I have been around a while and have read thousands of posts --
many of the stories are the same -
and riddled with frustration over the medical, financial, social, familial, political and other difficulties of this disease.
I have read of a majority of cases who have been shunned by insureres.
I have read thousands of posts by parents who's children are ill, and who have found relief in treatment with Doc J, or other pediatrics who follow his lead and care practice.
Doctor Jones, for the first time I know of - has ASKED SOMETHING OF US!!
so... I don't quite understand - why we are not seeing hundreds of posters on LymeNet saying
YES -- I am coming to the Rally!!
YES - even tho I am hurting and tired and busy - I know I MUST be there!
YES - there is finally something I CAN DO, that will make an impact, maybe even change things - turn things around!
YES - I will stand with others who are hurting, and sick, and tired!
YES - I am bringing my family and freinds too.
YES - I stand behind ALL doctors treating Lyme!
YES - I care about what happens to all patients, especially the children!
YES - I am going to, if but for one day -- cast aside the doubt and downtrodden feeling I live with ... and make a bold move!
YES - I am going to make that move without hesitation, whether with LDA, LDF, allopathic or alternative care!
YES - I will show support for the LLMD's and the speakers that have put this Rally on the map.
YES - I am going to do what Doc J has asked us to do, himself!
I don't see how this is any different than a family emergency --
If you would be there for an emergency - be there for this.
THAT IS what this is.
Don't make the mistake of thinking otherwise.
Don't make the mistake of thinking there will be enough people without you. THERE WON'T.
What kind of slap in the face to ALL our Lyme Docs will it be if we have a poor showing?
What effect will that have on the legislators who have stood behind the Federal Lyme Bill? A Bill that has taken YEARS to generate?
What effect will that have on the media who are ready to cover this event?
When Doc B had his rally - there were hundreds there. It WAS a definitive turnaround then --
and this community has made strides, but we have also been knocked down.
ALL the LLMD's - not just Doc B and Doc J -- are counting on the patients to do something this time.
This is our chance to pay it forward.
Each one - Reach one -
I personally know of four people going in wheelchairs.
PLEASE - make that move.
If you are here, if you are sick - that is the very reason you need to go.
There won't be another chance if we loose Doctor Jones, and all the other momentum that has been won by folks who are chronically ill themselves, and working for many years to make things better.
Therefore --
IF NOT NOW -- WHEN ???
Mo
[ 30. May 2006, 01:59 AM: Message edited by: Mo ]
Posts: 8337 | From the other shore | Registered: Jul 2002
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Mo- do you know roughly how many people are going so far?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
What I have heard from support group leaders - is, sadly .. "not enough".
If there were enough, we'd be seing that here.
People need to realize the impact of showing up for this rally is a thousand times greater than walking into your state legislator's office. It is a thousand times greater than holding a rally in your home town - and the potential ripple effect is HUGE.
We have legislators and media watching. We have the best LLMD's on the line. Show yourselves!
What would have happened if the million man march, or the sufferage movement - the civil rights movement -- only had 50 people showing for the event? Nothing would have happened.
We can do this guys - without a doubt we can. It's a moment of truth.
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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WildCondor
Unregistered
posted
We need school buses full of people and round up the sick kids too! The time IS now!
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posted
Everyone please go tot he rally!......Load up on pain meds if need be and go....
Anyone needing a ride in western CT please let me know!.....
daniella
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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I feel you. I wish I could be there but California is far away and I am in no shape to travel. But I'm very excited!
So since I can't attend to support Dr. Jones, I decided to "say it with money" lol for Dr. Jones. When I got my Social Security disability accepted (thanks in huge part of ConnieMc for the referral to an advocate) I fired off $100 to the Jones fund.
I've never met the guy, but everything you said about him affecting all Lyme patients for the better is understoodloud and clear here.
I hope everyone has a great time at the rally!
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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posted
Oh man. This is Mo at her most passionate.... and so few responses.
Please everyone. We have always said that if they come after Dr. Jones we would be out on the streets protesting.
Heroes should get our support.
We have always said that when they tried to limit our treatment even more than it is now, we would be out on the streets, protesting.
Well, new IDSA guidelines are coming out soon adn the advance word is not good for us.
Many people have not even heard that there is a rally. Please get on the phone and call everyone you know. THis is an emergency.
All the pieces have been put in place for us. The ATTORNEY GENERAL OF CT. is speaking in our support. A state legislator will be speaking in our support. Dr. B will speak. Dr. Jones will speak. Pat Smith will talk. THere has been massive outreach to the media.
All that's missing is us. Please get the word out. Please come. Bring friends, family , neighbors and any hitchhikers you may find on the road on your way to Hartford.
Right now I"m only aware of how many people are coming from NYS, and the number is shamefully small - particularly considering how close we are.
We need a massive turnout if we are going to stop being trampled by those who would take our medical care away from us.
If you ever make one protest, this is it. Please come to Hartford on June 2. Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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posted
I'm not sure making people feel like crap because they can't go is very positive or motivating, and personally I am very hurt and offended by this post.
-------------------- Dani Posts: 102 | From Where there is no lyme | Registered: Jan 2006
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