down hill isn't good. Nice to know you are at least on the Lyme treatment roller coaster now. Not to worry... it should level out some... and hopefully soon! It takes a lot of trial and error with this tick soup we have been gifted with.. but hang in there. Better days ARE possible.
As for the turn around in my symptoms... hmmmm...
It is a combination of learning to live WITH the Lyme and my limitations.. as well as being PROPERLY diagnosed and treated... AS NEEDED.
I think the biggest improvement I saw was after being treated for Babesia and coinfections.. but MOSTLY Babesia. My Babs tests were always "borderline" at best.. and from what I can figure out now.. I've had it many years. It is obvious I had it.. and quite bad.. otherwise the treatment wouldn't have worked.
Yes.. there are MANY Babesia strains we know about, for which no human tests have been developed yet (Bowen does a good job because it searches out the actual organism and is NOT strain specific).
And who knows how many strains we don't know about that currently exist? My theory is.. if you treat Lyme and are "better"... but not "good"... treat for Babesia (positive test or not). I am seeing MANY MANY cases where folks are getting better with Babesia treatment.. who didn't know/think they had it.
Not until I did Mepron and Zith .. and that was about 15-16 years after I first became ill... did I KNOW I was on the right track.. and I saw the biggest improvement during/after that treatment.
Now.. you and others may not be the same.. but I honestly think Babesia is responsible for many of the long term cases .. and even Bartonella can do a number on us. These coinfections must be taken seriously.
I also make it a point to NOT treat with meds that don't seem to work or show improvement for me.. even if it is the "thing" to do. When I took stuff just because I was "suppose to", it was just a big waste of time and dollars... in MY opinion.
Just because XXX drug works for one person doesn't mean it works for another. I feel we MUST listen to our body. I wish I would have... years ago... instead of letting the ducks run a muck and have their way with me.... listened to what my body was telling me.
Currently I am on the Tincup Maintenance Plan (TMP).
If symptoms get bad.. for example, bladder problems.. I take an antibiotic that is designed to help that symptom. I don't need massive doses (most of the time 1/2 doses work best).. and I don't need it long term (6 weeks to 2 months max). I only use it till that symptom.. or set of symptoms... gets better.
If my brain is taking a vacation when I need it to function.. I take an antibiotic that can cross the blood brain barrier until I can sing and dance again... or at least put one word after another while speaking.
If I have "typical" Babesia symptoms (and I ALWAYS wait till I feel I MUST treat.. not just jump at the first sign of it)..
I address it in a reasonable manner till I feel better.
In between each "drug/antibiotic".. I give my body time to clear out .. and THEN I feel MUCH better for months at a time. I ride the "good feeling" until I go down with something else.
Now.. this is NOT an accepted or recommended way of treating.. and I can't tell others to do this... but it works for me.
A few old timers are doing this same sort of thing (purposely or not) and it seems to be working for them too. It keeps us from being on heavy doses of antibiotics and meds ALL the time... gives us a minimum of "down/herx" time.. and allows a clearing out of toxins in between dosing.
Then we reap the benefits and go with the flow till more attention is needed to returning or relapsing symptoms. It also reduces the yeast problems that can be severe on long term antibiotics... costs much less than conventional multiple doses and long term treatments.. and so far.. I haven't seen any "drug resistance".
For example.. I take doxy a couple times a year.. for a couple months at a time... as I feel the need. I KNOW this will sound strange.. but my body seems to "crave" an antibiotic for some reason.. and sometimes, for example, I will even "taste" the metalic taste the penicillin leaves in my mouth after not taking it for a couple of years.. and I figure it is sort of a "sign"?? that I need it?? Or I will unexpectedly "think" or have a thought of Doxy pop in my head, sometimes 10 or more times a day, for no reason??
Anyhow... Each time I take it (whatever it is I "crave"? at the time, like doxy).. it seems to work. Same with pennicillin, Cipro.. or whatever. I try to avoid IV's.. and/or drugs I KNOW never made me FEEL better.. like Rocephin, Biaxin, Ammoxicillin, etc.
NOW.. ain't ya sorry you asked a simple question? Keep in mind.. this month I have 20 years invested in Lyme and coinfections... so I've been through a lot over the years. This "treatment plan".. as weird as it sounds.. is NOT for everyone. It is used by me.. a long timer in this Lyme game.. and is NOT a standard protocol. I still believe many folks do best on long term antibiotics.. and many are able to get well and carry on. Some of us though, are unable to handle any more antibiotics in massive or even normal doses... and this plan is what I have come up with to be able to survive and have a reasonable existance... for ME.
Ok.. break time..
Hope that helps answer your question??
Sooooooooooooo GOOD to see you! It makes me smile.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Trails...
Got a hitch in yer giddy up? NOT GOOD!!!
What seems to be the problem? What can we do to help? I can't promise a miracle.. but talking about it MIGHT just help?
More than anything.. I want to see you happy and feeling better... SOON! OK? Let me know!!
Michelle...
Oh.. the old exploding head trick, eh? Some folks will go to extreme lengths to get attention!
But great to hear you are addressing the babs. I KNOW that exploding head pain. NO FUN. But the treatment SHOULD make you better than you've been in a good while.. so keep on keeping on! The herxing ain't no fun.. but the rewards can be well worth the effort.
And good to know you have a good LLMD. That is the secret to a quicker and more successful recovery. It is so nice to see you. Thanks for replying.. and keep us updated. OK?
Robbi! Is that really YOU?
Will I see your smiling face at the RALLY? I sure hope so!!! Good to "see" you too! I sure enjoyed our talks.. but it is nice to "see" you again here on the board. Let me know about the rally. It will be a better party with you there... for sure.
Lymetutu..
What can I say? I come back to see you and you take off! But if you come back.. I will be really nice to you, droopy drawers. Really I will!
Can't wait till you come out to play! Double dare ya! HA!
Oh my.. it's Tabby. A dear sweet oldie but REAL goodie! I saw your name and got all mushy and said.. "ahhhh... it's my friend Tabby, ahhhh". My heart felt warm and happy.
Then I read what you wrote... You said... "Have you been out having fun or did it take you all this time to figure out how the new Lymenet board worked?"
Nothing like OLD friends who REALLY know you! HA! Someone actually remembers the LAST time we changed the board.. before this time.. and how it took me a WEEK to figure out how to register!!! Thanks for making me look OH SO SMART!
I'll remember that. You KNOW I will... hehehe GREAT to see you sweetie pie.
Cave...
I love you too, Ms. Smarty Pants! You make me laugh!
And I WAS going to say I had heard some nice things about you and the help you've provided to some folks... but NOW I'm NOT going to say it! Soooooooooo... how do you like THEM apples, slick?
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Well.. what happened?
LymeNet went down last night as I was writing to you guys! NOT nice!
Sooooo.. I will continue here...
Hey Trails...
Got a hitch in yer giddy up? NOT GOOD!!!
What seems to be the problem? What can we do to help? I can't promise a miracle.. but talking about it MIGHT just help?
More than anything.. I want to see you happy and feeling better... SOON! OK? Let me know!!
Michelle...
Oh.. the old exploding head trick, eh? Some folks will go to extreme lengths to get attention!
But great to hear you are addressing the babs. I KNOW that exploding head pain. NO FUN. But the treatment SHOULD make you better than you've been in a good while.. so keep on keeping on! The herxing ain't no fun.. but the rewards can be well worth the effort.
And good to know you have a good LLMD. That is the secret to a quicker and more successful recovery. It is so nice to see you. Thanks for replying.. and keep us updated. OK?
Robbi! Is that really YOU?
Will I see your smiling face at the RALLY? I sure hope so!!! Good to "see" you too! I sure enjoyed our talks.. but it is nice to "see" you again here on the board. Let me know about the rally. It will be a better party with you there... for sure.
Lymetutu..
What can I say? I come back to see you and you take off! But if you come back.. I will be really nice to you, droopy drawers. Really I will!
Can't wait till you come out to play! Double dare ya! HA!
Oh my.. it's Tabby. A dear sweet oldie but REAL goodie! I saw your name and got all mushy and said.. "ahhhh... it's my friend Tabby, ahhhh". My heart felt warm and happy.
Then I read what you wrote. You said... "Have you been out having fun or did it take you all this time to figure out how the new Lymenet board worked?"
Nothing like OLD friends who REALLY know you! HA!
Someone actually remembers the LAST time we changed the board.. before this time.. and how it took me a WEEK to figure out how to register!!! Thanks for making me look, OH-SO-SMART!
I'll remember that. You KNOW I will... hehehe GREAT to see you sweetie pie.
Cave...
I love you too, Ms. Smarty Pants! You make me laugh!
And I WAS going to say I had heard some nice things about you and the help you've provided to some folks... but NOW I'm NOT going to say it! Soooooooooo... how do you like THEM apples, slick?
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Here's a reply I was going to post last night just about the time the board rudely went down:
Tincup, Tincup...seeing your posts here capped off what's been an otherwise wonderful day; thanks for coming back and touching base.
To me, you were one of the mainstays on this board, and your presence really means a lot.
Plus, it's GREAT to hear that you're doing well and that you've found a protocol that works for you. It's like an infusion of hope to us all.
As for me, I'm coming up on my one-year diagnosis and treatment anniversary. This time last year, I was basically housebound. About three days a week, I would have a window of about two hours in which I could barely function. That was it. I was tired all the time and in almost constant pain and brain fog.
Today, we went to this gorgeous (and huge) botanical garden nearby. The drive was more than an hour, and for the first time, I actually opted to drive. I did get a scooter while I was there, because it's more than a thousand acres, and while I could have walked, I didn't think I'd get too far. So we were there for hours. And I was soaking in all the nature I've been missing.
Instead of leaving there and coming home, I drove us into the city to one of our favorite Greek restaurants for dinner. And then the slow drive home along the river.
I don't know what tomorrow will be like, but that was today. And Tincup, it was glorious! I've learned to take days like this and treasure them. I'm a lot better than I was last year and hopeful, too.
I'm glad you stressed co-infections. I'd first thought that was a lot of complicated hooey, but a nasty case of Bart ruined my Christmas holidays. I seem to be making progress now on all fronts.
So what a treat it was to check in tonight, just as I was about to go to sleep, and to find your name again.
Welcome back, Tincup!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hi TC:)
Iam tired
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
quote:Originally posted by badtick33: Well, welcome back and hope to get to know ya! Lori
Hey there badtick! Love that name! I cn hear me now ... as I chew out the little devils...
"Bad tick, bad bad tick!"
HA!
Good to meet you. There are some wonderful folks here on this board.... and being here should..
1. Educate you...
2. Help get your questions answered...
3. Frustrate you over the whole stinking Lyme situation and what awful things go on politically and dollar wise that keeps us from being PROPERLY diagnosed and treated... and heard by the ducks and others..
And...
4. Hopefully give you some of what Dr. Burrascano recommends for everyone with Lyme...
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Bo oh boy... look at all the folks here! WOW!
I am TRYING to keep up with responding.. but I am getting overwhelmed. The site keeps going down for some reason too.. which has slowed my progress.. but I am trying!!!
Deaest SHAZ..
I am kinda surprised when folks ask if I remember them. (Of course with Lyme brain I GUESS that could be expected)..
BUT..
I want you and others here to know just how important you all are to me... and have been for years! I'd have surely been totally messed up and/or gone long ago if it wasn't for the support and kindness and help from all of the people here.
Many of the folks I've never met in person... but that's ok. I feel I know each of you in my heart and I keep you there with me always.. rather than in my rusty old brain storage compartment.
I won't forget YOU! You personally touched my heart years ago. I couldn't forget.. even if I tried.
Sorry you had to hit the Babs bump in the road and it caused problems. Hope now you are doing better than before.. since treatment? And to hear your little one is hurting from this Lyme junk.. OH NO.. it breaks my heart.
But.. at least you have Dr. J... and simply put.. there ain't none better. Please keep us updated on his and YOUR progress.
By the way.. I am THRILLED to hear you will be at the rally!!! PLEASE don't leave without saying a big howdy to me!!! I get fairly discombobulated in a crowd.. and especially in the city.. so I will most likely be unable to search out folks individually. Heck.. I'd be happy to not trip and stumble over them as I wander around!!
You can't miss me. I'll be the one wearing Lyme green!
SO nice to see you!!!
^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^
BETTEX!!!!!
Your name... seeing it.. makes me grin!
Your reason for being back, saddens me. What can we do to help?
Now don't take this wrong and get yer nose out of joint.. ok?
It is good to know.. in ONE way.. that you are here. You have so much knowledge on the subject and have helped many others in the past.. so it makes LymeNet a better place when I see you back on the board.
In other words.. sorry you HAVE to be here.. but nice to see you and I know you will do good.
And do remember.. relapses happen.
And we CAN address them... so HANG IN THERE little darlin'.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
quote:Originally posted by WildCondor: Tincup! We have all missed you! Hope you are well! Big Hugs, WC
So much to tell you WC!!
I was sitting on the back porch step two nights ago.. watching an eagle fly about and listening to them.. and thinking..
I've never actually seen a wild condor. Yes.. pics on the TV and film.. but never a real one in the wild. That is something I will have to put on my list of things to do... and of course the whole time I was thinking about you!
Anyhow..
Even though I've had the computer off totally for the past few months.. I keep hearing about this person named "Wild Condor".
As folks call and/or approach me locally I have been sending them to LymeNet for help. A good number of the ones who call back have told me about this person named Wild Condor.. and how she has helped them... and they have all mentioned how great your site is!!!
To be honest.. I JUST got back online and haven't had a chnce to check it out for myself.. but I couldn't wait to tell you that folks here are reporting back GREAT things about you and your site! You have made an impression far and wide... and I for one am VERY grateful for your effort!
Thanks for helping MY friends and neighbors and so many others.
Good to see you.. and someday maybe.. a real wild condor too??
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
quote:Originally posted by lymeHerx001: hope your doing well,, Its amazing how the names change on this board.
the infection wants to convince us to do nothing about life,, just eat a little and dont move
Yo Ho Lymeherx..
Yes.. to see so many new folks is heart breaking. But at least we know they want to help themselves and they now can thanks to Lyme Net... and the folks here who share so much of their time to assist others in the same boat.
Good to hear the doxy is doing something. It is my drug of choice when I am headed in the dumpster. It always helps in some way. BUT.. like you.. I can only do a little tiny bit at a time. Overdoing it makes me horrible. So keep on keeping on... and take breaks as needed. The turtle wins the race.
As for the mattress.. hmmmmmmm.
I HAVE to sleep in a water bed to be able to sleep at all. The seams and wrinkles in a regular mattress HURT my body too much.. and sleeping on one makes me feel like I've slept on a concrete floor all night long. NOT GOOD!
I call it the "Princess and the Pea Syndrome". If you don't know that story... try looking it up. My bet is that she had Lyme!!!
Now don't go out and get a waterbed just cause I mentioned that.. but have you considered it or tried it? Many folks don't like water beds.. but to me they are a life saver.
When I can't sleep in a water bed (out of town).. the only other option is a foam mattress.. the kind you find on the older sofa beds or fold out cots. They have NO springs/coils... just the foam. If I can put that on top of a regular bed.. I feel better and sleep better. On a sofa bed.. with those metal springs.. I can not use the foam mattress at all.. but on a reasonable "other" kind of regular bed.. it takes the pressure off the back/joints and I do fairly well.
Also... sometimes the doxy herxing.. or any herxing really... seems to affect my back. My thought is, it is kicking keets there?
If the pain is too much.. maybe back off or stop for a short while. BUT.. of course you must talk to your doctor first before doing any med changes.... cause as you know, I am NOT a doctor.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
quote:Originally posted by lymemomtooo: If the boys in white coats come for me, please come visit!!!lymemomtooo
Before the computer overloaded and dumped 5,000 plus emails into my box.. I did manage to scan over two of your older emails.. briefly. But they were dumped by the computer before I could respond. I THINK my box is working again?? As of late last night? But don't count on it.. yet. OK??
I passed through your neck of the woods the other day.. and surprise surprise.. it wasn't RAINING!!!! If I hadn't been so exausted and also rushed to get home to dog sit 3 BIG labs who were anxiously awaiting... I would have gotten together with you and one of the OTHER fruitcakes up your way!
Anyhow... I just got back from my "little ones" wedding!!! Words just can't explain...
So sorry to hear about your latest troubles. It sounds like you may be sneaking into the whiskey for my men, beer for my horses stash if things don't improve soon!
I DO hope it gets better. I know you have your hands full!!!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
quote:Originally posted by bettyg: Tincup, welcome back. I hope my frozen banana split with lots of chocolate & strawberries is still in your freezer! NOW, I can't eat it....allergic to milk you know! LUCKY YOU!
Bettyg
Thanks for the kind words... silly girl. Now cut that out! I don't look good in red face and while hiding behind trees. hehehe
Not sure who your new LLMD is.. but sounds FANTASTIC!!! Actually... I THINK I do know who it is... maybe.. but not sure. I am sure you don't want to go there and ask if she ever ate Oysters Rockerfeller one night with someone named Tincup.. but if she did.. I do know her. VERY good person.
And darn it all... looks like.. since you are allergic to milk... I am going to have to eat that banana spilt FOR YOU!!!
Good to see the attitude you have about all the changes. They won't be easy or fun... but...
I know when I changed my way of doing things.. I saw a BIG improvement. Hopefully you will get along real well!!!
And a big thanks for all you do to help others. Keep up the good work. It IS being noticed!!!
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Tincup,
If a waterbed is comfy for you, you should try an air bed sometime. You can adjust the pressure for YOUR needs. Paul Harvey would be very GLAD to sell you one. or try for 90 nights.
Myself I am always the same, never better, never worse. I threw away a whole bunch of Rx's and OTC stuff I WAS taking. It saved me about 1200 bucks a month and I think I feel at least that much better (every month).
The ONLY thing I still take is PAIN meds and OTC's. Plus generic cardura so I can stay asleep as best I can. My BEST sleep med is still that 1 gram of salt. Weird huh??? Specially when it is HOT outside like now and my body does 'use' ALOT every day just survivng. Light skinned and perspire very quick!! Wish I was dark skinned like Others I know!!
We used to take salt pills all the time, why NOT now??? all that hypertension stuff is just hooey in MY book. Your milage may vary!! works for me. sucking on salty sunflower seeds makes me feel better all day, all night!!
Glad, so glad to hear of your, your progress, in a way!! keep up getting it done for YOU!!! because I am still --just don-- with a sore nogin!! This one is for YOU AND a Imagine that,,, I could figure out how to click on a icon!!! What will I ever learn NEXT???
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
LIVER LOVER! NOT!
Good to see you!! Zippity do dah!
Are you coming to the RALLY? Say yes.. say yes!!
I PROMISE NOT to make you eat any liver if ya do!!!
We can eat Bettyg's banana split instead!
Hope you are feeling better. It seems sometimes like it has been a LONG time since we talked.. but I guess it is because I missed you so much!!!
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by trueblue: Did I get skipped over? *
Or are you saving some sort of special teasing advice for me?
I hope it doesn't mean there aren't any words of wisdom for me. (or maybe I'm invisible again, I hate when that happens)
*about the 9th post from the beginning
Iam invisible too hehehehe
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
quote:Originally posted by treepatrol:
quote:Originally posted by trueblue: Did I get skipped over? *
Or are you saving some sort of special teasing advice for me?
I hope it doesn't mean there aren't any words of wisdom for me. (or maybe I'm invisible again, I hate when that happens)
*about the 9th post from the beginning
Iam invisible too hehehehe
It does make the hiding thing easier, though.
(I thought there was some one under this cloak of invisibilty with me. Glad to be in good company.)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
No.. you are NOT invisable Tree... or True..
Or anyone else!!!
I am TRYING to work my way down through ALL the replies on this post.. one at a time.. and respond to each of you.
It is really hard to do with the Rally stuff going on.. the hearing preparations... phone calls non-stop... LymeNet going down 3 times in the last 36 hours.. and with my email mess.
And I JUST realized I have to be cleaned up.. packed.. camera ready.... and ready to get on that train in less than 48 hours!!!
Plus we are headed to the Veteran's Cemetary too.. a long drive but well worth it.
So.. I will have to officially quit responding individually here to all the responses until AFTER the rally and once I get back to the computer... and can catch my breath!!!
Please forgive me.. and know I am enjoying EVERYONE's response so far! THANKS!
Just can't get back to everyone at once.... ok?
Hope to see MANY of you at the rally. Will report back ASAP.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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I figured you didn't post as much so must be out enjoying yourself ![[woohoo]](graemlins/woohoo.gif)
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Made my way to Flagyl and Azithromyacin. The Flagyl has been rough.
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and while hiding behind trees. hehehe![[loco]](graemlins/loco.gif)
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